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How Long After Gluten Before Reaction?

Staceyshoe

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Staceyshoe Apprentice
Staceyshoe
Posted

My oldest ds just went gluten-free for 10 weeks and started back on gluten yesterday. He was fine yesterday, but having diarrhea today (about 24 hours after gluten exposure). Does this sound like a gluten reaction? I was expecting a quicker reaction if gluten was the problem, but I don't really know how quickly someone with celiac might react to gluten either.

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Skylark Collaborator
Skylark
Posted

It's taken me as long as three days to have my anxiety reaction to gluten, and it usually takes at least six hours for my GI effects to appear. 24 hours is well within the realm of normal.

JoshB Apprentice
JoshB
Posted

Used to take me about a day. Now it seems to be ~3 hours.

Twinklestars Contributor
Twinklestars
Posted

A reaction to gluten depends on the individual. I notice a reaction as soon as a couple of minutes of being exposed but can still feel the effects of the glutening a couple of days later. I'm newly gluten free though, so I've got no idea if I'm continually glutening myself without realizing, I'm still learning about it all.

Your son's reaction seems fairly typical from what I've read. My doctors are still finding out whether I have an allergy to wheat as well as an intolerance, so my instant reaction could be more allergy related.

Staceyshoe Apprentice
Staceyshoe
Posted
  • Author

Thank you for your responses. My biggest worry was not having a clear gluten-related reaction and still feeling like we don't know for sure. We have a pretty clear reaction. Ds has had diarrhea all afternoon, barely making it to the bathroom at times. He's never had anything remotely like this before, so I'm pretty sure it's the gluten.

cougie23 Explorer
cougie23
Posted

One member lost her brother when he was 15 to celiacs...and a perant I beleive...people just don't realize!

Thank you for your responses. My biggest worry was not having a clear gluten-related reaction and still feeling like we don't know for sure. We have a pretty clear reaction. Ds has had diarrhea all afternoon, barely making it to the bathroom at times. He's never had anything remotely like this before, so I'm pretty sure it's the gluten.

Not to be harsh...but WHY would anyone with Celiacs PURPOSELY POISON THEMSELVES or why would you allow it!(if hes a minor...you weren't clear on that)

ITS POISON!!! :blink::blink::blink::angry::huh:

Take it from me and all those of us who were unkowingly poisoned from an early age and now have Really BAD nerological side affects...we'd have given ANYTHING to have been diagnosed EARLY..BEFORE the LONG TERM DAMAGE THAT DOES"NT SHOW UP TILL YOUR OLDER...BELEIVE ME!!!!

WTF...YOUR HIS MOM!!! sorry to be harsh...but THIS IS REALLY IMPORTANT....MAYBE EVEN LIFE CHANGING!!!

If Someone had even THOUGHT to test me for food alergies...let alone GLUTEN...MY life definatly would be different!!! It may olnly be diarrea now...but later if not checked...who knows..are you willing to take that chance...hes your BABY!!! :blink::D

One of the members lost her brother at the age of 15 to celiacs...and a parent too I think...but you get my point! :huh:

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

One member lost her brother when he was 15 to celiacs...and a perant I beleive...people just don't realize!

Not to be harsh...but WHY would anyone with Celiacs PURPOSELY POISON THEMSELVES or why would you allow it!(if hes a minor...you weren't clear on that)

ITS POISON!!! :blink::blink::blink::angry::huh:

Take it from me and all those of us who were unkowingly poisoned from an early age and now have Really BAD nerological side affects...we'd have given ANYTHING to have been diagnosed EARLY..BEFORE the LONG TERM DAMAGE THAT DOES"NT SHOW UP TILL YOUR OLDER...BELEIVE ME!!!!

WTF...YOUR HIS MOM!!! sorry to be harsh...but THIS IS REALLY IMPORTANT....MAYBE EVEN LIFE CHANGING!!!

If Someone had even THOUGHT to test me for food alergies...let alone GLUTEN...MY life definatly would be different!!! It may olnly be diarrea now...but later if not checked...who knows..are you willing to take that chance...hes your BABY!!! :blink::D

One of the members lost her brother at the age of 15 to celiacs...and a parent too I think...but you get my point! :huh:

Calm down! Sounds like they didn't have the positve tests to prove he has celiac so they were testing it via dietary response. Lots of people here have to do that when they are trying to figure things out. I'm sure they plan to keep him gluten-free for good now that he has a clear reaction. No need to accuse people of poisioning their kids. ETA: This is the PRE-diagnosis forum. And based on her siggy her son is 5 with negative tests. Dietary response and positive genes is all some people have to get a diagnosis.

