Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Relief From Vitamin E Skin Oil

Michelle1234

By Michelle1234
in Dermatitis Herpetiformis

Recommended Posts

Michelle1234 Contributor
Michelle1234
Posted

About 3 days ago I started having clear blisters come up through my skin that itch like crazy. I don't yet know if it is DH but if I itch it then it gets worse and more clear blisters come up wherever I've itched the skin. I've tried a number of things I had around the house to get it to stop and am having good luck with Vitamin E skin oil with soybean oil (not derived from wheat). Has anyone found this effective for itch relief on DH? I'm seeing the Dr for something else tomorrow so will see what she thinks it is.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I found it helps to keep rashes moisturized with something heavy-duty. Oil would count as heavy duty.

Michelle1234 Contributor
Michelle1234
Posted
  • Author

I found it helps to keep rashes moisturized with something heavy-duty. Oil would count as heavy duty.

What have you found that works for you? I tried coconut oil on the advise of my mom but it made it itch worse.

Thanks!

pricklypear1971 Community Regular
pricklypear1971
Posted

Vanicream during outbreaks, with a layer of Vaseline.

Ugly but effective.

My DH is under my arms, so it's very sensitive skin.

When the sores weep, I pack washcloths and ice packs under my arms to help stop the itching and the gross feeling.

Michelle1234 Contributor
Michelle1234
Posted
  • Author

Vanicream during outbreaks, with a layer of Vaseline.

Ugly but effective.

My DH is under my arms, so it's very sensitive skin.

When the sores weep, I pack washcloths and ice packs under my arms to help stop the itching and the gross feeling.

Thanks!

I don't know if I have DH (If I itch even just a little horrible little bumps come out and the itchiness becomes worse) but wondered if anyone who knows they have DH would mind doing an experiment with Vitamin E skin oil (from soybean not wheat). I slather it on very liberally and let it sit without disturbing it for maybe 5 min. Then I notice my itching is decreasing and then gone. I'd be curious if it worked for someone who knows they have DH. Please post your results. Periodically if any itching comes up I reapply the oil and it goes away again.

I'm also taking 400 I.U. Vit. E internally but that doesn't have to be part of the experiment.

I saw my Dr. yesterday. She had never heard of DH before. She suggested Benadryl and sent out an expensive food allergy blood test that isn't covered by insurance. If I can't figure out how to get rid of this on my own then I'll have to pay big $s to go to a holistic Dr.

Thanks!

Michelle

pricklypear1971 Community Regular
pricklypear1971
Posted

Anything that cuts off air to the rash tends to help, I've found.

If you want to find out if it's DH go on a low iodine diet, in addition to the gluten-free diet. Resolution under those circumstances is a pretty strong indicator.

Michelle1234 Contributor
Michelle1234
Posted
  • Author

Anything that cuts off air to the rash tends to help, I've found.

If you want to find out if it's DH go on a low iodine diet, in addition to the gluten-free diet. Resolution under those circumstances is a pretty strong indicator.

Thanks again. I did make my husband eat the asparagus in the house, I don't salt anything and we don't eat seafood. Other than that I'm not sure what to eliminate since a general search for iodine lists lots of fruit and veggies that I probably should be eating.

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Google "thyca" for low iodine diet guidelines. They have a cookbook, etc. free and online.

Michelle1234 Contributor
Michelle1234
Posted
  • Author

Google "thyca" for low iodine diet guidelines. They have a cookbook, etc. free and online.

Thanks! That was very helpful. Alot more stuff to avoid though <sigh>. I'm having good luck combating the itching but am not making any headway on the bumps so far.

Michelle

pricklypear1971 Community Regular
pricklypear1971
Posted

Thanks! That was very helpful. Alot more stuff to avoid though <sigh>. I'm having good luck combating the itching but am not making any headway on the bumps so far.

Michelle

If it's typical DH they will pop, then refill (or new ones form, I'm not sure...mine are small and in patches that run together). I am guilty of rubbing them til they pop, because I can't stand the weeping (The sores, not me...although DH does make me want to cry) under my arms. Mine pop for 3 days or so then dry up and scab over...which is when moisturizers are important.

DONT SCRATCH!!!! Put ice packs on it - helps stop itching.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    3. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    4. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    5. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      Am I nuts?

      By trents · Posted

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.