Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Here With Jumpy Eyes?


AVR1962

Recommended Posts

AVR1962 Collaborator

There's a few of my symptoms that have not cleared up from supplementation and changed diet, on of them being the jumpy eyesight. Anyone have this, and what helps it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NorthernElf Enthusiast

;) Ok, maybe you can define jumpy eyes...

I'm thinking if it's sorta wonky eyesight, I'm in. Some days my eyes seem to cross...not really of course but I'm not sure if my astigmatism becomes an issue or what. Other days, things are fine. It seems worse when I'm tired or if I have grumpy sinuses. It sorta like my eyes won't work together ???

allergyprone Contributor

I get that too, where i'll be sitting in class and it seems like the board in jumpping up and down but really fast, i usually get this if i eat a lot of sugar and/ or i'm tired I haven't found anything that helps and my doctor just looked at me like i was crazy. if someone out there has a solution it would be much appreciated because looking at a board that wont stay still gets on my nerves

AVR1962 Collaborator

I have had alot of vision problems.....double vision, vertigo, double vision and depth perception issues which have all left on a gluten-free diet and supplementing. The jumpy eyes don't follow a line whether it is reading or whatever. If I read I may have to go back 2 & 3 times and read the same line. I am a piano instructor who is constantly looking at lines and have actually let one student go because I could not keep up with all the notations in the music. I have made so many simple mistakes identifying the wrong notes only to realize my students are correct. Then I feel terrible for correting them when all along they were right but it's because my eyes are doing crazy things.

bartfull Rising Star

I believe the jumpy eyes are one of the symptoms of gluten ataxia. I have a friend who shows all of the symptoms of this, from difficulty walking, slurred speech, and jumpy eyes. He has been to see several doctors and has had multiple MRI's, CT scans, and neurological tests. They say they don't know WHAT it is. When I discovered what I did about the gluten ataxia and showed him, he went into denial and refuses to go back to the doctor to be tested. He's risking permanent damage, and quite literally risking his very life. :(

Here is a brief excerpt of an article about it. Click on the link to read the rest.

Gluten Ataxia

Ataxia is the most common neuropathy symptom associated with gluten allergy, according to the 2002 "Journal of Neurology, Neurosugery and Psychiatry." It is known as gluten ataxia. Ataxia is loss of muscle coordination in order to perform voluntary tasks such as picking up a book or walking. Symptoms of ataxia my involve difficulty swallowing, walking, slurred speech and eye movement changes.

Read more: Open Original Shared Link

AVR1962 Collaborator

I believe the jumpy eyes are one of the symptoms of gluten ataxia. I have a friend who shows all of the symptoms of this, from difficulty walking, slurred speech, and jumpy eyes. He has been to see several doctors and has had multiple MRI's, CT scans, and neurological tests. They say they don't know WHAT it is. When I discovered what I did about the gluten ataxia and showed him, he went into denial and refuses to go back to the doctor to be tested. He's risking permanent damage, and quite literally risking his very life. :(

Here is a brief excerpt of an article about it. Click on the link to read the rest.

Gluten Ataxia

Ataxia is the most common neuropathy symptom associated with gluten allergy, according to the 2002 "Journal of Neurology, Neurosugery and Psychiatry." It is known as gluten ataxia. Ataxia is loss of muscle coordination in order to perform voluntary tasks such as picking up a book or walking. Symptoms of ataxia my involve difficulty swallowing, walking, slurred speech and eye movement changes.

Read more: Open Original Shared Link

So what did you do? The article only talks about going on a gluten-free diet. With time these issues are supposed to go away on the diet. The issues listed are the ones I have not been able to make better so far with my diet and supplements. I have been gluten-free since April.

bartfull Rising Star

AVR, I don't have this problem myself. But because my friend does, I've read a lot about it. It is the slowest to heal, and for some it never completely goes away, although it does get better. If you google it, you will find a lot of info. Or better yet, do a search on this site. There are several members who have neurological problems caused by gluten. They can help you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gigifree Rookie

Yes, I had jumpy eye, dry eye and keratoconus . My jumpy eye and dry eye are better with a gluten-free diet and vitamins, but keratoconus is a life long condition. In some studies, keratoconus is linked to/ a complication of celiac disease.

  • 2 weeks later...
Februaryrich Rookie

I get the jumpy eye too..my peripheral vision is bad

Celiac Ninja Enthusiast

So what did you do? The article only talks about going on a gluten-free diet. With time these issues are supposed to go away on the diet. The issues listed are the ones I have not been able to make better so far with my diet and supplements. I have been gluten-free since April.

I've got it. When I'm trying to read and I'm feeling tired or stressed that's when it starts, my eyes will jump off the line that I'm reading or while I'm drawing and staring at one spot real close they will bounce off and I loose my pace. It's annoying, but it's still bothering me a bit and I've been on a gluten free diet for years. Although, it seems when I get a small gluten episode it does show up again. Latley I've found that my chapsticks are causing small gluten episodes, so the jumpy eyes are back today. I didn't think anyone else had this, thought I was going mad or something. lol Yhea I'm not alone :D

Anyway, stress and being tired area a trigger for me, especially when I'm slouching in my chair. Those are the only things I know that's going on when it happens.

Hope this helps.

Loey Rising Star

I have had alot of vision problems.....double vision, vertigo, double vision and depth perception issues which have all left on a gluten-free diet and supplementing. The jumpy eyes don't follow a line whether it is reading or whatever. If I read I may have to go back 2 & 3 times and read the same line. I am a piano instructor who is constantly looking at lines and have actually let one student go because I could not keep up with all the notations in the music. I have made so many simple mistakes identifying the wrong notes only to realize my students are correct. Then I feel terrible for correting them when all along they were right but it's because my eyes are doing crazy things.

I have vertigo and double vision and I had severe migraines. I had a mass and they removed it. It was Fibrodysplasia. The double vision and vertigo are still there so I need to go back to my optometrist. Good luck. We're all pulling for each other. That's what's so special about this forum.

Loey

  • 2 weeks later...
Chrissyb Enthusiast

I have MS and Celiacs and have been on a gluten free, dairy free diet for over 4 years now and to my dismay none of my ms symptoms have cleared up. :( All my gastro symptoms are better and I can sure tell when I have has something with gluten in it. I have all the eye problems and the neuropathy but such is life with ms.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,999
    • Most Online (within 30 mins)
      7,748

    Wendy Jo
    Newest Member
    Wendy Jo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.