Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Miserable Waiting For Test

smvillers

Recommended Posts

smvillers Newbie
smvillers
Posted

I am being tested for celiac next week Tuesday and I am absolutely MISERABLE on my gluten filled diet. Before scheduling the test I was about 95% gluten free and feeling OK--going back to gluten full time is horrible. Pain, bloating, D, heartburn, tiredness, brain fog, anxiety, depression, can't sleep--I've got it all. I know you all have been there, I really just need to vent. In my brain right now, it doesn't even feel like I'm going to make it until Tuesday. I just burst into tears at my desk at work thinking about dealing with this for several more days. I was dealing with a lot of symptoms with over the counter meds and supplements and I'm not supposed to take any the week leading up to the test and it is making things even worse. My brain is just so messed up right now.

My worst fear is that because I was mostly gluten free for so long that the test won't show that I have celiac. I know I'm giving up gluten after Tuesday regardless, but I would really like the diagnosis. Is it weird to hope for a disease?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

were you full on gluten for at least 3 months before this test? If not it could give inaccurate results.

Not weird at all.

smvillers Newbie
smvillers
Posted
  • Author

were you full on gluten for at least 3 months before this test? If not it could give inaccurate results.

No, I have not been full on gluten for 3 months. I've been eating gluten once or twice a week for about the last 6 months (some weeks more, some weeks less) and am doing two weeks of full gluten for the test. I know I may get a false negative but there after a week and a half of full gluten, I know there is no WAY I could do it for 3 months. Oh well.

ravenwoodglass Mentor
ravenwoodglass
Posted

It sounds like your body is giving you the answer no matter what the tests results are. You may not have been back on full gluten long enough for a positive on the tests but it sounds like you are going to go back to gluten free when the tests are done. Do be sure to be strict about it when all testing is done. As you are finding out after being gluten free or low gluten the symptoms can be worse. I hope you recover quickly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,612
    • Most Online (within 30 mins)
      7,748
    Heather P
    Newest Member
    Heather P
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.