Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Here With Jumpy Eyes?


AVR1962

Recommended Posts

AVR1962 Collaborator

There's a few of my symptoms that have not cleared up from supplementation and changed diet, on of them being the jumpy eyesight. Anyone have this, and what helps it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NorthernElf Enthusiast

;) Ok, maybe you can define jumpy eyes...

I'm thinking if it's sorta wonky eyesight, I'm in. Some days my eyes seem to cross...not really of course but I'm not sure if my astigmatism becomes an issue or what. Other days, things are fine. It seems worse when I'm tired or if I have grumpy sinuses. It sorta like my eyes won't work together ???

allergyprone Contributor

I get that too, where i'll be sitting in class and it seems like the board in jumpping up and down but really fast, i usually get this if i eat a lot of sugar and/ or i'm tired I haven't found anything that helps and my doctor just looked at me like i was crazy. if someone out there has a solution it would be much appreciated because looking at a board that wont stay still gets on my nerves

AVR1962 Collaborator

I have had alot of vision problems.....double vision, vertigo, double vision and depth perception issues which have all left on a gluten-free diet and supplementing. The jumpy eyes don't follow a line whether it is reading or whatever. If I read I may have to go back 2 & 3 times and read the same line. I am a piano instructor who is constantly looking at lines and have actually let one student go because I could not keep up with all the notations in the music. I have made so many simple mistakes identifying the wrong notes only to realize my students are correct. Then I feel terrible for correting them when all along they were right but it's because my eyes are doing crazy things.

bartfull Rising Star

I believe the jumpy eyes are one of the symptoms of gluten ataxia. I have a friend who shows all of the symptoms of this, from difficulty walking, slurred speech, and jumpy eyes. He has been to see several doctors and has had multiple MRI's, CT scans, and neurological tests. They say they don't know WHAT it is. When I discovered what I did about the gluten ataxia and showed him, he went into denial and refuses to go back to the doctor to be tested. He's risking permanent damage, and quite literally risking his very life. :(

Here is a brief excerpt of an article about it. Click on the link to read the rest.

Gluten Ataxia

Ataxia is the most common neuropathy symptom associated with gluten allergy, according to the 2002 "Journal of Neurology, Neurosugery and Psychiatry." It is known as gluten ataxia. Ataxia is loss of muscle coordination in order to perform voluntary tasks such as picking up a book or walking. Symptoms of ataxia my involve difficulty swallowing, walking, slurred speech and eye movement changes.

Read more: Open Original Shared Link

AVR1962 Collaborator

I believe the jumpy eyes are one of the symptoms of gluten ataxia. I have a friend who shows all of the symptoms of this, from difficulty walking, slurred speech, and jumpy eyes. He has been to see several doctors and has had multiple MRI's, CT scans, and neurological tests. They say they don't know WHAT it is. When I discovered what I did about the gluten ataxia and showed him, he went into denial and refuses to go back to the doctor to be tested. He's risking permanent damage, and quite literally risking his very life. :(

Here is a brief excerpt of an article about it. Click on the link to read the rest.

Gluten Ataxia

Ataxia is the most common neuropathy symptom associated with gluten allergy, according to the 2002 "Journal of Neurology, Neurosugery and Psychiatry." It is known as gluten ataxia. Ataxia is loss of muscle coordination in order to perform voluntary tasks such as picking up a book or walking. Symptoms of ataxia my involve difficulty swallowing, walking, slurred speech and eye movement changes.

Read more: Open Original Shared Link

So what did you do? The article only talks about going on a gluten-free diet. With time these issues are supposed to go away on the diet. The issues listed are the ones I have not been able to make better so far with my diet and supplements. I have been gluten-free since April.

bartfull Rising Star

AVR, I don't have this problem myself. But because my friend does, I've read a lot about it. It is the slowest to heal, and for some it never completely goes away, although it does get better. If you google it, you will find a lot of info. Or better yet, do a search on this site. There are several members who have neurological problems caused by gluten. They can help you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gigifree Rookie

Yes, I had jumpy eye, dry eye and keratoconus . My jumpy eye and dry eye are better with a gluten-free diet and vitamins, but keratoconus is a life long condition. In some studies, keratoconus is linked to/ a complication of celiac disease.

  • 2 weeks later...
Februaryrich Rookie

I get the jumpy eye too..my peripheral vision is bad

Celiac Ninja Enthusiast

So what did you do? The article only talks about going on a gluten-free diet. With time these issues are supposed to go away on the diet. The issues listed are the ones I have not been able to make better so far with my diet and supplements. I have been gluten-free since April.

I've got it. When I'm trying to read and I'm feeling tired or stressed that's when it starts, my eyes will jump off the line that I'm reading or while I'm drawing and staring at one spot real close they will bounce off and I loose my pace. It's annoying, but it's still bothering me a bit and I've been on a gluten free diet for years. Although, it seems when I get a small gluten episode it does show up again. Latley I've found that my chapsticks are causing small gluten episodes, so the jumpy eyes are back today. I didn't think anyone else had this, thought I was going mad or something. lol Yhea I'm not alone :D

Anyway, stress and being tired area a trigger for me, especially when I'm slouching in my chair. Those are the only things I know that's going on when it happens.

Hope this helps.

Loey Rising Star

I have had alot of vision problems.....double vision, vertigo, double vision and depth perception issues which have all left on a gluten-free diet and supplementing. The jumpy eyes don't follow a line whether it is reading or whatever. If I read I may have to go back 2 & 3 times and read the same line. I am a piano instructor who is constantly looking at lines and have actually let one student go because I could not keep up with all the notations in the music. I have made so many simple mistakes identifying the wrong notes only to realize my students are correct. Then I feel terrible for correting them when all along they were right but it's because my eyes are doing crazy things.

I have vertigo and double vision and I had severe migraines. I had a mass and they removed it. It was Fibrodysplasia. The double vision and vertigo are still there so I need to go back to my optometrist. Good luck. We're all pulling for each other. That's what's so special about this forum.

Loey

  • 2 weeks later...
Chrissyb Enthusiast

I have MS and Celiacs and have been on a gluten free, dairy free diet for over 4 years now and to my dismay none of my ms symptoms have cleared up. :( All my gastro symptoms are better and I can sure tell when I have has something with gluten in it. I have all the eye problems and the neuropathy but such is life with ms.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.