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What Do You Miss?


celiacchef

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Ryniev Apprentice

-Chocolate chip cookie dough ice cream.

So delicious makes a coconut milk cream called Chocolate Chip cookie dough that is gluten-free! It's not cheap but it's really, really good.

Open Original Shared Link


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love2travel Mentor

Potstickers - dumplings, fried egg rolls

You and me both. However, you can make your own potstickers! They are incredible. Sounds as though you are really into Asian cooking so you would really like "The Gluten Free Asian Kitchen". Excellent scratch recipes including your own nuoc cham, teriyaki sauce, potstickers...

Ryniev Apprentice

You and me both. However, you can make your own potstickers! They are incredible. Sounds as though you are really into Asian cooking so you would really like "The Gluten Free Asian Kitchen". Excellent scratch recipes including your own nuoc cham, teriyaki sauce, potstickers...

Thanks for the tip! I'll definately be looking into that book.

gfdig2004 Newbie

Pizza Hut pizza; Annie's soft pretzels with cheese; Turkey Sub; I can go on and on. New York style Bagels.

BeFree Contributor

"I think the chef has abandoned us. He has not been back since this first post back in October '11 so we may be talking to the air at this point."

LOL at the mysterious disappearing Chef.

I miss Taco Bell. :(

That cheap, junky goodness that reminded me of happy high school and college days. There's no substitute for that.

Amby Newbie

You guys are making me drool when I read what you miss lol!

Sparky84 Newbie

I miss the simplicity. I used to make many recipes using things like prepackaged cresent rolls etc. It's just harder now to make the same things. And of course going to parties or restraunts has many challenges.


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BeFree Contributor

"I miss the simplicity. I used to make many recipes using things like prepackaged cresent rolls etc. It's just harder now to make the same things. And of course going to parties or restraunts has many challenges."

I hear ya...it takes a lot more planning. Brown rice is now (by necessity) a huge staple of my diet, and it take 45 minutes (!) to cook it the old fashioned way.

Parties/restaurants are the hardest for me too. I never realized how much I depended on sharing food to bond with people, until now. It's so awkward. They all say, "This is good!" And you say, "It looks good!" Uh, yeah.

mushroom Proficient

I miss that if you want to bake a pie or cheesecake with a specific cookie crust, you can't just buy the cookies or take them out of the pantry -- no, first you have to bake the darned cookies!!! :blink:

IrishHeart Veteran

Brown rice is now (by necessity) a huge staple of my diet, and it take 45 minutes (!) to cook it the old fashioned way.

I gave that up when hubs was shopping and discovered Success Brown Rice 10 minute boil-in bags. This was not something I thought would be tasty at all---but I admit it, it works. ;) When you just do not have time, you may wish to use them. :)

IrishHeart Veteran

I miss that if you want to bake a pie or cheesecake with a specific cookie crust, you can't just buy the cookies or take them out of the pantry -- no, first you have to bake the darned cookies!!! :blink:

Total PITA.... :rolleyes:

For graham crust in my cheesecake, I use the Grainless Baker Graham Cookies --run through the mini- chopper ---add melted butter :)

mushroom Proficient

Total PITA.... :rolleyes:

For graham crust in my cheesecake, I use the Grainless Baker Graham Cookies --run through the mini- chopper ---add melted butter :)

Durn! Dem have bean flowers :rolleyes:

IrishHeart Veteran

Durn! Dem have bean flowers :rolleyes:

aw, crappers, I fergetted --sorry. :(

I don't do those myself right now. Garbanzo/garfava bean and I do not get along for some reason. mebbe in time?

love2travel Mentor

Not a dish but an ingredient that cannot be replicated. Authentic Japanese panko crumbs. Sure, you can make your own crumbs from bread heels, etc. but not panko. There is nothing else like them. Kinnikinnick sells their own version but they are just fine crumbs that are a far cry from panko. I rarely do breading but they certainly would come in handy from time to time.

Please tell me if anyone sees authentic gluten free panko crumbs!

BeFree Contributor

"I gave that up when hubs was shopping and discovered Success Brown Rice 10 minute boil-in bags. This was not something I thought would be tasty at all---but I admit it, it works. When you just do not have time, you may wish to use them."

Oh, those are gluten-free? I just haven't ventured much into exploring which packaged foods are safe or not, I've been sticking with the basic ingredients for ease of shopping. Thanks for the tip.

IrishHeart Veteran

Not a dish but an ingredient that cannot be replicated. Authentic Japanese panko crumbs. Sure, you can make your own crumbs from bread heels, etc. but not panko. There is nothing else like them. Kinnikinnick sells their own version but they are just fine crumbs that are a far cry from panko. I rarely do breading but they certainly would come in handy from time to time.

