Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sometimes I Wonder About My Husband And gluten-free Food

Britgirl

By Britgirl
in Coping with Celiac Disease

Recommended Posts

Britgirl Rookie
Britgirl
Posted

I love my husband, I really do. But he is still a bit of a dummy when it comes to my disease and diet. He's been around Celiacs for almost a decade, he knows the ins and outs of it.

We are going to his high school reunion next month and there is a buffet for the partygoers. Usual fare, rolls, salad, breaded fish, breaded chicken, pastries etc. He sent me the email today with the title FYI. I wrote back, well that won't work. He writes back, I kid you not "Can't you just scrape the bread off the fish?" :blink:

Um, no you dummy or I will die. I swear to goodness :lol:

And the caterer is making a special gluten-free meal for me so it's all good. B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


domesticactivist Collaborator
domesticactivist
Posted

You sure that wasn't a joke?

Britgirl Rookie
Britgirl
Posted
  • Author

He doesn't get the concept of cross contamination yet. He knows that I can't eat it but that is all he knows pretty much. We had a talk about it after our exchange ;)

heidi g. Contributor
heidi g.
Posted

you will die? o.O

psawyer Proficient
psawyer
Posted

you will die? o.O

Figuratively. While gluten will not kill a celiac they same way cyanide will kill someone, the long-term effects of eating gluten definitely reduce the life expectancy by up to ten years.

And you may feel like you are dying due to the unpleasant effects of gluten in the short term.

Britgirl Rookie
Britgirl
Posted
  • Author

Figuratively. While gluten will not kill a celiac they same way cyanide will kill someone, the long-term effects of eating gluten definitely reduce the life expectancy by up to ten years.

And you may feel like you are dying due to the unpleasant effects of gluten in the short term.

Yes, this exactly. I won't die straight away, but eating gluten is like slowly poisoning oneself. Very unpleasant indeed.

kwylee Apprentice
kwylee
Posted

And the caterer is making a special gluten-free meal for me so it's all good. B)

Hey! Maybe the caterer's cute! :lol: (Just kidding!!)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I love my husband, I really do. But he is still a bit of a dummy when it comes to my disease and diet. He's been around Celiacs for almost a decade, he knows the ins and outs of it.

We are going to his high school reunion next month and there is a buffet for the partygoers. Usual fare, rolls, salad, breaded fish, breaded chicken, pastries etc. He sent me the email today with the title FYI. I wrote back, well that won't work. He writes back, I kid you not "Can't you just scrape the bread off the fish?" :blink:

Um, no you dummy or I will die. I swear to goodness :lol:

And the caterer is making a special gluten-free meal for me so it's all good. B)

I thought about you last night. All of The Guys (FIL, BIL, Hubs, Kid) had gluteny pasta and I was The Gluten Police at my house last night. Hubs finally lost it when I got irate when he put the freshly scrubbed pots on a section of a cabinet I hadn't scrubbed 3x with soap and water.

Ironically, they all would have been ok eating my corn/quinoa pasta. Rolling my eyes.....

Britgirl Rookie
Britgirl
Posted
  • Author

I thought about you last night. All of The Guys (FIL, BIL, Hubs, Kid) had gluteny pasta and I was The Gluten Police at my house last night. Hubs finally lost it when I got irate when he put the freshly scrubbed pots on a section of a cabinet I hadn't scrubbed 3x with soap and water.

Ironically, they all would have been ok eating my corn/quinoa pasta. Rolling my eyes.....

I don't know what it is about the cross contamination part of Celiac that evades people. I am rolling my eyes with you lol

Roda Rising Star
Roda
Posted

I don't know what it is about the cross contamination part of Celiac that evades people. I am rolling my eyes with you lol

Me either. To me it's not any different than making sure you cut up your fruits and veggies first on a cutting board before cutting meat. And not contaminating surfaces with raw meat and disinfecting afterward. That seems so obvious to most people. When I relate it to gluten I get a blank stare(not from hubby, he is great and understands) from people especially ones in our families. My MIL was visiting for several days last week. I did get glutened the evening after she came. I don't know if it was the stew she made and brought over(She has made it before and I've been fine, yes all gluten free ingredients, but doesn't rule out CC) or from the cheese rolls I made. I ran out of my regular tapioca flour and used a different brand I had never used before. So after that I watched her like a hawk just in case. She said she was washing her hands, but upon close inspection I noticed she was just "rinsing" them under the water and NO soap! :blink: She just didn't get it. That's almost as good as my dad getting mad at me and accusing my mom and I treating him like a child while he was visiting a couple of weeks before. He said he was capable of not CCing my jelly, but then ate a hamburger on a wheat bun and didn't wash his hands after(as he touches things all over my house). Let's just say my house is the cleanest it's been in awhile since all of this. :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.