Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel So, So Sick :(

Twinklestars

By Twinklestars
in Coping with Celiac Disease

Recommended Posts

Twinklestars Contributor
Twinklestars
Posted
  • Author

Yum Cougie! I might just do that with some apples tonight for supper :)

In other news, I think I've glutened myself :ph34r: It really annoys me too, because I ended up making a big pot of yummy chicken and vegetable soup tonight - nice and gluten free. Then I made tuna mornay for hubby and the kids. Did I use gluten-free flour for the sauce? No! I didn't even think about it because I wasn't eating it.

I put a couple of spoonfuls in the pan and Poof! A big cloud of gluteny dust. I think I ingested some because almost immediately I got a pain in my chest like there was a big lump in the middle of my ribcage. I felt totally fine before. A couple of hours later now and I've got little crampy pains in my stomach :( So yeah, less than a full week into my new diet and I'm glutened already (I think). And I didn't even eat anything!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cougie23 Explorer
cougie23
Posted

Totaly it was the dust.."GLUTENED!!!!" :blink: yeah and If that was canned tuna(?) I hear theres gluten in that! though I don't really understand why!?...but that tuna oil can really stick to your hands or cloths...(even after washing!!!!)(it's used as a binder...go figure!) :blink::D

sa1937 Community Regular
sa1937
Posted

Totaly it was the dust.."GLUTENED!!!!" :blink: yeah and If that was canned tuna(?) I hear theres gluten in that! though I don't really understand why!?...but that tuna oil can really stick to your hands or cloths...(even after washing!!!!)(it's used as a binder...go figure!) :blink::D

I highly doubt there's gluten in canned tuna...FWIW, many times it does contain soy (either soy or soybean oil), which some people cannot tolerate.

surfer Explorer
surfer
Posted

hi you could have a problem with Niteshades....raw tomatoes, potatoes, peppers and eggplant...google this

good luck

cougie23 Explorer
cougie23
Posted

I highly doubt there's gluten in canned tuna...for FWIW, many times it does contain soy (either soy or soybean oil), which some people cannot tolerate.

I don't remember where I read that recently...it was on one of the gluten do's and don'ts lists I came across while googleing....but It was included under the catagory of "prossesed"meats....I think to keep it in one lump better? I can't remember exactly...but I remember thinking....REALLY....WAS THIS REALLY NESSASARY!!!!!?????

WHAT'S NEXT????!!!! Gluten in my bottled water? :blink:<_< who's brillent idea was it to gluten everything up anyways!!!!???? :angry::blink:

If I can find it again...I'll tell you which site it was on...but I need to find it again. :D

cougie23 Explorer
cougie23
Posted

I highly doubt there's gluten in canned tuna...FWIW, many times it does contain soy (either soy or soybean oil), which some people cannot tolerate.

You are so right!!!

I was defineatly miss informed!!!

I couldn't find the article I read...(sometimes I'll save the more informitive sites in my computerfolder under "health"...but when I googled CANNED TUNA ....besides the occasional soy that you mentioned ( and one canadian brand that was flavored with teriyaki) it seemed a very gluten free enviornment! :D

My mistake :rolleyes:

Thankyou for the correction...I like tuna...but it does give me a bit of a tummy ache...probably the sandwich part!!!LOL

I miss 12 grain wheat bread!!! :(:P

Twinklestars Contributor
Twinklestars
Posted
  • Author

Cougie your posts always make me smile! :D

surfer, I don't seem to have a problem with nightshades at this point, but it's something I'll be watchful of as I go along.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kami42 Newbie
kami42
Posted

I just made this same mistake. I just ate some chocolate and feel horrible!!! Also, I was thinking that because Hershey;s is gluten free that Godiva would be too (Big Mistake) I am so nauseous now ughh! This is a very hard transition, I agree!

