Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Horrible Insomnia!


HopefulMama23

Recommended Posts

HopefulMama23 Explorer

My hashimotos causes me to have bouts of just horrible insomnia- 2-3 hours of sleep a night for weeks at a time. I will go to bed at 10 and fall asleep around 3:30 am, for many nights in a row. Melatonin doesn't seem to help. Any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You have to sleep it is vital for your health and emotional well being. Have you mentioned this to your doctor? You may need to adjust your Thyroid meds or the time you take them. Don't know if they might be contributing as I don't know much about thyroid issues. You might also want to ask for a sleep aid to use on a temp basis. I resisted them for a long time, well any meds actually, but have found my anxiety med to be a great help and now sleep a solid 8 hours on a decreasing low dose. Sometimes the first step stuff like a totally dark room, a warm bath, going to bed at the same time every night etc just don't do the trick.

HopefulMama23 Explorer

Thanks Raven. The insomnia comes when I swing into hyperthyroid- so I'm not on thyroid meds, just waiting for my thyroid to tire out and die. :-)

You're right- it's time I tried a real sleep aid, as much as I hate the idea of that, I hate not sleeping at all even more.

kendon0015 Rookie

One of my biggest symptoms for years before being diagnosed with hashimotos was insomnia and was 100% cured with synthroid...luckily Yes, perhaps your medication may need a second look. Also, what may seem obvious, be sure you aren't napping during the day which can affect your night time sleep. I know when I have a busy day, I'm really tired when I go to bed. Don't go to bed to early, and try not to fall asleep on the couch watching TV before your usual bed time.

jerseyangel Proficient

I have found this helpful--

Open Original Shared Link

I take 3 tablets about a half hour before bed.

love2travel Mentor

I feel your pain! Though I do not have Hashimoto's I have had insomnia for nearly 20 years but it has been even worse the past 3 1/2 years after an accident that has left me with severe chronic pain. The only thing that helps me after trying all there is on the market is Zopiclone, a prescription sleep aid. I have been on it for 12 years and have no dependence as I only allow myself to take it once per week. It is the only thing that guarantees me a good sleep. Fibromyalgia also causes me agonizing pain and sleep is absolutely crucial but I find it nearly impossible to get to sleep because it is so darned uncomfortable no matter what I do. Melatonin and other supplements are like candy to me but can help others.

Do not be concerned about asking your doctor about sleep aids! Sometimes you just have no choice.

sariesue Explorer

If you do go with the prescription sleep aid route make sure that you aren't alone the first time you take it. Ambien can cause hallucinations. The times that I took ambien I would hallucinate and then have a panic attack due to what I was seeing. However, I have no problems on ambien CR. If you are concerned about long term issues or the typical side effects of hypnotic sleep aids, very low doses of Seroquel are used as an off label sleep aid. It's technically a mild antipsychotic, but at subtheraputic doses it works as a sleep aid. Plus it doesn't cause dependence or the common side effects of prescription sleep aids. There is an old school antidepressant that it used as a sleep aid as well but seeing how it didn't work for me I can't remember the name.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HopefulMama23 Explorer

Thank you to everyone! JerseyAngel, I am actually studying homeopathy and i'm interested in your remedy you mentioned. Can you tell me more about how it has worked for you?

I actually took a Xanax and then an Ambian last night out of desperation and they DIDN'T WORK! I'm totally freaking out now. I hate the idea of drugs but I at least thought I had them as a last resort. Now I feel hopeless.

Can you tell me more about the serequel too?

sariesue Explorer

Seroquel is a second generation antipsychotic. In low doses it is very very sedating but as the dose gets higher it becomes less sedating. It's currently only labeled to treat psychosis, mania, and major depression. Off label uses include insomnia and GAD. It's nonhabit forming so it can be used more long term than traditional sleep aids. It does have side effects the biggest that I know of is weight gain. If you want more info I'd look it up on drugs.com or webmd.com

jerseyangel Proficient

Thank you to everyone! JerseyAngel, I am actually studying homeopathy and i'm interested in your remedy you mentioned. Can you tell me more about how it has worked for you?

First, I need to let everyone know that this remedy (Calms Forte) contains oat. I was terribly remiss to not mention that before, but honestly I'm so extremely sensitive and it hasn't affected me at all as regards Celiac symptoms that I forgot. It works very well for me--I take 3 tablets with water about 30 minutes before I go to bed and it helps me settle down and fall asleep. The amount of sleep I get has varied--4-6 hours tops.

HM23, it was suggested I try this by a professional. I have been having a lot of trouble sleeping due to anxiety, and had been using a 1/4-1/2 of a Klonopin to sleep. That was working well, but I didn't want to get addicted. I don't use it during the day due to the drowsiness, but it works great to allow me to fall asleep. My doctor prescribed Sonata but I've been afraid to try it.

Just last night I tried Hylands "Insomnia" remedy and it helped me fall asleep within about 10 minutes. I did wake up after about 4 hours, which I find happens with whatever I've tried. The "Insomnia" contains no oat or gluten, and dissolves under the tongue so I plan to keep it on my nightstand.

Luckily, the Homeopathic meds tend to work for me, as I'm so sensitive that it's very difficult for me to use most prescription meds. The Klonopin was the only thing out of many that I could tolerate.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,496
    • Most Online (within 30 mins)
      7,748

    dalimoda
    Newest Member
    dalimoda
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.