Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Weight Loss

DanielleR

By DanielleR
in Related Issues & Disorders

Recommended Posts

DanielleR Rookie
DanielleR
Posted

font="Times New Roman"] I was told I have Celiacs in May of this year. I noticed around the middle of June that I was losing some weight. At first, I was all to thrilled to lose some extra but, then I could not wear any of my clothing. Since May I have lost 36lbs. I know that might not be alot to some, but I can't stop losing it. I keep a food journal, and I am eating the right and correct amount of food, but I can't seem to find the problem. My question would be is this normal? If so, how do I control it, and maintain my weight or, even gain some.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AVR1962 Collaborator
AVR1962
Posted

Are you at a normal weight now or underweight?

Gfresh404 Enthusiast
Gfresh404
Posted

What does your diet look like? How old are you? How much do you weigh? M/F?

It will take a while for your absorption to get back where it should - so until then you might not be absorbing everything you're putting in your body.

DanielleR Rookie
DanielleR
Posted
  • Author

I am a 5'8 female and 29 years old . I was 160lbs. Just slightly over weight. Now I am 124lbs underweight. I normally start off eating fruit or cereal for breaskfast. I can not have dairy so I use rice milk. For snakcks I will eat some type of nuts or chips (I know there are bad)and more fruit. Lunch I do Chicken salad, or a salad that actually has chicken in it, or chili. Then I usually have another snack bfore dinner, which is normally rolled up sliced ham or boiled eggs. Then for dinner I eat a meat, veg and some kind of potato. I also drink water and soda. Just recently started a vegan multi vitiam.

domesticactivist Collaborator
domesticactivist
Posted

I am a 5'8 female and 29 years old . I was 160lbs. Just slightly over weight. Now I am 124lbs underweight. I normally start off eating fruit or cereal for breaskfast. I can not have dairy so I use rice milk. For snakcks I will eat some type of nuts or chips (I know there are bad)and more fruit. Lunch I do Chicken salad, or a salad that actually has chicken in it, or chili. Then I usually have another snack bfore dinner, which is normally rolled up sliced ham or boiled eggs. Then for dinner I eat a meat, veg and some kind of potato. I also drink water and soda. Just recently started a vegan multi vitiam.

It sounds like you are eating a very low fat diet. Here are some ideas:

  • Eat soups based in bone broth. They should be gelatenous when they are cold. You can skim off the fat for cooking or just eat the soup with the fat left in it.
  • Eat avocados - they go great in chicken salad.
  • Sautee veggies with generous portions of coconut oil or duck, or other rendered saturated fat.
  • Make sure your breakfast includes protein and fat. Right now it's just sugar!
  • Eat nutbutters (You can make your own very easily in the food processor and might be able to get more nuts in than you currently eat).
  • Stop counting calories - are you feeling very full and sated? If not, you are not eating enough, or enough of the right foods.

DanielleR Rookie
DanielleR
Posted
  • Author

I am still new to this, what soup can I eat that is Gluten Free? I have 3 super markets where I live so I may have to order off the internet. The problem is I have tried different foods that are not very good so I hate to order something and have one item shipped. I googled the nearest whole foods store and it's an hour and a half away, so we are planning a trip there soon.

domesticactivist Collaborator
domesticactivist
Posted

Are there any farmers in your area? We get bones from them or from local butchers. Then you just add water and simmer the bones. Then you take the bones out and boil veggies in the stock to make soup.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

Danielle,

I lost weight immediately after going gluten-free. That left me back at my prior weight before I had gotten sick. However after 2 yrs gluten-free, I suddenly lost alot more weight. That left me dangerously thin and even though being gluten-free gave me back so much energy, I was still more fatigued than I wanted to be. I knew those 2 things were indications that I might have blood sugar problems, as well as the fact that I had other risk factors. Sudden, unexplained weight loss is a sign of diabetes and we here are at greater risk. I suggest that you get tested. If it comes back no problem you will have not wasted anything. Diabetes often goes undx too long. It is also not a cut and dried T1 or T2, there are several more kinds and a spectrum of blood sugar issues. Know where you fall on that specturum. It is SO much easier to manage the earlier it is detected. If you do get tested ask for an A1C and maybe an OGTT. A fasting blood sugar or any 1 time reading is not a good indicator. The more data the better.

As for diet, I recommmend that you have a sizeable amount of protein at each meal, preferably from eggs or meat. Vegeterain sources of protein, often count more as carbs from a blood sugar perspective(I'm not anti-veg. I'm a wannabe, but my BG does the talking ;). I was able to GAIN weight on a low-carb diet by increasing pro(from meat), when others usually LOSE weight on low-carb.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.