Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Did I Missed?


dreamfish

Recommended Posts

dreamfish Newbie

Hi, I've been on gluten-free diet for 1 month now. had very bad blister all over my back, butt, legs for 2 months; 2 weeks after I started gluten-free diet, it slowly healed. I would say that now, I don't have any open sores just scars from the lesion.

I've been pretty careful with gluten-free + Iodine free with food and products. Last night, went to a Chinese restaurant, brought my own soy sauce and iodine free salt for them to cook my meal. This morning, I found a huge blister on my leg where one of the old lesion use to be. as you can see on the picture, the skin over the blister is thicker so it didn't break yet. but it is still filled with fluid (i can feel it) and it's very itchy. My question is "what did I missed?" is it just because I went to a restaurant? or maybe there're still gluten left in my body and just acting up. I know this form of blister is already much better than the ones I've got before, small and easily breaks/spread. I'm just very frustrated. any thought/comment would be greatly appreciated. Thanks. -Megan

DSC04883.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Asian cuisine is always risky. I ate an Asian-fusion restaurant that has a celiac menu and had some hand swelling the next day.

It's just a tough cuisine. Good news is you can make basic dishes safely at home. Maybe wait til you've been gluten-free longer before trying again, or try a different restaurant.

rosetapper23 Explorer

I NEVER eat in a Chinese or Japanese restaurant (except PF Chang's), because I always get sick afterwards. I assume it's because they're cooking the food in a pan that had regular soy sauce in it earlier or the grill wasn't cleaned. Oftentimes, there's a language problem, and I assume that they truly don't understand how sensitive a person with celiac can be.

cyberprof Enthusiast

I NEVER eat in a Chinese or Japanese restaurant (except PF Chang's), because I always get sick afterwards. I assume it's because they're cooking the food in a pan that had regular soy sauce in it earlier or the grill wasn't cleaned. Oftentimes, there's a language problem, and I assume that they truly don't understand how sensitive a person with celiac can be.

Same here. Exactly.

dreamfish Newbie

Thanks for the replies. Since the beginning of my gluten-free diet, I've always thought that Asian restaurant would be safer choice for me, since there's always plain rice and stir fry vegetables. I agree that language is a huge problem. I had to explain to the waitress many time why I had to bring my own soy sauce and salt. also have a friend who is Cantonese to translate for me, so I thought I was safe. oh well.

My lesion this time is different. the bubble just store a massive amount of fluid inside, without bursting. does anyone knows why or what to do? it's been 2 days.

Megan

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      4

      Manitol and mri

    2. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      4

      Manitol and mri

    3. - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.

    4. - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics

    5. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
    • Scott Adams
      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
    • Scott Adams
      What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in revolt. The severe pain, neuropathy, muscle and jaw tension, and intense anxiety and confusion are all potential manifestations of this body-wide inflammatory and autoimmune response. It's a well-documented phenomenon that a celiac attack can provoke a significant neurological and psychological component, including "brain fog," disorientation, and panic-level anxiety. While your first step should always be to meticulously re-check all foods, medications, and even cross-contamination sources, it's also possible that a previously safe product has changed its formula or that you encountered a hidden source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.