Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Motivation And Inspiration!


consciousmother

Recommended Posts

consciousmother Newbie

Hi, I'm new here. I haven't had the tests yet, they are scheduled for next week, but all of my symptoms point to gluten intolerance, and possibly a wheat allergy, too. I have known for years that I was lactose intolerant and allergic to dairy.

Giving up dairy was very difficult and I admit I don't avoid it 100% (I will eat a piece of cake or something with butter on it when dining out or when at a party for example). As long as I don't go overboard and indulge in a bowl of ice cream, my symptoms (migraines, hives, stomach upset) are manageable temporarily with meds. At home, I am 100% dairy-free.

Unfortunately, my symptoms started to flare a few years ago. At first, I thought it was just that I needed to be more careful with dairy. I experimented with cutting back on soy. It wasn't until this past spring when my tummy issues started to become unmanageable that I realized something else had to be going on. We were researching celiac on my husband's behalf, but *I* was the one that had all of the symptoms!

Anyway, I have been advised to go on an elimination diet and only slowly add things back in. I know this is best for me, but it sounds like TORTURE. I have four kids, two dogs and a cat that all have special dietary needs and/or food preferences (two of my kids are vegetarian, for example). My head is splitting trying to figure out how to try to keep everyone happy and healthy given this additional restriction. And I am NOT a person with much self-control, so the idea of having food around the house that I can't eat sounds like more torture!!

I really need some kind words to help motivate me right now, and super-simple meal ideas would be pretty great too. Thanks for listening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Well, it's easier than you think. It's harder than you think.

If you're the main cook, it's easier. If they are picky, well, pick your battles.

I keep a few gluten things around like a loaf of bread, tortillas, and some instant soups and pastas. I get heevy-jeevy when they come out. Like now, my son is home sick (turned out to be allergies so he's really not) and has cooked two pots of ramen. He's 9. You can imagine the mess in my kitchen. Wheat by-products everywhere.

I'll be looking for a gluten-free version, goes without saying.

So far my guys are ok eating gluten-free pasta, and my son isn't big on bread. DH gets his fix at business lunches, dinners.

At first my son rolled his eyes at the gluten thing, but after eating gluten-free cake, ice cream, etc. hes fine at home. I let him have his fixes at school, when were out...

I tried my son on almond milk (he had dairy issues as a baby) and that was a flop. It'll be bad if he's gluten intolerant and dairy intolerant.

I just cook with whole foods. It's easy to find condiment replacements, pasta replacements. Desserts are easy - use mixes don't try baking on your own in the beginning (and I was a scratch baker). Breads are available, but taste like crap - stick with crackers. I made a loaf of bread - king arthur mix - and it was decent.

Eating out is tough. Carry gluten-free energy bars with you for emergencies. I haven't mastered eating out so I don't have a lot of advice there.

All you can do is try, if you haven't been tested get the testing done before you go gluten-free (if you can stand staying on the gluten) since going gluten-free interferes with antibody bloodwork and biopsies. Won't matter for genetic testing or stool samples.

Good luck!

pricklypear1971 Community Regular

Oh yeah, find a crutch and lean on it. Mine was Hershey's kisses - they are gluten-free. Now it's Talenti gelato and I'm winding down off that. Slowly not feeling so abused by what I can't have.

consciousmother Newbie

Thanks for your kind words. I love the idea of having a "crutch!" In fact, a list of crutches would help. Going through this has really made me have to re-think what is "healthy" and what is "not healthy."

For example, I am accustomed to thinking of desert foods like brownies as being "unhealthy" because of the sugar and fat content. But I found a recipe on a gluten-free site for black bean brownies that have a higher nutritional content than the pb&j sandwiches on store-bought wheat bread that I made daily for my kids' lunches!

My brain feels kind of broken right now, and it is nice to know that there are others who are living with these kinds of dietary restrictions and aren't going mad because of it. In fact, all of the positive stories here about people who feel *better* is really inspirational.

