Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was I Glutened?

desperate

By desperate
in Coping with Celiac Disease

Recommended Posts

desperate Rookie
desperate
Posted

I thought it was safe to eat at an Indian restaurant but I think I got glutened from the Lentil Papadam. Are they usually fried? I am thinking if they are then there is a chance I was glutened by cross contamination. Today I have brain fog, blurry vision, difficulty concentrating, headache and pressure behind eyes. I haven't had this since going gluten free three weeks ago.

I also ate basmati rice, chicken makhni, pindo chole, and a vegetable dish called sabz bahar kadai. I am pretty sure all of those are gluten free.

I am very upset. I haven't felt this way in a while and am trying to figure out if I am gluten intolerant. Blood tests normal, some flattening of villi seen during endo that was biopsied and dr said was not celiac. I am still supicious.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Did the restaurant have a gluten free menu? Restaurants can be difficult for us if they don't. It would be hard to pinpoint what got you without knowing the ingredients of what you had. We can also tend to get more sensitive the longer we are gluten free and you may end up with D tommorrow or the next day as it can take a few days for that to set in.

Marilyn R Community Regular
Marilyn R
Posted

I've never had a problem at my local Indian restaurant, except that it's 30 miles away! I microwave Papadam, not sure what the restaurant does. And I developed an intolerance to legumes about 8 months after going gluten-free, so that could have something to do with it. Or not. :(

cait Apprentice
cait
Posted

Indian food is generally pretty safe, but I've been glutened by it. It was with great sadness that I discovered that malai kofta is generally not gluten free. Sigh.

I would guess that the papadum did it. I think they are usually fried, and would probably be CCed by samosas or other fried things. I'm sorry you're feeling lousy. I hope it passes quickly.

eatmeat4good Enthusiast
eatmeat4good
Posted

Just think of it...in the rush to keep the buffet filled they grab Naan bread and fill the basket then they grab your Lentil Papadum and fill the basket and rush it out to the buffet....it only takes a molecule...

I loved eating in Indian Restaurants, but I know that even when they wear gloves they are touching gluten and then touching gluten free food not thinking a thing about it except keeping their hands off the food. It's extremely hard to eat where they serve gluten food at all.

AVR1962 Collaborator
AVR1962
Posted

Goodness, sorry to hear! I too love Indian food, miss nan. I personally have wondered if there is any flour used to thicken their sauces.

Curious, how long will your symptoms last normally? I have the same symptoms and am off-balance and become depressed which will last 2-3 weeks.

I am not a beer drinker and never have been but 2 weeks ago I consumed about a 1/3 cup of beer which was in something else and while I am finally feeling better, I'm still not completely over it yet.

desperate Rookie
desperate
Posted
  • Author

Goodness, sorry to hear! I too love Indian food, miss nan. I personally have wondered if there is any flour used to thicken their sauces.

Curious, how long will your symptoms last normally? I have the same symptoms and am off-balance and become depressed which will last 2-3 weeks.

I am not a beer drinker and never have been but 2 weeks ago I consumed about a 1/3 cup of beer which was in something else and while I am finally feeling better, I'm still not completely over it yet.

My symptoms take about 2 weeks to go away. I am sick to my stomach about it. I feel like this is such a set back. I was feeling so good too.

No more Indian for me:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Papadam can be fried. I'm sorry to hear you're sick.

I wouldn't write off the Indian food entirely. Just ask the restaurant how they prepare the papadam and avoid them if they're put in a fryer with samosas and other breaded foods. I bet that's what got you.

Skylark Collaborator
Skylark
Posted

Goodness, sorry to hear! I too love Indian food, miss nan. I personally have wondered if there is any flour used to thicken their sauces.

Indian sauces are almost never thickened with flour and tend to be naturally gluten-free. It's a great ethnic food for us celiacs. Meat curries are often thickened with bhuna, onion paste cooked in ghee with ginger, garlic, and the spice masala. The onions dissolve with lengthy simmering and thicken the sauce. With bean dishes, they mash some of the beans against the side of the pot to thicken. Dishes like daal are cooked until some of the lentils fall apart and the dish gets thick. Sometimes yogurt, cream, or coconut milk are added. It's usually pretty easy to say you have a "wheat allergy" at an Indian restaurant and make sure there is no flour in the curries.

cyberprof Enthusiast
cyberprof
Posted

I agree with Skylark - I've eaten at Indian restaurants about 20 times and have never been badly glutened. Minor yes, but no big D or something that major. My favorite restaurant tells me that flour is only in the naan and samosa but I'm still careful.

I eat tikka masala, jalfrazi, coconut curry. Rice. Sometimes pakoras, which are made with garbanzo bean flour usually.

I've never tried the papadum and I try not to get too tricky.

In the "baking and cooking" forum here, I posted a recipe for indian crepes that I make at home as naan replacement. There is also an online recipe for gluten-free naan that I make at home. Open Original Shared Link

Don't give up!

eatmeat4good Enthusiast
eatmeat4good
Posted

Oh my god that looks delicious!

cyberprof Enthusiast
cyberprof
Posted

Oh my god that looks delicious!

It is good!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    4. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,260
    • Most Online (within 30 mins)
      7,748
    sbr
    Newest Member
    sbr
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.