Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

18 Weeks Pregnant B-12 Very Low


Lindsay630

Recommended Posts

Lindsay630 Rookie

Hi Ladies,

I am 18w1d and had labs drawn last week to check vitamin levels. I found out today that my B12 level is extremely low and my vitamin D level is 31 when 30-100 is normal. I am really stressed out about the B12 and my OB doesn't seem to get why I am insistent on more monitoring. I have been Celiac my who life I believe but diagnosed 1 year ago. I had to insist OB even do these tests as she felt they were unnecessary. I have asked to be referred to a high risk OB/perinatoligist(sp?.

Anyone have these issues? What happened?

Thanks

Lindsay


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Angels Newbie

I am now 35 weeks pregnant and my ob didn't seem to really say much about celiac, other than just stay on the vitamins that are prescribe to me by my general dr, calcium and vitamin D. I think as long as you stay away from any sources of gluten your body tends to make it easier to absord the proper nutrients. I thought I would maybe have to double up on prenatal but that was a no too. My Ob did start to schedule monthly ultrasounds after 18 weeks to monitor the babys growth. But other than that it seemed like she wasn't to overly concerned. Take care and let us know how things are going.

cyberprof Enthusiast

Hi Ladies,

I am 18w1d and had labs drawn last week to check vitamin levels. I found out today that my B12 level is extremely low and my vitamin D level is 31 when 30-100 is normal. I am really stressed out about the B12 and my OB doesn't seem to get why I am insistent on more monitoring. I have been Celiac my who life I believe but diagnosed 1 year ago. I had to insist OB even do these tests as she felt they were unnecessary. I have asked to be referred to a high risk OB/perinatoligist(sp?.

Anyone have these issues? What happened?

Thanks

Lindsay

Hi Lindsay, did you have your vit levels tested before you go pregnant? If you didn't, they may have been low all along. If you are going to see a high-risk OB, then hold off. Otherwise I'd get a sublingual B12 tablet (gluten-free of course) and take that daily. Sub-lingual means "under the tongue" and is sometimes the only way we can take it as the damage to the digestive tract lingers and may prevent absorption in normal ways: Try GNC or a health food store. Trader Joe's has one. The most easily absorbed/used form is Cyanocobalamin but if you can't get that, then get the more common Methylcobalamin, which is harder for the body to use, as I understand it (but I'm not an expert). But it will still help.

As I said, I'm not a doctor but I find that if I skip the sublingual, my energy goes down and I don't feel well.

For vitamin D, you may have to take higher levels. I think the maximum limit now is 10,000 units a day, but I'd be worried about taking that much while pregnant without talking to an expert. B vitamins are different- there's less risk at higher levels. So you should talk to a specialist or a nutritionist on this one. Some people who are deficient in D get infusions monthly. And get as much sun as you can without sunburn.

Lindsay630 Rookie

Hi,

Thanks for your great responses. I finally talked to OB who was not very nice at all. She said well obviously you need B12 injections but my office doesn't do them so figure it out. I was so outraged! Told her I needed a referral for high risk and she said fine! So I called my GI Dr who gave me a B12 injection yesterday and I will take them every other day for 2 weeks and retest and see what is happening. He was not as concerned with the vitamin D. I will see the high risk Dr tomorrow and see what they think.

Thanks again.

  • 2 weeks later...
organicmama Contributor

You can get a prescription and inject the b12 yourself or have your partner do it. It goes in the arm or bottom and is super cheap (free on our not so great HMO). I have been doing it for years. There's no reason to have to go to a doctor for that.

I personally don't see the need for a high risk OB, although I do think you need a new OB period that has a little better demeanor. Many high risk docs primarily end up doing c-sections, so you greatly increase your risk of getting one. The studies indicate that you and the baby are much more at risk typically with a c-section, especialy when they constitute about a third of US births. The estimated rate that they are really needed is 5 - 10%.

B12 often comes combined with folic acid, which is very important to pregnancy. Have you had that checked?

sb2178 Enthusiast

at 18w, the critical point for folate is past (not that you shouldn't fix any deficiencies, just that it's not incredibly time sensitive at this point).

I would also recommend trying to talk someone into testing the infant after birth, or at least discussing whether supplementation might be helpful. Infants of mothers with depleted B12 are sometimes born with insufficint stores since they get it from mama. You'll need a pediatrician with serious knowledge about nutrition or possibly an RD, as that's one thing that was briefly mentioned in a clinical class i had but would not be brought in the vast majority of MD training programs given they get very little nutrition.

31's a bit on the lower side, but the med community is all over the place on where they think it should be, so some would treat, some wouldn't. I'd be sure you are taking an MVI and/or calcium with it, and again, make sure you give the baby vitamin D drops in the recommended amount.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    2. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    3. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    4. - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748

    jlcvt
    Newest Member
    jlcvt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.