Sarah Alli Apprentice

My brain feels kind of broken right now, and it is nice to know that there are others who are living with these kinds of dietary restrictions and aren't going mad because of it.

Oh, I've gone mad all right. Not because of being gluten free though.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,107
    • Most Online (within 30 mins)
      7,748

    ashleynicole
    Newest Member
    ashleynicole
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wends
      Hi RMJ. I read your post. Sounds like you need a second opinion? Have you been advised by Dietitian or referred to one? There are protocols for treating patients that have ongoing celiac disease antibodies / histology. Particularly as you have nausea and pain. You probably already know about the gluten contamination elimination diet. It may be that you are super sensitive to even the allowed 20parts per million gluten in certified gluten free flours and products? An elimination of all grains for a time may be necessary? Especially oats if you currently include them? It’s worth noting that a minority of Celiacs have oat intolerance and T cell response similar to gluten (particularly carriers of high risk HLADQ2.5), and ongoing celiac damage to the gut can occur with oats. Even certified gluten free oats. If you are already super strict and careful about cross contamination, do you eat cheese or have any cow’s milk in your gluten free diet? It’s often overlooked, even by specialists and Celiac dietitians. But there are case study reports in children. There’s a study in adults showing mucosal reaction to casein in Celiacs, and quoted 50% of Celiacs react to casein similar to gliadin because of molecular mimicry. Then there was this letter to the editor following up a case that states, ”We conclude that given this novel information, pediatric, and possibly adult, celiac disease patients with suspected “refractory” celiac disease and no detectable gluten exposures, should be trialed on a combined CMP-GFD with close monitoring for disease activity resolution prior to consideration of more restrictive diets…” (Jericho H, Capone K, Verma R. Elimination of Cow’s Milk Protein and Gluten from the Diet Induces Gut Healing in “Refractory” Pediatric Celiac Patients. Ann Pediatr. 2021; 4(2): 1082.) CMP-GFD: cow’s milk protein-gluten free diet. Hope you figure it out.  
    • trents
      Welcome to the forum, @BlakeAlex! Is this the GI Reset product you are using?: https://inwellbio.com/wp-content/uploads/2023/08/GI-Reset_Info-Sheet.pdf There is a lot of weird stuff in that you could be reacting to. Personally, I would discontinue it as I doubt it's really doing you any good anyway. Getting to the point where you are truly eating gluten free consistently usually involves a significant learning curve as gluten is hidden in the food supply in many ways by manufacturers. For instance, would you ever expect to find it in soy sauce or Campbell's tomato soup? But it's there and a main ingredient. Getting rid of macro sources of gluten is relatively easy. Just cut out bread, cake and pasta. But avoiding the hidden sources and the cross contamination sources is much harder. I am including this article that might be of help to you as a new celiac in getting off to a good start:    Long-term undiagnosed celiac disease inevitable leads to nutritional deficiencies because of the damage done to the lining of the small bowel where almost all of the nutrition in our food normally is absorbed. We routinely recommend that newly diagnosed celiacs invest in some quality gluten-free vitamin and mineral supplements. And I'm talking about more than a multivitamin. We recommend a high potency B-complex, 5-10,000 IU of D3 daily, Magnesium glycinate, and zinc. I suspect your mouth and throat ulcers are nutritional deficiency related. Costco is a good place to get good quality gluten-free vitamin and mineral supplement products at a reasonable price. Are you on medications? May we ask your relative age?  
    • BlakeAlex
      Hello, I was recently diagnose with Celiac Disease and without realizing, I had every symptom on the list. Now I am moving as fast as I can to a total recovery. I thought I was doing well but I notice my ulcers on my tongue and throat and cough are starting to come back again.  Has anyone experience these symptoms? Also, I am incorporating GI Reset powder for a jump start to recovery.  Thanks in advance, Blake     
    • trents
      No. There is no damage done to the gut lining with NCGS.
    • MagsM
      Hi Trents, Thanks for the feedback. Yes, I do have concerns about NCGS. Would this show up if I did the endoscopy testing?
×
×
  • Create New...