Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those That Are Gluten Free Oat Intolerent

Roda

Recommended Posts

Roda Rising Star
Roda
Posted

I thought this might be a useful thread for all of us on here that have a gluten free oat sensitivity. I avoid any gluten free oats and products that either does or may have cross contamination from them. Bob's Red Mill was the first product eliminated. Here are two recent responses I recieved from Ener G and King Arthur in response to this question:

Comment: Hello!

I am very pleased with your gluten free line of products. I appreciate the

lengths you have taken to assure the safety and integrity of your gluten

free products. My question is: Is there any chance your products could have

any potential for cross contamination from gluten free oats in your facility

or from the suppliers facility from shared lines or facility? I am extremely

sensitive to even gluten free oats and have had to eliminate gluten free

products because of the cross contamination from them. Thank you very much for your time and consideration.

----- Original Message -----

From: "Bakers" <bakers@kingarthurflour.com>

Sent: Monday, September 19, 2011 4:16 PM

Subject: [kaf #303835] Any possibility of gluen free oat contamination?

>

> Hello,

> Thanks for your email. I checked with the merchandising team and they

> verified that gluten-free oats are processed in the same facility as our gluten-free

> mixes, so cross contamination is a possibility.

>

> We are sorry for any inconvenience.

>

>

>

> Sincerely,

>

> MaryJane

>

> King Arthur Flour

> Baker's Catalogue, Inc

> 1-800-827-6836

> bakers@kingarthurflour.com

> 100% Employee Owned~ 100% Committed to Quality

>

>>

No we do not have any oats of any kind in our facility. Also we purchase

our ingredients from exclusive manufactures. Such as Rice Flour direct from

the rice growers and that is all they make.

Kathy Hoffman

Kathy@ener-g.com

-----Original Message-----

From: Ener-G Customer Service [mailto:customerservice@ener-g.com]

Sent: Friday, September 16, 2011 3:52 PM

To: customerservice

Subject: Ener-G Request Form

I don't regualarly use King Arthur, but I have in the past. Ener G, Yeah!! I didn't think so but now I can be sure. I use their products a lot. When I get anymore info I will post. If anyone else has anthing to post please do.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Interesting! I have not had any trouble with King Arthur gluten-free flours but I had reactions to Bob's Red Mill products which I attributed to the gluten-free oat CC. Now I am wondering if it's actually due to Quinoa CC instead since I know Bob's process gluten-free quinoa as well (my reaction to quinoa pasta was very violent, worse than gluten).

dilettantesteph Collaborator
dilettantesteph
Posted

Thanks for posting this. I wonder how many of us there are?

Roda Rising Star
Roda
Posted
  • Author

I did hear back from Betty Crocker to the question in my first post and I feel they failed to answer my original question. I sent them back an e-mail asking them to answer it. I certainly appreciate their products, and have used them a lot. Just wanting to cover all bases.

Thank you for contacting us about gluten in Betty Crocker gluten free mix.

General Mills offers several products that are labeled gluten-free. Please check the

package label for the gluten-free statement on the front/side/back of the package. Only

products that can be verified to be gluten free will be declared as gluten free on the

label. It is important to check the product label each time you purchase a product because

it has the most accurate information about the product in the package.

Because we constantly strive to improve our products′ quality and nutritional value, the

most up-to-date product information is on the package the product is purchased in. For

that reason, we do not distribute product information lists as they could quickly become

outdated. A current list of products on the market that are gluten free can be found by

visiting www.glutenfreely.com [http://www.glutenfreely.com]. It is important to check the

package label before purchasing for the gluten-free statement on the front/side/back of

the package to verify that the package you choose is gluten free.

For products not labeled gluten free, we will always declare gluten containing

ingredients if they are added to the product. If the ingredient declaration lists wheat,

oats, barley, rye, or derivatives of these grains, then the product contains gluten.

Examples of derivative ingredients include: malt, barley malt, organic malt, semolina,

Durham, triticale, and spelt. We do not include gluten containing ingredients in the

′Natural Flavors′ or ′Spices′ on the product ingredient list. If there are gluten

ingredients in our products, those ingredients are always clearly listed.

If there are no gluten- containing ingredients listed in the product ingredient label,

but the product does not make a gluten free claim, it is because we cannot fully assure

that this product is gluten free. While we have not added gluten-containing ingredients,

factors such as sourcing, conditions of manufacture, etc. do not allow us to provide the

full level of assurance that a gluten free claim requires.

Additional information regarding gluten may be obtained by contacting your health care

professional or one of these organizations.

Celiac Sprue Association/United States of America, Inc.

PO Box 31700

Omaha, NE 68131-0700

402-558-0600

Or toll free: 877-CSA-4-CSA (877-272-4272)

www.csaceliacs.org [Open Original Shared Link

Celiac Disease Foundation

13251 Ventura Blvd. #1

Studio City, Ca. 91604

Phone: (818)990-2354

Fax: (818)990-2379

www.celiac.org [http://www.celiac.org]

We hope this information is helpful.

Sincerely,

Cecile M Davidson

Roda Rising Star
Roda
Posted
  • Author

Talked to a representative at Betty Crocker today. They do not use any gluten free oats in their dedicated gluten free facility!! Yeah! :D

T.H. Community Regular
T.H.
Posted

Thanks for posting this, Roda! I was thinking of getting something to make for my less sensitive celiac father when he visits, and I'd much rather get something that's oat free as well as gluten-free, so the risk is less for me and my daughter.

Roda Rising Star
Roda
Posted
  • Author

Thanks for posting this, Roda! I was thinking of getting something to make for my less sensitive celiac father when he visits, and I'd much rather get something that's oat free as well as gluten-free, so the risk is less for me and my daughter.

Your welcome. :) Sadly, I will be saying goodbye to many many things again. I'm having malabsorption issues again. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
Roda Rising Star
Roda
Posted
  • Author

Recieved this response from Glutino today:

We do not have oats in any of our facilities or our products.

Linda Sundborg

Glutino Customer Service

1-800-291-8386

glutenfree.com

Roda Rising Star
Roda
Posted
  • Author

Response from Kind Healthy Snacks:

Thank you for your interest in KIND Healthy Snacks.

All of our healthy snacks are gluten-free; they are tested for gluten and meet FDA

  • 2 months later...
Roda Rising Star
Roda
Posted
  • Author

From Pamela's

Thank you so much for your interest in Pamela's Products and for taking time from your day to contact us! It is only through relationships with customers such as you that Pamela
ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for going through the trouble of contacting and posting the results from these companies for us.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    2. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    4. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.