Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Was Your First gluten-free Week Like?


futuredvm24

Recommended Posts

futuredvm24 Rookie

I have been gluten-free for a week now. Some days I feel great, I almost forgot that I could feel this good! Other days not so much. I'm not sure if I'm accidentally glutening myself or if this is just a normal process?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I don't think I even noticed a difference the first week! By the end of two I wasn't having stomach-aches and diarrhea any more.

pricklypear1971 Community Regular

The first week was just weird. I remember having raging emotions - like PMS on steroids.

Week 2 the brain fog lifted and I had stamina. That's when I knew I was on to something.

AVR1962 Collaborator

A week was not enough for me to notice a difference. My stomach was a mess. It was at the 3 week point I started noticing change for the good.

kitgordon Explorer

My GI issues stopped within the first couple of days, with a mild relapse or two in the first 2 weeks. However, I went gluten free before I was as ill as some people here. A lot of my family were already diagnosed, so when I began seeing semi-frequent symptoms, I knew what it was, and what to do. As long as you are being very careful, I think it's probably just normal recovery.

alex11602 Collaborator

I actually felt great after two days with a few bad days mixed in over the next few months, but my youngest daughter didn't feel better until we figured out the other foods that she couldn't have. My oldest daughter doesn't have GI symptoms so we didn't notice a change until we gave her potatoes one night and she could eat them without being sick (she always had a major texture thing, she would gag if something gooey, wet or slimy touched her hands or mouth) and we figured out that my husband had problems the same way...he noticed after about a week that he hadn't been as gassy, but it came back when he had a sandwich at work.

mommyto2kids Collaborator

I had dreams that I was eating angel food cake and then I'd realize I could never eat it again. I also got super freaked out and depressed that so much of Costco was done for me. My son kep asking me when I could be done with this. It was hard, but we have all gotten used to it. It is better than being sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

My son asked me "when will we be done with the gluten-free thing?", too.

Yeah, it's tough.

I think it would be tougher if I hadn't already weeded out a lot of crappy foods, prior. Don't get me wrong - we ate plenty of junk and probably still do. But going gluten-free is hard-core when you can't "slip" and be ok.

futuredvm24 Rookie

I know it will take some time before I really start to feel better. It's just great to know that there are lots of people who know what I'm going through. I'm having my good and bad days but the bad days seem worse than the bad months I was having. Maybe it's because I forgot what it felt like to not have problems. Luckily, I had cut out a lot of processed foods beforehand so going gluten-free hasn't been too hard but it's definitely something to get used to!

T.H. Community Regular

First 2 weeks were really bad, actually. On day two, I started having nausea, headaches, and dizziness all the time. Could barely think, sick all the time, and it just kept getting worse.

Turns out that I have allergies to potatoes, sugarcane, dairy, and eggs - all of which I don't eat much of normally, and all of which I was eating a lot more of in my gluten-free food, so it was making me sick. Really crazy.

The entire experience made me much more careful with my daughter (diagnosed 2 weeks after me), trying to remember that familiar 'looking' food didn't always mean familiar ingredients or familiar tolerance to those ingredients, you know?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,675
    • Most Online (within 30 mins)
      7,748

    Kimmber
    Newest Member
    Kimmber
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.