Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Child Back In Hospital

Mommy2GlutenFreeChild

Recommended Posts

kareng Grand Master
kareng
Posted

OMG!

All I could think of while you were describing the nose tube thing is, why don't they use laughing gas like the children's dentist does? Its very safe, cheap, relaxes them. Especially at 5 am. Just let him keep sleeping. If there is a next time for any of us.

I do know several adults and kids where they can have a light case of pneumonia, maybe not realize it, & it suddenly gets worse.

Glad he is better!

I have seen some real cases of Von M's. Pneumonia or TB are not things they usually have or can fake. Though I saw one where the kid had a severe allergic asthma to mold & cats(?). The mom had cats sleep on his bed & exposed him to mold.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 56
  • Created
  • Last Reply
mommida Enthusiast
mommida
Posted

OMG!! :huh:

The torture your son, husband and you have gone through! On top of the lose your mind worry, someone dared to say crap about your parenting!!!?

Sending you warm wishes for speedy healing! :) Big cyber ((HUGS))

I do know in some highly contagious cases they will run multiple tests to prove the dianoses and identify the exact baterium.

(When I had meningitus, they drew blood from all of my limbs to have a clean, seperate sample.)

sandsurfgirl Collaborator
sandsurfgirl
Posted

Wow I'm just coming to this thread today and I couldn't stop reading your story. I was on the edge of my seat. I am so sorry you and your family went through all of that!

Whoever called Child Services on you is just a despicable human being. That is just sick to do that to a sick child and his suffering parents.

I hope everything gets better from here on out.

I homeschool my kids and I hadn't even thought of all the issues you deal with having a celiac kid in school. My son did have a kid mess with his food after a baseball game but we were standing right there and I told the kid off.

We use playdough at home but we wash like crazy afterwards. I need to look for gluten free playdough or find out how to make it so we don't have to be so careful with it.

I was a teacher before I was diagnosed and I can see after reading this thread how so many things could be an issue.

Di2011 Enthusiast
Di2011
Posted

I know it seems like you have been victimised but the reality is that Child Services exists to keep kids safe. In your case it is obviously a mistake but PLEASE keep in mind that these people keep abused children from being further treated so. Like gluten intolerance, child abuse is an imperfect science.

luvs2eat Collaborator
luvs2eat
Posted

Wow... I've just come upon this thread too and all I want to do is give you and your boy and your husband a huge hug. What an amazingly messed up ordeal you've been through... and you must be absolutely terrified. I sure would be. Your composure and willingness/need to follow up w/ his school, cafeteria, art room are so admirable to me, especially given all the other stuff you're worried about/seeking answers for.

I don't have any other advice aside from what others have said. I just wanted you to know that I'm pulling for you and your son and have the utmost admiration for you and your boy is lucky to have such a persistent and interested mom.

(((((huge hugs))))

Mommy2GlutenFreeChild Rookie
Mommy2GlutenFreeChild
Posted
  • Author

He turned 6 in October

What an ordeal! I know this will sound crazy but has he been tested for pertussis? It is going around this year, even among vaccinated folks. Both my kids got it last year very badly despite having been vaccinated.

Mommy2GlutenFreeChild Rookie
Mommy2GlutenFreeChild
Posted
  • Author

You are right and I am glad they are there to help people. I am not so mad at Children Services because by law if a report is made by someone against a person they are legally required to look into it. I have been more mad at the person who made the bogus report to begin with, but regardless of any of the CS stuff, I am far more mad at what my son has been through with all of it the last month. But things have calmed down. We had a nice Thanksgiving, he's better and he goes back to school on Monday. I appreciate everyone's thoughts. We are coming up on the 2 year "anniversarry" of his diganosis in Jan and it is just amazing to me how much we still have to learn about it.

I know it seems like you have been victimised but the reality is that Child Services exists to keep kids safe. In your case it is obviously a mistake but PLEASE keep in mind that these people keep abused children from being further treated so. Like gluten intolerance, child abuse is an imperfect science.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,597
    • Most Online (within 30 mins)
      7,748
    JosiePosey
    Newest Member
    JosiePosey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.