Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Weight Loss


DanielleR

Recommended Posts

DanielleR Rookie

font="Times New Roman"] I was told I have Celiacs in May of this year. I noticed around the middle of June that I was losing some weight. At first, I was all to thrilled to lose some extra but, then I could not wear any of my clothing. Since May I have lost 36lbs. I know that might not be alot to some, but I can't stop losing it. I keep a food journal, and I am eating the right and correct amount of food, but I can't seem to find the problem. My question would be is this normal? If so, how do I control it, and maintain my weight or, even gain some.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Are you at a normal weight now or underweight?

Gfresh404 Enthusiast

What does your diet look like? How old are you? How much do you weigh? M/F?

It will take a while for your absorption to get back where it should - so until then you might not be absorbing everything you're putting in your body.

DanielleR Rookie

I am a 5'8 female and 29 years old . I was 160lbs. Just slightly over weight. Now I am 124lbs underweight. I normally start off eating fruit or cereal for breaskfast. I can not have dairy so I use rice milk. For snakcks I will eat some type of nuts or chips (I know there are bad)and more fruit. Lunch I do Chicken salad, or a salad that actually has chicken in it, or chili. Then I usually have another snack bfore dinner, which is normally rolled up sliced ham or boiled eggs. Then for dinner I eat a meat, veg and some kind of potato. I also drink water and soda. Just recently started a vegan multi vitiam.

domesticactivist Collaborator

I am a 5'8 female and 29 years old . I was 160lbs. Just slightly over weight. Now I am 124lbs underweight. I normally start off eating fruit or cereal for breaskfast. I can not have dairy so I use rice milk. For snakcks I will eat some type of nuts or chips (I know there are bad)and more fruit. Lunch I do Chicken salad, or a salad that actually has chicken in it, or chili. Then I usually have another snack bfore dinner, which is normally rolled up sliced ham or boiled eggs. Then for dinner I eat a meat, veg and some kind of potato. I also drink water and soda. Just recently started a vegan multi vitiam.

It sounds like you are eating a very low fat diet. Here are some ideas:

  • Eat soups based in bone broth. They should be gelatenous when they are cold. You can skim off the fat for cooking or just eat the soup with the fat left in it.
  • Eat avocados - they go great in chicken salad.
  • Sautee veggies with generous portions of coconut oil or duck, or other rendered saturated fat.
  • Make sure your breakfast includes protein and fat. Right now it's just sugar!
  • Eat nutbutters (You can make your own very easily in the food processor and might be able to get more nuts in than you currently eat).
  • Stop counting calories - are you feeling very full and sated? If not, you are not eating enough, or enough of the right foods.

DanielleR Rookie

I am still new to this, what soup can I eat that is Gluten Free? I have 3 super markets where I live so I may have to order off the internet. The problem is I have tried different foods that are not very good so I hate to order something and have one item shipped. I googled the nearest whole foods store and it's an hour and a half away, so we are planning a trip there soon.

domesticactivist Collaborator

Are there any farmers in your area? We get bones from them or from local butchers. Then you just add water and simmer the bones. Then you take the bones out and boil veggies in the stock to make soup.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Danielle,

I lost weight immediately after going gluten-free. That left me back at my prior weight before I had gotten sick. However after 2 yrs gluten-free, I suddenly lost alot more weight. That left me dangerously thin and even though being gluten-free gave me back so much energy, I was still more fatigued than I wanted to be. I knew those 2 things were indications that I might have blood sugar problems, as well as the fact that I had other risk factors. Sudden, unexplained weight loss is a sign of diabetes and we here are at greater risk. I suggest that you get tested. If it comes back no problem you will have not wasted anything. Diabetes often goes undx too long. It is also not a cut and dried T1 or T2, there are several more kinds and a spectrum of blood sugar issues. Know where you fall on that specturum. It is SO much easier to manage the earlier it is detected. If you do get tested ask for an A1C and maybe an OGTT. A fasting blood sugar or any 1 time reading is not a good indicator. The more data the better.

As for diet, I recommmend that you have a sizeable amount of protein at each meal, preferably from eggs or meat. Vegeterain sources of protein, often count more as carbs from a blood sugar perspective(I'm not anti-veg. I'm a wannabe, but my BG does the talking ;). I was able to GAIN weight on a low-carb diet by increasing pro(from meat), when others usually LOSE weight on low-carb.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748

    Tc clark
    Newest Member
    Tc clark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.