Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many Have Gi Symptoms With Dh

Flasaltwater

Recommended Posts

Flasaltwater Apprentice
Flasaltwater
Posted

How many have both? I have both. I have all the symptoms Anemia, Diarhhea, Gas, Bloating, Lactose intolerance, look at my signature. I also have the terrible rash. I was reading that its rare to have GI symptoms and DH am I just weird? or is this more common now or maybe I have something different. How many of you have both?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted

I have the exact same as you. I have both.

Flasaltwater Apprentice
Flasaltwater
Posted
  • Author

I have the exact same as you. I have both.

Did you get a positive diagnosis? I'm scared, I go to the derm Monday to get Biopsy. I'm worried im going to hit another brick wall and not get a proper diagnosis with what ever it is I have. I've pretty much ruled out most other auto imune diseases for now as this is the one that I carry most of the symptoms for.

Thanks for posting

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Over the years I've had a long list of symptoms. It seems like they move around from time to time? Most recently my symptoms were GI, but at the same time I've had what I thought were bug bites or something on my back, arms, and legs. They're just several in each area and itch like mad! They don't heal because I scratch them until they open. They don't look like the pics blisters I've seen that are labeled DH.

I hope you get the answers you're looking for. Not knowing is maddening.

GFreeMO Proficient
GFreeMO
Posted

Did you get a positive diagnosis? I'm scared, I go to the derm Monday to get Biopsy. I'm worried im going to hit another brick wall and not get a proper diagnosis with what ever it is I have. I've pretty much ruled out most other auto imune diseases for now as this is the one that I carry most of the symptoms for.

Thanks for posting

I had DH on my knees and chest for several years before my GI issues. Now I have both when glutened. The DH is very minor compared to what it use to be though.

eatmeat4good Enthusiast
eatmeat4good
Posted

I have gastrointestinal problems and DH in addition to neurological problems when glutened. The neurological is brain fog, anxiety, depression in the form of despair, and sometimes uncoordination and balance issues. DH breaks out first then my stomach and guts go rolling and then I feel like a zombie stoned on gluten...just from trace gluten. god...don't know how I ever ate it every day.

ravenwoodglass Mentor
ravenwoodglass
Posted

I had DH for literally years before my GI issues were anything that wouldn't be considered normal for a kid. I did however have severe joint and muscle pain but doctors attributed it to congenital leg and foot defects. I had surgery but it didn't relieve the pain but did allow me to walk more normally, at least until ataxia set in. I did have C a lot as a child from a young age but it wasn't until after I had my children that the more typical D set in.

Celiac can effect many organs and presentation can differ for people.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I had stomach issues 15+ years ago. Didn't get DH until 2 years ago. now I don't have stomach issues - but do have vitamin/mineral deficiencies so I know it's affected. I get neurological/depression/anxiety symptoms in addition to DH and flu-like symptoms.

Lately I've been having some major gas - which is odd because it wasn't that bad before going gluten-free. I'm wondering if it's all the vitamins... Because it happens before I eat

anything in the morning.

If it's dairy that's just too bad. I'm not giving up the tiny bit I'm eating. Can't pinpoint the gas otherwise.

ravenwoodglass Mentor
ravenwoodglass
Posted

Lately I've been having some major gas - which is odd because it wasn't that bad before going gluten-free. I'm wondering if it's all the vitamins... Because it happens before I eat

anything in the morning.

Have you tried taking your vitamins with a meal? That might help and some of them are better absorbed when you take them with food.

pricklypear1971 Community Regular
pricklypear1971
Posted

I do take them with a meal - except the B12 that is chewable. I take it a little later.

Maybe it's just a stage. I don't know..,sometimes it isn't worth worrying about....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      @Trish G, I like dates, they have lots if fiber as well. But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small...
    2. knitty kitty
      - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines. Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured...
    3. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement. Thanks again
    4. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      If you were wondering why milk protein bothers you with Celiac Disease. Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    5. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      My TMJ ended when I lost a middle lower molar. I had an amalgam filling from youth (1960s) that failed and the tooth broke. I had what was left pulled and did not bother to replace it. My bite shifted and the TMJ went away. I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,344
    • Most Online (within 30 mins)
      7,748
    GFBB95
    Newest Member
    GFBB95
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Fiber Supplement

      By knitty kitty · Posted

      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.