Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mri Scheduled


AVR1962

Recommended Posts

AVR1962 Collaborator

I am scheduled for an MRI, something doc wanted since I was having so much trouble with balance. He said he wanted to see if I had a stroke while taking a herbal cleanse product, all my symptoms at first (Feb) were being linked to the herbs. I have not been back to the doc since being on a strict gluten free diet and figured it was the glutens (or malabsorbtion from gluten) that was causing my problems.

It's my understand that that gluten damage will show up in a different part of the brain than stroke damage. My question here is if any docs have been able to help determine a diagnosis of gluten intolerance/celiac from an MRI? I have not yet had an actual diagnosis as I got too sick to make it to my celiac testing, and docs said without going thru with the testing they would not be able to help me with related symptoms. I have been on a gluten-free diet since April.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I haven't seen any articles like that. I think the patients they look at for damage are pre-determined to be gluten sensitive.

Do you have the link to that online article about mri's and brain deposits, and no mri change after 1 year? I'd love it for my files and to send to family. I HAD it, now can't find it. Grrr.

AVR1962 Collaborator

I haven't seen any articles like that. I think the patients they look at for damage are pre-determined to be gluten sensitive.

Do you have the link to that online article about mri's and brain deposits, and no mri change after 1 year? I'd love it for my files and to send to family. I HAD it, now can't find it. Grrr.

Sorry, did not save that link and could not find it in a search. However, I did find this in the process of my search and it answers my question:

Open Original Shared Link Use This To Link To Spam.com/?Brain-And-Neurological-Problems-Affect-Almost-Half-Of-Celiacs-Even-With-A-Gluten-Free-Diet&id=904155

pricklypear1971 Community Regular

Thanks. Have you seen this one? Open Original Shared Link

Hope your MRI goes well.

AVR1962 Collaborator

Thanks. Have you seen this one? Open Original Shared Link

Hope your MRI goes well.

Thanks for the link, it should be interesting to see what comes of my MRI. I am really hoping that since I have been gluten free and my health has improved that maybe we can proceed in a positive direction.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.