Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

We Did Their Test Today.

mommyto2kids

Recommended Posts

mommyto2kids Collaborator
mommyto2kids
Posted

I'll let you know the results. Gotta love the prize box!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommyto2kids Collaborator
mommyto2kids
Posted
  • Author

Ok daughter was so apprehensive that they tried for an hour and a half. Two uncessful sticks. My husband is cursing needless to say. I'll try again next week earlier in the morning. Advice on successful testing would be appreciated! She's 6 and willful like noone's business. So frustrating. So those of you that really don't need the test for the school to listen, think twice. We did have sucess with son, 7. He was a champ.

kareng Grand Master
kareng
Posted

Hopefully, the people doing the stick do children often? That is the first thing to think about. Second, don't take the husband. When he gets upset, it shows LittleGirl that there is something to be upset about.

Make sure she is well hydrated. Extra drink every day for the week before. My SIL draws blood & says that is helpful.

Maybe something to do while they are drawing the blood like eating a sucker and watching a cartoon.

Lastly, a frank discussion tomorrow or the next day about the facts of life - we all have to get blood drawn every once in a while. We have lots of blood. It must be done even if we have to make it unpleasant and strap you down. But big smart girls will not need that. Smart girls don't watch. They sit still on their own or Mom's lap. They can say " Ouch!" " Zebra Breath!". "Poop! Poop! Poop!". ( the only time it's allowed to " curse"). When they are done, they get to......( insert special activity or treat).

This is important for her health and growth. If she had appendicitis, you would force her to get it fixed if you had to.

Roda Rising Star
Roda
Posted

Check and see if they have something to numb the area up with. My son went Wednesday for his scope/biopsy and the nurse put on this numbing/warming patch on my 10.5 years olds arm and left it there for a little bit before sticking him for his IV. He isn't afraid of needles but they said either way it makes it easier..numbs the area and warms it up to help the veins stick out better. Definately keep her well hydrated before the blood draw too.

Roda Rising Star
Roda
Posted

Hopefully, the people doing the stick do children often? That is the first thing to think about. Second, don't take the husband. When he gets upset, it shows LittleGirl that there is something to be upset about.

Make sure she is well hydrated. Extra drink every day for the week before. My SIL draws blood & says that is helpful.

Maybe something to do while they are drawing the blood like eating a sucker and watching a cartoon.

Lastly, a frank discussion tomorrow or the next day about the facts of life - we all have to get blood drawn every once in a while. We have lots of blood. It must be done even if we have to make it unpleasant and strap you down. But big smart girls will not need that. Smart girls don't watch. They sit still on their own or Mom's lap. They can say " Ouch!" " Zebra Breath!". "Poop! Poop! Poop!". ( the only time it's allowed to " curse"). When they are done, they get to......( insert special activity or treat).

This is important for her health and growth. If she had appendicitis, you would force her to get it fixed if you had to.

Well said. My youngest son for the longest time had a thing for shots but only at the peds office. He was fine for a finger prick or getting blood drawn at the hospital lab. He would try and kick and smack the nurses giving him his immunizations in his legs or the shot for strep. I didn't get mad or angry at him. I just stated matter of factly that it was going to be done. He had the choice of doing it the easy way or the hard way. He usually chose the hard way and it resulted in me and another laying on top of him and immobilizing him to get it done. He has finally learned in the last year that putting up a fight makes it worse on him not me. One reason I think he put up such a fit for the bicillin shots is because they hurt like the dickens so I'm told.

mommyto2kids Collaborator
mommyto2kids
Posted
  • Author

If someone could tell me more about the numbing patch, I'd sure appreciate it. What is it called? Do I need a perscription? I want to get her tested, please help. For those that already chimed in, thanks. Anything to pick up over the counter?

The blood draw office suggested getting her tested between 10:00 and 2:30,most techs on duty. But 2:30 was a bad time. So should I just take her back at 8:30 with no numbing patch or call ped for numbing patch or what? Bacause dad had no luck. I just can't not test her because she's stubborn. They wanted to do her hand and she'd have no part of it. She's a six yr old swimmer, very strong! So it would take 10 techs to hold her. I want to get rid of all the gluten bread that is everywhere for my safety and know first I should test her.

Roda Rising Star
Roda
Posted

I have no idea what the patch was or called. I'd never seen it before. It's worth a call to the peds office and ask about it or the laboratory.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

Open Original Shared Link

I have heard great things about this on my allergy boards. I considered getting one for DS but he has become an old pro (at 4, which makes me as a Mom really sad) at blood draws. I just learned about it and the science behind it is pretty good (having been in the health care field and involved with pain management for a while).

kareng Grand Master
kareng
Posted

There is stuff they put on the skin to numb it before they put in stitches or IVs. The doctors office should know.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.