Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Take My Quiz


alexsami

Recommended Posts

alexsami Contributor

if you guys were doctors.....blood test....elevated gliadin antiobdy...... gluten-free for a month....gluten week before biopsy....endoscopy....negative

malabsorption, steatorrhea, gas, bloated, tooth enamel, headaches, etc...

a) celiac

B) gluten intolerance

c) im just crazy

40 years old by the way

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

ans. A

Your not crazy and there are a lot of reasons for a false negative on a biopsy including having been gluten free for a month before it was done. Your blood test is positive and your doctor may give you an 'official' diagnosis once your health issues disappear on the diet and accidental glutenings (which usually happen to all of us at first) bring them back.

alexsami Contributor

haha 90 people have viewed and one response....thanks for responding :)

Roda Rising Star

I answer A. You may not have had enough damage in the small bowel or they missed it in the sample.

Bubba's Mom Enthusiast

I say A too. While there are false negatives with the blood work, I've never heard of a false positive.

You may have been off gluten long enough for villi to heal, or there could be damage outside of the range of the scope, or samples were taken from the wrong area.

I'd say consider yourself Celiac and stay completely gluten-free.

jerseyangel Proficient

if you guys were doctors.....blood test....elevated gliadin antiobdy...... gluten-free for a month....gluten week before biopsy....endoscopy....negative

malabsorption, steatorrhea, gas, bloated, tooth enamel, headaches, etc...

a) celiac

B) gluten intolerance

c) im just crazy

40 years old by the way

thanks

My opinion--could be A or B) . Being gluten-free for a month could have skewed your biopsy results even with another week on it. Either way, sounds like you need to be on the diet.

mushroom Proficient

If you really want me to be a doctor, I would say there is nothing wrong with you, that the blood work was a false positive, and that you could go forth and eat gluten :lol:

If you want my opinion of what a doctor should say, I would say you are most likely celiac. Even Dr. Fassano might say that now if you had a positive genetic test :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Goof Rookie

Agreed with Jersey. A) or B)

AVR1962 Collaborator

Don't get discouraged. Tests are not accurate. Most of all you have to do what you can to protect your health. Don't give up and consider this not either Celiac or a gluten-intolerance. I know what you mean about questioning yourself, I did it too. I really thought I just had a gluten intolerance. I could not go thru for the testing for celiac as it made me extremely sick so I just stuck with the gluten-free diet. Docs were testing trying to eliminate and I wanted everything documented, everything in my records to show something. After 7 months of tests I was so bloomin' exhausted but feeling better, decided on a new set of eyes and found a different doc. He looked over everything. I had bone scans done that showed bone loss, I also have kidney stones, list goes on and on. He looks at everything and finally put it all together- celiac. Hang in there!

alexsami Contributor

thanks guys

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      6

      Am I nuts?

    2. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    3. - SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,837
    • Most Online (within 30 mins)
      7,748

    Chat
    Newest Member
    Chat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.