Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Endometriosis Symptoms Get Worse Eating Gluten?

carecare

Recommended Posts

carecare Enthusiast
carecare
Posted

Meaning...if you were once eating gluten and then found out you were celiac or gluten intolerant did your endo pain get better when starting a gluten free diet? Reason I ask is I recently found out the pain I've been having is probably endometriosis. I thought it was an ovarian cyst that wasn't resolving itself for 5 months but when I got my ultrasound there was no cyst. Because of the symptoms and when the pain occurs my doctor handed me a pamphlet for endomitriosis and sent me on my way basically. After reading it I actually think I've been dealing with this for many years...I thought the pain was from ovarian cysts but now I believe it's been the endomitriosis. I had my tubes tied 10 yrs ago after my 4th child. I believe I have scar tissue and adhesions there from the endometriosis. Lately the pain the first few days of my cycle has been horrible...it's on my right side and I feel like it's my tubes being pulled and pinched...and my ovaries aching. I was gluten free since the beginning of August and went back to eating gluten with the boys since they are getting an endoscopy in December so we reintroduced gluten. I decided I might as well get tested myself come december. Well, I was on gluten for a week then started my cycle and the pain in my lower right side was worse than ever...and last much longer too. Usually it's just the first couple of days but this time it started for 2 days..had one good day and then started back up for another 2 days. It was not fun. I'm wondering if it's because I added gluten back into my diet. I know I am sensitive to gluten...if off of it for some time and I have something with gluten I get a stomach ache and sometimes D. It's been a week and a half with gluten back in and I've had a few headaches...a couple bouts of D and extremely painful cycle. Anyone have endometriosis that got better once on a gluten free diet. I don't know if I should wait to go back to the gyno dr or do it soon because I really would rather them do something about this than wait....however if going gluten free helps woman with endometriosis then I'm willing to wait until I have the testing and see how it helps it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bny06 Apprentice
bny06
Posted

Hello!! Actually you are probably correct!!! Years ago, (i had no idea I had any gluten/celiac issues) I was having fertility problems.. they found a huge endometrioma (endometriosis cyst) on ultrasound and then did surgery to remove it.. they said I had one of the worst cases of endometriosis they had ever seen.. however I had never had any pain or symptoms (besides an occasional cramp that once a year i'd take an advil for) anyhow in efforts to do any and everything to help out for fertility sake I did a lot of research on endometriosis etc... turns out that they think not only endometriosis pains, but also the inflammation caused by the endometriosis itself is worsened by gluten.. since endometriosis is also an autoimmune disorder (they believe) .. SO i immediately went gluten free.. this is actually when We first got pregnant! So i couldn't tell if my pains changed or not, since I never really had any.. it was either coincidence or it did decrease the inflammation and help us get pregnant... there are a few studies out there showing how it helps! :) Now fast forward 4 years.. turns out i have a gluten issue! Shoulda figured that out then I guess!!! Good luck! :)

NCM Newbie
NCM
Posted

I've been wondering this myself. I have had endometriosis for 17 years and only found out 3 months ago that I have Celiac Disease. I've only been gluten free for 3 months but so far the endometriosis has been much better but I think I need a longer time period to know for sure if it's made a difference because some months it would be worse than others.

mash Newbie
mash
Posted

There is a very definite link between Celiac and Endometriosis - see this study: Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,487
    • Most Online (within 30 mins)
      7,748
    L. Heidi
    Newest Member
    L. Heidi
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      @Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K.   Vitamin A toxicity does not cause Celiac disease.  Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation.  Fish contains thiaminases, chemical compounds that destroy thiamine, Vitamin B 1, making the thiamine unusable.  Excessive intake of foods containing thiaminases can precipitate low thiamine.   Low thiamine can also be a result of bacterial or yeast infections.  A high carbohydrate diet encourages Candida and bacterial infections.  High carbohydrate diets promote SIBO and Candida because they feed on the excess carbohydrates and suppress the beneficial bacteria.  Other types of bacteria can take advantage of this and set up housekeeping outside the gastrointestinal tract, including bacterial vaginosis. Thiamine Vitamin B 1 can alter the microbiome.  Thiamine has been shown to suppress Candida, SIBO, and other bacterial and viral infections, and favor the growth of beneficial bacteria.  My SIBO cleared once I supplemented with Benfotiamine, a form of thiamine that has been shown to promote intestinal healing, and a B Complex.  Thiamine works in concert with the other B vitamins and magnesium. Thiamine helps to lower histamine levels by calming mast cells that release histamine at the slightest provocation.   Following the Autoimmune Protocol diet also helped immensely in getting my digestive system calmed and able to tolerate more foods. Have you discussed with your doctor and dietician supplementing essential B vitamins while healing?  What is your Vitamin D level?  Vitamin D helps calm the immune system.  
    • cristiana
      Has anyone ever had Low Ferritin with Elevated MCHC levels?

      By cristiana · Posted

      Update - my Active B12 is 36.  Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal.   I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great, because from what I understand, in the UK our normal levels are set low and 'lower normal' levels would be considered a deficiency in such countries as Germany and Japan. Regarding B12 levels, it doesn't look as if my levels are low enough to be offered B12 injections.  That being the case, I remember reading that sublingual tablets can still be very effective but one particular type is better than another - I can't remember which type.  Can anyone help?
    • cristiana
      Unusual bright yellow but odourless discharge

      By cristiana · Posted

      Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test?  I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests.  My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals seem to be taking any interest in it although this is  my fault as last time I saw my Consultant I failed to mention my symptoms - I had so many other questions to ask him.  Anyway - here are the details for an A test: https://www.medichecks.com/products/vitamin-a-retinol-blood-test?gad_source=1&gad_campaignid=11996732820&gbraid=0AAAAAD9XHFyeAOrxlryOpWS_jXwZ8PCc1&gclid=EAIaIQobChMIyrjj2Pb2jwMVnJJQBh22CTkVEAAYASAAEgIGDPD_BwE
    • Scott Adams
      ointment .

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      Diagnosed with potential Guillain Barre could it be celiac related?

      By Scott Adams · Posted

      This is a very complex and difficult situation, and your intuition about a potential link to celiac disease is medically plausible. While Guillain-Barré Syndrome (GBS) is often triggered by infections, it can also be precipitated by other immune system events, including a significant gluten exposure in a person with celiac disease. The timeline you describe—neurological symptoms appearing after the GI symptoms subsided—is classic for post-infectious (or in this case, post-exposure) GBS. Furthermore, there is a recognized, though rare, neurological condition directly linked to celiac disease called Gluten Ataxia, which affects coordination and can cause gait problems. However, the rapid onset of paralysis and cranial nerve involvement you experienced is more characteristic of GBS than typical gluten ataxia. It's also important to know that a negative EMG early in the course of GBS does not rule it out, and "Functional Neurological Disorder" (FND) is not purely psychiatric; it is a real and complex disorder where there is a problem with the functioning of the nervous system, not its structure, and it can be triggered by physical illness or stress. The most critical step is to continue working closely with your neurologists. You should absolutely bring up your celiac history and your theory, as it is a relevant piece of the diagnostic puzzle. They may consider specific antibody tests related to gluten neuropathy or ataxia to help differentiate the cause. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.