Twinklestars Contributor
Twinklestars
Posted
  • Author

It is hard. Especially when you have to be conscious of so many things! I imagine over time it will become almost second nature though :)

I am paying for my glutening this morning with really bad joint pain, nausea and stomach trouble :(

Twinklestars Contributor
Twinklestars
Posted
  • Author

Well my stomach has settled down to only mild cramping, but I feel wiped out! My joints are still niggling enough to make me uncomfortable as well. But the worst thing is an increase in my anxiety. I have suffered very badly with anxiety for years, and I noticed it settling down (slightly) in the last couple of days. But now I feel anxious and twitchy over nothing. Can I really react like this to gluten I didn't actually eat? Well, I suppose I ate some, but it was flour, so wasn't much!

cougie23 Explorer
cougie23
Posted

I just made this same mistake. I just ate some chocolate and feel horrible!!! Also, I was thinking that because Hershey;s is gluten free that Godiva would be too (Big Mistake) I am so nauseous now ughh! This is a very hard transition, I agree!

Trader joes has a lot of gluten free chocolate...I like/have to eat dark chocolate because I'm casin (milk) intolerant as well......Hershey upsets my TUMMY!!! too graulated!!! :blink::P Don't like the bitter stuff( really reallydark chocolate).. but they make one thats sweeter and comes in a little 3 pack...I send them in my 12 yr.old sons lunch!!! he was very popular with the girls in grade school I can assure you!!! LOL :D

Do you or twinkle star...yes I see you there(!!!) have trader joes where you live????

I'm in Calif.....I shop glutenfree (try to) at Trader joes and wholefoods....wonderful places...not like your average chain stores. B)

cougie23 Explorer
cougie23
Posted

It is hard. Especially when you have to be conscious of so many things! I imagine over time it will become almost second nature though :)

I am paying for my glutening this morning with really bad joint pain, nausea and stomach trouble :(

Meeeeee tooooo!!!!!! Guilty as charged (and definatly paying for it!!!!)

I think it was the PEPSI......(carmel coloring...can't think of anything else...cept alot of cross comtamination....) shhhhhh....but don't telll any one... (its my last vice)...!!!! :blink::unsure::(:rolleyes:

cougie23 Explorer
cougie23
Posted

Cougie your posts always make me smile! :D

surfer, I don't seem to have a problem with nightshades at this point, but it's something I'll be watchful of as I go along.

GOOD :D ...then I'm doing something right !!!!! LOL :P

psawyer Proficient
psawyer
Posted

Cougie,

Pepsi is gluten-free. Caramel color is gluten-free. We can't seem to shake off the myth about caramel color. In the US and Canada, it is made from corn. Even if it was made from wheat, as is the case in some European sources, it is so highly processed that there is no detectable gluten left in the coloring. It then becomes a very small part of the final product.

Cola products contain caffeine and phosphoric acid, both of which can irritate the digestive system.

Twinklestars Contributor
Twinklestars
Posted
  • Author

Thanks psawyer for the info. I don't drink cola drinks but it's always good to add info to everything I'm learning :)

Cougie, we don't have trader joes here. We are lucky to have lots of places that stock fresh whole foods though, and lots of local markets.

cougie23 Explorer
cougie23
Posted

Cougie,

Pepsi is gluten-free. Caramel color is gluten-free. We can't seem to shake off the myth about caramel color. In the US and Canada, it is made from corn. Even if it was made from wheat, as is the case in some European sources, it is so highly processed that there is no detectable gluten left in the coloring. It then becomes a very small part of the final product.

Cola products contain caffeine and phosphoric acid, both of which can irritate the digestive system.

Yeahhhhh!!! THANKYOU Soooooo much for clearing that up! :lol: I LOVE pepsi !!! even though I know i'ts bad for me...I've cut back immensly...rarely drink it at all now!!(my tummy doesn't like it!)

But then again...my tummy doesn't like anything lately!( throwing up more often ...again...comes and goes...) even when I'm eating the gluten free /casein free stuff...tummy is'nt happy...traces of blood yesterday..but it might have been from my throat!Also signs of animia...cut myself...blood very light..odd color..Bled profusly took hours to stop..the cut was'nt that bad..brusing way to easily also ( I have a paw print shaped bruise were my cat pushed down on my leg !!!) !!! Sorry to go off on a tangent...again...focus issues you know..LOL. :rolleyes::P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    2. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    3. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    4. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    5. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748
    Heather8280
    Newest Member
    Heather8280
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.