Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Do You Get Your Headaches?


jmrogers31

Recommended Posts

jmrogers31 Contributor

I have a question about headaches. Once I got off gluten I had horrible headaches in my withdrawal phase. My headaches during withdrawal and when I get headaches now are on the very back of my head. I almost feels like it would be on my brain stem. I have never had headaches that far back on my head before. They used to always be in my eyes, sinuses, and temples. Now I get a few sinus headaches but most of them are at the very back of my head. Any thoughts on this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Please forgive me, but when I saw the title of your thread, my first thoughts were, "In traffic jams. At loud concerts. When I'm babysitting my friend's kids."

Sorry. But seriously, I never got much in the way of headaches when I was going through gluten withdrawal. Any headaches I get are like they always were - behind my eyes, or occasionally, on one side of my head.

Schatz Apprentice

I have a question about headaches. Once I got off gluten I had horrible headaches in my withdrawal phase. My headaches during withdrawal and when I get headaches now are on the very back of my head. I almost feels like it would be on my brain stem. I have never had headaches that far back on my head before. They used to always be in my eyes, sinuses, and temples. Now I get a few sinus headaches but most of them are at the very back of my head. Any thoughts on this?

Oh my! Me too! I've never had headaches at the back of my head before until now. I also had horrible headaches during my initial with drawl from gluten. Granted it's only been 5 weeks since I was diagnosed celiac. I became very sick this past Sat from accidental gluten, and my headache is exactly where you describe. I've had the headache since Sat night.

I wonder why it's at the back and bottom of the head?

jmrogers31 Contributor

bartful, that is a funny response. I should have said, besides my 5 year old and 3 year old screaming at each other, where do you get your headaches? Schatz, it is always encouraging to hear that someone else is experiencing the same thing as you. I have read that gluten is an opiate and can accumulate on the brain. So in my head I imagine little sponges cleaning the gluten off of my brain and causing these strange headaches. I really hope someone here can explain why this occurs because it is something in my almost 31 years on this Earth I didn't experience until I got off gluten.

ravenwoodglass Mentor

I think that area is usually associated with tension headaches. Have you tried either cold or hot compresses to see if it might help?

smeej Newbie

Okay, that's weird. I just stopped eating gluten a couple of days ago as the beginning of an elimination diet and had NASTY tension headaches at the very base of my skull on the right side. I thought I just hadn't slept well the last couple of nights (whole host of reasons that could be true).

UKGail Rookie

Just to confuse everyone, I had just posted a comment similar to this in another thread. My reaction is perhaps the opposite. I had a longstanding chronic headache around the base of my skull prior to going gluten free which vanished within 24 hours of the new diet, and has not returned. Still getting some sinus area pain and very mild tension type headaches, but nothing major. For me, what I take to be withdrawal symptoms are purely digestive and skin related.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AMom2010 Explorer

I get my headaches over my right eye and at the base of my skull on the right side simultaneously. I really think gallbladder might be an issue for me in addition to gluten. Open Original Shared Link

Strawberry-Jam Enthusiast

I get my headaches right in my eyebrows, and in my cheeks when they get really bad.

"back of head" headaches were always related to neck and back pain for me. When I sleep in a wrong position or sit with bad posture for a long time.

idk about the relation to gluten.

jmrogers31 Contributor

smeej, I am in the same boat. They could be tension headaches, but it just seems like too big of a coincidence that it started as soon as I cut gluten out of my diet and two other people on this post experienced the same thing. That's what makes me wonder what they are. AMom, I never would have considered my gallbladder but that is interesting because one of the things I have been experiencing is dizzyness for a while. Seeing that as a symptom as well opened my eyes. I will have to look into that, thanks for the link.

  • 2 weeks later...
mcat1234 Newbie

I have headaches in the base of my skull, too. I have not yet confirmed whether or not gluten can cause it, as I am just now starting to be gluten free. I also have found that if I drink too much tea, I can get headaches there too. It doesn't matter whether it is decaf or not. Im not sure if it is from the tannins in tea or if it is just the brand. I just can't drink too much of it.

Kate79 Apprentice

My guess is you're getting migraines in reaction to de-toxing from the gluten. I've gotten migraines all my life, and they can be just where you describe - right at the base of the skull, almost in that hollow-feeling area just above the neck. I also get them in the sinus area. My doctor told me there are nerves in the back of the head that are easily inflamed, so it's not an uncommon place to get a headache. I even get swelling in the back of the head on the right side when I have a particularly bad headache.

Mine have almost completely gone away since I've been gluten free; I only get them occasionally now or if I'm contaminated - rather than the 7-10 a month I used to get. I also had dizzy-ness episodes on and off, which have gone away since going gluten free. Hope yours go away once you've been on the diet a bit longer!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748

    Juliane
    Newest Member
    Juliane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.