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GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Staceyshoe: It does sound like a very clear reaction. My reactions take anywhere from 24 to 48 hours to manifest themselves so his delayed reaction is normal as others said.

cougie23 Explorer
cougie23
Posted

Calm down! Sounds like they didn't have the positve tests to prove he has celiac so they were testing it via dietary response. Lots of people here have to do that when they are trying to figure things out. I'm sure they plan to keep him gluten-free for good now that he has a clear reaction. No need to accuse people of poisioning their kids. ETA: This is the PRE-diagnosis forum. And based on her siggy her son is 5 with negative tests. Dietary response and positive genes is all some people have to get a diagnosis.

SOOOOOORRRRRY......... :(:(:( !!!

Bad cougar!!!! :unsure:

Now I'm SAD!!!...I'm going to go pout now!!! :(

Find a good ROCK to crawl under!!! :(

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

SOOOOOORRRRRY......... :(:(:( !!!

Bad cougar!!!! :unsure:

Now I'm SAD!!!...I'm going to go pout now!!! :(

Find a good ROCK to crawl under!!! :(

It's okay girl! I'm with you on gluten being poison, but sometimes you need to learn all the details before you pounce on someone. This a friendly board--we try to give people the benefit of the doubt. Some people do come here and admit they can't stop eating gluten (or can't stop their kids from sneakign it) even though it makes them sick. Those people need help. Scolding them isn't going to help them. Giving them the facts about what it's doing to them might help. Giving them ways to deal (like suggesting gluten-free alternatives) can help too.

cougie23 Explorer
cougie23
Posted

It's okay girl! I'm with you on gluten being poison, but sometimes you need to learn all the details before you pounce on someone. This a friendly board--we try to give people the benefit of the doubt. Some people do come here and admit they can't stop eating gluten (or can't stop their kids from sneakign it) even though it makes them sick. Those people need help. Scolding them isn't going to help them. Giving them the facts about what it's doing to them might help. Giving them ways to deal (like suggesting gluten-free alternatives) can help too.

Sniff...sniff....OK !! :(

After every thing I've read, Learned, been through and discovered latley.....It kinda FREAKED me out that after ALL the HORROR stories...someone would KNOWINGLY give a kid that they KNEW was celiac...gluten...especially after the poor kid just went 10 weeks without! I mean...REALLY! :blink:

I'm sorry I've only been on this site for 2 weeks or so.... and am still detoxing myself!!! Its making me a little HYPER..and overly sensitive...I'll have to watch that..I didn't realize what a spaz I've been lately..!!!

I was diagnosed 8/3/11 . :(

I'll be more careful...

I'm still sad and very depressed though!!! :(:(:(

I promise..No Pouncing... :unsure:

I'm still going to pout though! :(<_<

cougie23 Explorer
cougie23
Posted

I'm sorry Staceyshoe...I was out of line! sorry to be so harsh! :blink::(:(

come dance with me Enthusiast
come dance with me
Posted

I took mine to a bakery for a few minutes yesterday which was enough obviously to make her sick :(

We went in and I bought one of the loaves that they have out already in the bag then paid then left.

This afternoon my poor baby has been really sick :'( all because I told my mum I'd pick up bread for her on the way home!

But yeah it took about 20 hours before the complaint started but I know she'll be really vague for the next few days and irritable too.

No it wasn't on purpose! I won't have it in the house normally but it was for my mum who threw it at me after a 10 hour shift to pick it up on the way home otherwise we haven't been into a bakery all year.

  • 4 years later...
gem1030 Rookie
gem1030
Posted
On ‎9‎/‎18‎/‎2011 at 1:45 PM, Skylark said:

It's taken me as long as three days to have my anxiety reaction to gluten, and it usually takes at least six hours for my GI effects to appear. 24 hours is well within the realm of normal.

I know this was from 5 years ago but my reaction is the same I get bloated and tummy troubles with in a few hours but crazy anxiety about 48 hours later. Skylark how long before your anxiety stops this last time it took almost 5 days before I started to feel like myself. Is there a way to get the gluten out of our system faster so we don't suffer for days?

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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