Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Skin Thing


Nen

Recommended Posts

Nen Explorer

I just figured I'd post this and give it a shot.

Back in January I had this really weird thing happen to me. I just all of a sudden broke out in a weird...well it wasn't a rash, but my skin looked all over very "speckled" or "mottled" looking. It wasn't a raised rash, but actually "in" the skin, red and white. It freaked me out, I noticed it when getting ready for a bath, and it was all over me. I also had a "pinprick" look on my lower legs, like someone had stuck a pin over and over in little dots on my skin.

I did go to the doctor, and he didn't seem concerned or anything, he just scolded me to wear warm clothes (I already do). It took about a week for this odd skin thing to go away, as it was going away it felt like I had been sunburned (tho I hadn't). Then the joint pain started. I felt like a crippled old person, with my joints all over hurting pretty good. My fingers actually swelled up from it.

Since this happened I've had much more mild joint pains on and off, but the skin thing hasn't reoccurred. I do have Raynauds, have since I was a kid (so does my brother and dad), but I never had anything like this. I still have no clue what it was, and just wondered if anyone else experienced anything remotely like this. The doc seemed more like "whatever". :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Ask to be tested for Fifths Disease. If you've recently had it, your antibody count will be very high.

It's BS if they say only kids get it.

Aside from that, sounds like an allergic reaction except for the achey part. Many autoimmune issues are mistaken as allergies/viruses.

spruemylife Newbie

My mom has the pin dot thing, and she was diagnosed with celiac. It going away now that she's on a strict diet.

rosetapper23 Explorer

By any chance, did you have a sore throat beforehand? I only ask because it sounds a bit like Rheumatic Fever. Your skin can be affected as well as your joints. I know--I've had it twice.

Nen Explorer

I don't recall having a sore throat, BUT, DH and I both had strep throat earlier the previous year (summertime). We were both treated with antibiotics, I was treated twice with them because he caught it and I didn't want to get it again.

Interesting Spruemylife about your mom.

I did have a blood test that day I went in, and the only thing that was slightly off was my white cell count was lower.

mommida Enthusiast

I think my son is just getting over fifth's disease. His rash was mainly on his trunk. It can take 6 weeks to get over and by the time the rash shows up you shouldn't be contagious.

Scarlett fever?

ITP? Idiopathic Thrombosis Purpuria (might have misspelled that)

pricklypear1971 Community Regular

I don't recall having a sore throat, BUT, DH and I both had strep throat earlier the previous year (summertime). We were both treated with antibiotics, I was treated twice with them because he caught it and I didn't want to get it again.

Interesting Spruemylife about your mom.

I did have a blood test that day I went in, and the only thing

that was slightly off was my white cell count was lower.

They don't run the test routinely. And most gp's don't recognize Fifth's/Parvo B19. They sent me to a Rheumy when I got it. He recognized it. It's VERY contagious. In adultsit can cause nasty and long-term misery.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nen Explorer

Interesting, that sounds about exactly like what I went through, except the slapped cheek look. So it sounds like it is just a one time thing that happens then goes away, from sites I have been reading.

pricklypear1971 Community Regular

Interesting, that sounds about exactly like what I went through, except the slapped cheek look. So it sounds like it is just a one time thing that happens then goes away, from sites I have been reading.

Well, in kids it goes away.

In adults it takes longer.

In women even longer, sometimes.

Hopefully it goes away soon but don't be surprised if you have some changes - eyesight, metabolism, etc. And if you do, be vigilant about reporting to your doc and investigate autoimmune issues.

Februaryrich Rookie

I get really weird,flaky,itchy and red skin on top on both of my feet whenever I get glutened. I just put some skin lotion just to make it look better and it goes away in a week

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.