Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching But No Rash


sleer

Recommended Posts

sleer Contributor

I know DH is one of the horrible and prevalent symptoms of gluten allergy/celiac. But I'm wondering if anyone has experienced itching (pretty much all over) but without a rash as a symptom. I had it mostly on my side, back (occassionally) my foot and down there.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Reba32 Rookie

DH would be evident with a rash. All over itchiness could be a symptom of other allergies, or a neurological reaction to gluten.

sleer Contributor

DH would be evident with a rash. All over itchiness could be a symptom of other allergies, or a neurological reaction to gluten.

Thank you Reba. I wasn't thinking I had DH since I don't have any type of rash. I just have an itchiness and I have yet to pinpoint what it's related to and was hoping others could shed some light on it. I haven't been gluten free for that long so it's hard to tell if its going to go away with that change.

Jnkmp8 Newbie

Hi

I find I itch & my skin feels a burning sensation for about 2-5 days before my DH rash comes out! Try riotous tea as a soak I find it soothes the inflammation/burning & itching.

Wish you better

Xx

Jnkmp8 Newbie

Sorry that was supposed to read Roobios tea!! X

pricklypear1971 Community Regular

I know someone else posted about this in the last week or so...try a search and see if you can find it. I don't think it was the title, but in the responses.

I know, not a lot to go on.

mushroom Proficient

For me, once I went gluten free, the no-rash itching was a sign of an additional intolerance -- in my case it was was soy. I discovered lots of other things that caused rashes and itching and it was a while before I sorted them all out :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I know DH is one of the horrible and prevalent symptoms of gluten allergy/celiac. But I'm wondering if anyone has experienced itching (pretty much all over) but without a rash as a symptom. I had it mostly on my side, back (occassionally) my foot and down there.....

I have trouble with my liver function and when my bilirubins are high I have an EXTREME itch all over my body with out a rash.(Especially down there.. Before the doc's realized it was my liver function I kept getting tested for a bladder infection and they were always negative )

Just to note I also have DH , this is different

rain Contributor

I had a crazy itch with a mostly a non-DH rash for over a year. Some of the locations, my thighs and stomach, would itch with no rash. A rash would develop after I itched. It started at the same time I went gluten free. 3 rounds of antibiotics (Doryx twice - that seemed the best) pretty much cured it. (My face is still very sensitive so I am using a cortisone cream as needed.) During that time I tried eliminating every food I could think of with no affect on my skin. So I've concluded that I must have either had an infection or been purging toxins. I've eliminated gluten, minimize dairy (milk in tea, occasional yoghurt) and foods which aggravate acidity.

You have my sympathies, I had no idea a rash could be so maddening until what I went through. I hope it goes away soon.

IrishHeart Veteran

I had serious itching issues --drove me mad :blink: --and RED & burning skin (like a sunburn --my skin felt like it was on fire!) and red "wet" sores on my scalp before I was Dxed. I even had a red, raised "butterfly" rash on my face--which was suspected as lupus, but it was not, thank God. My itching/sores are NOT DH, I am sure --and it all resolved about 4-5 months after I was gluten-free.

One thing that I found would bring those red sores and itching back was (1) accidental gluten ingestion and (2) the shampoo I was using---before I became an expert label reader, I failed to notice "hydrolyzed wheat protein" in my shampoo and hair spray. :rolleyes:

Thanks to the people on here, I found the culprit pretty early on and now, about 9 months gluten-free, no more itching. It is maddening and uncomfortable and I hope it resolves soon for you!

Check labels and hang in there ;) --best wishes!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.