Please tell me if anyone sees authentic gluten free panko crumbs!

Glad I looked at this thread this morning! First quick rice, now Panko crumbs. :)

Jeff Nathan Creations makes All Natural, Certified gluten-free, DF PANKO flakes.

I found them in a Whole Foods in Florida while vacationing. (we do not have one where I live and let me say these stores are a celiac's paradise! :lol: )

It's a product of Israel, Manufactured for distribution by HKS Marketing, Bayonne NJ.

Open Original Shared Link

Open Original Shared Link

Karen was right. Even if the Chef who started this thread never comes back, we can help each other find what we need. :)

IrishHeart Veteran

"I gave that up when hubs was shopping and discovered Success Brown Rice 10 minute boil-in bags. This was not something I thought would be tasty at all---but I admit it, it works. When you just do not have time, you may wish to use them."

Oh, those are gluten-free? I just haven't ventured much into exploring which packaged foods are safe or not, I've been sticking with the basic ingredients for ease of shopping. Thanks for the tip.

Glad I could help. :)

Get yourself a copy of Cecelia's Marketplace gluten-free Shopping Guide.

She also has a gluten-free/DF/Soy free guide, too---which really helped hubs and me when I was first DXed and I could barely think, let alone create a shopping list. :blink: I could not tolerate dairy or soy either back then.

We no longer need it--- as we use minimal packaged foods and have become more adept at label reading. ( We passed it on to another celiac or I would have gladly mailed you ours. ;) )

There's a gluten-free/DF version, and a "plain" gluten-free version too!

Open Original Shared Link

love2travel Mentor

Glad I looked at this thread this morning! First quick rice, now Panko crumbs. :)

Jeff Nathan Creations makes All Natural, Certified gluten-free, DF PANKO flakes.

I found them in a Whole Foods in Florida while vacationing. (we do not have one where I live and let me say these stores are a celiac's paradise! :lol: )

It's a product of Israel, Manufactured for distribution by HKS Marketing, Bayonne NJ.

Open Original Shared Link

Open Original Shared Link

Karen was right. Even if the Chef who started this thread never comes back, we can help each other find what we need. :)

You are so right! Thread starters may not be thread continuers but we can be! :P

I wonder if those are true panko crumbs. It would be interesting to find out - the picture does not really look like it but it is hard to tell. I will look into it. I am officially now on a gluten-free panko finding mission. The nearest Whole Foods is literally probably about a 12-hour drive but I hear that a city only about 8 hours away may be getting one! ;)

IrishHeart Veteran

You are so right! Thread starters may not be thread continuers but we can be! :P

I wonder if those are true panko crumbs. It would be interesting to find out - the picture does not really look like it but it is hard to tell. I will look into it. I am officially now on a gluten-free panko finding mission. The nearest Whole Foods is literally probably about a 12-hour drive but I hear that a city only about 8 hours away may be getting one! ;)

The chef makes regular Panko crumbs and he came out with these gluten-free/Kosher ones to rave reviews.

It may be as best as it gets, hon. ;)

You can probably order them off the internet, but if you want, you know I will find some and mail them to you. I managed to make it this far in the car--1500 miles-- (I do not have to tell you about painful travel) and I can surely get to the post office. :lol:

BeFree Contributor

Thank you Irish Heart, I got some Success Rice at the store today. Very convenient as they're four to a box and they can get through a busy week of dinners for me. Thanks!

IrishHeart Veteran

Thank you Irish Heart, I got some Success Rice at the store today. Very convenient as they're four to a box and they can get through a busy week of dinners for me. Thanks!

You bet, hon. ;) I personally LOATHE waiting for long-cooking brown rice to cook and every single time, it invariably bubbles over and I have to clean up the mess (except for my risotto, which never does, but then, I am watching it like a hawk. :lol: )

Glad it helps you save time! They have larger bags, too--marked Family Size.

anabananakins Explorer

Fun thread! The best bit for me is realising that reading through all these lists of awesome foods no longer makes me want to throw myself on the floor sobbing. Score! It'll be 2 years in June.

I miss the spontaneity too. Trying to find a restaurant for a birthday dinner has been a bit of a pain.

Actual foods:

Ovalteenies

They were my favourite as a little kid (a staple at the school tuckshop) and I rediscovered them a few years before I went gluten free. Sigh.

Lebanese bread

Turkish bread

Cherry danish

Huh. It was way harder to think of things than it used to be.

mushroom Proficient

Huh. It was way harder to think of things than it used to be.

Happily, it gets harder all the time ;)

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    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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