Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Horrible Insomnia!


HopefulMama23

Recommended Posts

HopefulMama23 Explorer

My hashimotos causes me to have bouts of just horrible insomnia- 2-3 hours of sleep a night for weeks at a time. I will go to bed at 10 and fall asleep around 3:30 am, for many nights in a row. Melatonin doesn't seem to help. Any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You have to sleep it is vital for your health and emotional well being. Have you mentioned this to your doctor? You may need to adjust your Thyroid meds or the time you take them. Don't know if they might be contributing as I don't know much about thyroid issues. You might also want to ask for a sleep aid to use on a temp basis. I resisted them for a long time, well any meds actually, but have found my anxiety med to be a great help and now sleep a solid 8 hours on a decreasing low dose. Sometimes the first step stuff like a totally dark room, a warm bath, going to bed at the same time every night etc just don't do the trick.

HopefulMama23 Explorer

Thanks Raven. The insomnia comes when I swing into hyperthyroid- so I'm not on thyroid meds, just waiting for my thyroid to tire out and die. :-)

You're right- it's time I tried a real sleep aid, as much as I hate the idea of that, I hate not sleeping at all even more.

kendon0015 Rookie

One of my biggest symptoms for years before being diagnosed with hashimotos was insomnia and was 100% cured with synthroid...luckily Yes, perhaps your medication may need a second look. Also, what may seem obvious, be sure you aren't napping during the day which can affect your night time sleep. I know when I have a busy day, I'm really tired when I go to bed. Don't go to bed to early, and try not to fall asleep on the couch watching TV before your usual bed time.

jerseyangel Proficient

I have found this helpful--

Open Original Shared Link

I take 3 tablets about a half hour before bed.

love2travel Mentor

I feel your pain! Though I do not have Hashimoto's I have had insomnia for nearly 20 years but it has been even worse the past 3 1/2 years after an accident that has left me with severe chronic pain. The only thing that helps me after trying all there is on the market is Zopiclone, a prescription sleep aid. I have been on it for 12 years and have no dependence as I only allow myself to take it once per week. It is the only thing that guarantees me a good sleep. Fibromyalgia also causes me agonizing pain and sleep is absolutely crucial but I find it nearly impossible to get to sleep because it is so darned uncomfortable no matter what I do. Melatonin and other supplements are like candy to me but can help others.

Do not be concerned about asking your doctor about sleep aids! Sometimes you just have no choice.

sariesue Explorer

If you do go with the prescription sleep aid route make sure that you aren't alone the first time you take it. Ambien can cause hallucinations. The times that I took ambien I would hallucinate and then have a panic attack due to what I was seeing. However, I have no problems on ambien CR. If you are concerned about long term issues or the typical side effects of hypnotic sleep aids, very low doses of Seroquel are used as an off label sleep aid. It's technically a mild antipsychotic, but at subtheraputic doses it works as a sleep aid. Plus it doesn't cause dependence or the common side effects of prescription sleep aids. There is an old school antidepressant that it used as a sleep aid as well but seeing how it didn't work for me I can't remember the name.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HopefulMama23 Explorer

Thank you to everyone! JerseyAngel, I am actually studying homeopathy and i'm interested in your remedy you mentioned. Can you tell me more about how it has worked for you?

I actually took a Xanax and then an Ambian last night out of desperation and they DIDN'T WORK! I'm totally freaking out now. I hate the idea of drugs but I at least thought I had them as a last resort. Now I feel hopeless.

Can you tell me more about the serequel too?

sariesue Explorer

Seroquel is a second generation antipsychotic. In low doses it is very very sedating but as the dose gets higher it becomes less sedating. It's currently only labeled to treat psychosis, mania, and major depression. Off label uses include insomnia and GAD. It's nonhabit forming so it can be used more long term than traditional sleep aids. It does have side effects the biggest that I know of is weight gain. If you want more info I'd look it up on drugs.com or webmd.com

jerseyangel Proficient

Thank you to everyone! JerseyAngel, I am actually studying homeopathy and i'm interested in your remedy you mentioned. Can you tell me more about how it has worked for you?

First, I need to let everyone know that this remedy (Calms Forte) contains oat. I was terribly remiss to not mention that before, but honestly I'm so extremely sensitive and it hasn't affected me at all as regards Celiac symptoms that I forgot. It works very well for me--I take 3 tablets with water about 30 minutes before I go to bed and it helps me settle down and fall asleep. The amount of sleep I get has varied--4-6 hours tops.

HM23, it was suggested I try this by a professional. I have been having a lot of trouble sleeping due to anxiety, and had been using a 1/4-1/2 of a Klonopin to sleep. That was working well, but I didn't want to get addicted. I don't use it during the day due to the drowsiness, but it works great to allow me to fall asleep. My doctor prescribed Sonata but I've been afraid to try it.

Just last night I tried Hylands "Insomnia" remedy and it helped me fall asleep within about 10 minutes. I did wake up after about 4 hours, which I find happens with whatever I've tried. The "Insomnia" contains no oat or gluten, and dissolves under the tongue so I plan to keep it on my nightstand.

Luckily, the Homeopathic meds tend to work for me, as I'm so sensitive that it's very difficult for me to use most prescription meds. The Klonopin was the only thing out of many that I could tolerate.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.