Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Skin Thing


Nen

Recommended Posts

Nen Explorer

I just figured I'd post this and give it a shot.

Back in January I had this really weird thing happen to me. I just all of a sudden broke out in a weird...well it wasn't a rash, but my skin looked all over very "speckled" or "mottled" looking. It wasn't a raised rash, but actually "in" the skin, red and white. It freaked me out, I noticed it when getting ready for a bath, and it was all over me. I also had a "pinprick" look on my lower legs, like someone had stuck a pin over and over in little dots on my skin.

I did go to the doctor, and he didn't seem concerned or anything, he just scolded me to wear warm clothes (I already do). It took about a week for this odd skin thing to go away, as it was going away it felt like I had been sunburned (tho I hadn't). Then the joint pain started. I felt like a crippled old person, with my joints all over hurting pretty good. My fingers actually swelled up from it.

Since this happened I've had much more mild joint pains on and off, but the skin thing hasn't reoccurred. I do have Raynauds, have since I was a kid (so does my brother and dad), but I never had anything like this. I still have no clue what it was, and just wondered if anyone else experienced anything remotely like this. The doc seemed more like "whatever". :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Ask to be tested for Fifths Disease. If you've recently had it, your antibody count will be very high.

It's BS if they say only kids get it.

Aside from that, sounds like an allergic reaction except for the achey part. Many autoimmune issues are mistaken as allergies/viruses.

spruemylife Newbie

My mom has the pin dot thing, and she was diagnosed with celiac. It going away now that she's on a strict diet.

rosetapper23 Explorer

By any chance, did you have a sore throat beforehand? I only ask because it sounds a bit like Rheumatic Fever. Your skin can be affected as well as your joints. I know--I've had it twice.

Nen Explorer

I don't recall having a sore throat, BUT, DH and I both had strep throat earlier the previous year (summertime). We were both treated with antibiotics, I was treated twice with them because he caught it and I didn't want to get it again.

Interesting Spruemylife about your mom.

I did have a blood test that day I went in, and the only thing that was slightly off was my white cell count was lower.

mommida Enthusiast

I think my son is just getting over fifth's disease. His rash was mainly on his trunk. It can take 6 weeks to get over and by the time the rash shows up you shouldn't be contagious.

Scarlett fever?

ITP? Idiopathic Thrombosis Purpuria (might have misspelled that)

pricklypear1971 Community Regular

I don't recall having a sore throat, BUT, DH and I both had strep throat earlier the previous year (summertime). We were both treated with antibiotics, I was treated twice with them because he caught it and I didn't want to get it again.

Interesting Spruemylife about your mom.

I did have a blood test that day I went in, and the only thing

that was slightly off was my white cell count was lower.

They don't run the test routinely. And most gp's don't recognize Fifth's/Parvo B19. They sent me to a Rheumy when I got it. He recognized it. It's VERY contagious. In adultsit can cause nasty and long-term misery.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nen Explorer

Interesting, that sounds about exactly like what I went through, except the slapped cheek look. So it sounds like it is just a one time thing that happens then goes away, from sites I have been reading.

pricklypear1971 Community Regular

Interesting, that sounds about exactly like what I went through, except the slapped cheek look. So it sounds like it is just a one time thing that happens then goes away, from sites I have been reading.

Well, in kids it goes away.

In adults it takes longer.

In women even longer, sometimes.

Hopefully it goes away soon but don't be surprised if you have some changes - eyesight, metabolism, etc. And if you do, be vigilant about reporting to your doc and investigate autoimmune issues.

Februaryrich Rookie

I get really weird,flaky,itchy and red skin on top on both of my feet whenever I get glutened. I just put some skin lotion just to make it look better and it goes away in a week

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      5

      Manitol and mri

    2. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      5

      Manitol and mri

    3. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      5

      Manitol and mri

    4. - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.

    5. - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
    • Scott Adams
      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.