Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction To Coconut Milk


Fairy Dancer

Recommended Posts

Fairy Dancer Contributor

I had some coconut milk earlier and after eating I had stomach pain, acid reflux and wheezing. It has the following ingredients...Can anyone tell me anything about them as my gut was not hurting before I had some lol.

Coconut extract (obvious ingredient lol)

Water (another obvious one lol)

Guar Gum

Xantham gum

Sodium carboxymethyl cellulose

Distilled monoglycerides

Polysorbate 60

sodium metabisulpite

It seems, in one form or another, I get reactions to the following foods: Grains (except white rice), corn, and I am testing to see if I am having issues with soya as I always seem to get a reaction to foods with it in such as chocolate (although it could be the chocolate or vanillin in it) and some processed gravy containing soya but not wheat (brought me up in a rash).

I am also allergic to duck feathers but that is irrelevant here lol.

I get allergic reactions to some household cleaners (red itchy lumps where it has come into contact with my skin)

I am sensitive or allergic also to many medications including anti inflammatories (result in stomach pain, wheezing and projectile vomiting with in minutes of taking the darn things), certain types of anti biotic (but not penicillin), and various other meds including most anti depressants. I also had a bad reaction to vitamin pills some years back (don't bother with them these days) so god knows what the hell they put in these things lol

Celery gives me a numb mouth but I don't think that's an intolerance or anything lol.

I'm still exploring various foods etc. Don't know if any of those ingredients in the coconut milk are similar to ingredients in other things I am allergic/sensitive or intolerant to!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Could be the xantham gum which is in some gluten-free products and doesn't set well on my stomach either.

gluten free overseas Apprentice

A lot of vitamins are made with gluten and/or soy. There are some gluten free, soy free brands--you just have to be really careful. I agree about xanthan gum--it is made from corn, so if you have problems with corn, then you should stay away from it.

Marilyn R Community Regular

Last year I made coconut milk from scratch because I couldn't tolerate soy, or any of the rice, hemp, almond or coonut milks. It was a pain, first I roasted the coconut (a whole one) in the oven, oh, it was grueesome. And the finished product was only good for three days! I figured out that soy products were bothering me (the protein is similar to gluten). I occasionally find pure coconut milk at an Indian or Oriental grocery store. Even though I can tolerate dairy (finally), I still look for coconut milk that isn't polluted with soy, and stock up on it when I find it. (That could just be me,( :D

Mango04 Enthusiast

That looks like a really chemical-filled coconut milk. The gums could definitely be an issue.

Jenniferxgfx Contributor

My money is on those sulfites. Those are scary buggers and I have a similar reaction. (although the reflux may likely be from the other ingredients, I may have an esophagitis reaction to the sulfites if there's a LOT, like poor quality dried fruit.)

Which coconut milk is this? I like to know what brand to stay away from!

Fairy Dancer Contributor

It is the pride brand (in the UK)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Wheezing.... that is very likely a sulfites reaction. (the last ingredient) It is a preservative used in some dried fruits and dried coconut and wines, sometimes vinegars made from wine will also have it. Asthmatics need to avoid it. Not unusual for asthmatics to react to sulfites AND to NSAIDs (non steroidal anti inflammatory drugs, such as aspirin, ibuprofen, naproxen, etc), but not all do. Sometimes the fillers/binders/coatings of pills will have an ingredient that is not gluten free, or has lactose milk sugar in it, or other grain products that people react to. Soy is also another common culprit for us, especially GMO soy, that *** is in nearly everything.

Can you get coconut milk without the metasulphites ? We can get canned, organic coconut milk here in the USA, a can will last me a week's worth of coffee/tea drinks.

There is another person on this board who has made their own coconut milk by pouring boiling water over dried shredded coconut (that they buy in large quantities mail order) and letting it steep, then straining it.

CR5442 Contributor

It is possible that you are intolerant to Coconut. I had pulse tests with my acupuncturist recently and there were only two things i reacted to... gluten and coconut. Try some pure coconut oil or pure coconut and see if you get the same reaction.

thleensd Enthusiast

Could be any of these, really:

Guar Gum

Xantham gum

Sodium carboxymethyl cellulose

Distilled monoglycerides

Polysorbate 60

sodium metabisulphite

I can't do the gums, personally, and I try to avoid as many additives as possible. Only real way to know (if you want to chance it) is try coconut by itself.

Some people that react to trace amounts of corn have trouble with xanthan gum.

BTW, celery makes lots of people's mouths numb =) Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      6

      Manitol and mri

    2. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      6

      Manitol and mri

    3. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      6

      Manitol and mri

    4. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      6

      Manitol and mri

    5. - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Thankyou yes I read up on it beforehand , because or my trapped nerve when I have a bowel flare up it's impossible to keep still  which I will have to do for the MRI ,and it's so painful , and I know if this is what I'm thinking it to be it will cause me terrible issues , sometimes I get to the point where I just want to diagnose myself and act accordingly, because I've been at this year's , and I clearly have all the symptoms , it's so frustrating when you have all this going in and still feel no further ahead 😳
    • Scott Adams
      It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.