Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vision Issue, What Is This?


AVR1962

Recommended Posts

AVR1962 Collaborator

This has been going on for 8 months. While other symptoms have gone away this has not. Please tell me what I am describing and how to help it:

blinds on windows literally blind me

striped shirts, same, pattern seems to bright

escalator lines in the steps are too bright and blur my vision so I can't see the step properly

lots of bright leaves scattered on the walks are too bright and overwhelm my vision

a friend sitting across the table from me with sun reflecting on a white wall makes it hard to see my friend


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CR5442 Contributor

It's really wierd isn't it?! I go through phases of vision issues. I remember when i was younger I was always squinting, to protect my eyes from the light. Right now I get a lot of images staying as shadows in my eyes for minutes after stopping looking at said thing... say a TV or a light. Since I've been on a liver detox and also sorting out the adrenal fatigue things seem to have gotten better. I went out today in the sunshine without my sunglasses... so must be slightly better.

do you have any idea what might cause yours?

captaincrab55 Collaborator

It's Dry Eyes & Glare for me... I'm using RESTASIS for the Dry Eyes & Transition Lens in my glasses, but the Reflected Glare is my Biggest Eye Issue... Transition Lens just don't help the reflective glare here..

domesticactivist Collaborator

On a hunch I googled light sensitivity and cod liver oil. It looks like a potentially promising connection. We use green pastures fermented cod liver oil.

Skylark Collaborator

Have you gone to an ophthalmologist? They're sometimes quite good at diagnosing odd vision problems.

rosetapper23 Explorer

I attribute my own vision problems to my difficulties associated with Vitamin A--I don't think I absorb it well, and it's too inflammatory for me to take as a supplement. If there's too much white around me outside(like tents at a craft show), I become dizzy and feel blinded. For me, Vitamin A deficiency has caused night blindness since I was 11 and sensitivity to bright light. If there's too much white around me outside(like tents at a craft show), I become dizzy and feel blinded. However, I can't wear sunglasses, because then my vision is too impaired to see (due to the night blindness). My eyes are also pretty dry, but I haven't yet started to use drops. I take cod liver oil stirred into a little bit of yogurt in the evening in my attempt to get SOME Vitamin A into me.

captaincrab55 Collaborator

Have you gone to an ophthalmologist? They're sometimes quite good at diagnosing odd vision problems.

I was sent to a Neuro Ophthalmologist by my Ophthalmologist several years before I was diagnosed with Celiac in June of 09... The N O did save my sight in my left eye, neither the O or N O mentioned taking any vitamins...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Thanks so much for the replies. I understand that vit A supplements are too risky because of the possible side effects, occuring to my doc......it is one of those that the body does not produce naturally and so can become toxic in large amounts. I understand that cod liver oil is a good substitute. If I have been misinformed let me know. I think I might be hunting me down some cod liver oil!!

sandsurfgirl Collaborator

I would definitely go to the doctor and have your eyes checked. Maybe they even need to do a CT scan or something to rule out anything bad. I wouldn't let that one go or think it's just celiac related. It's better to just be certain.

AVR1962 Collaborator

I would definitely go to the doctor and have your eyes checked. Maybe they even need to do a CT scan or something to rule out anything bad. I wouldn't let that one go or think it's just celiac related. It's better to just be certain.

I have had my eyes checked and a MRI was performed with no results. Eye doc asked if I had been tested for diabetes which I had. He did give me a prescript for driving glasses but that made no difference.

AVR1962 Collaborator

Follow up- bought some cod liver oil tabs which contain 1250 IU vit A each (25% of daily allowance) and 130 IU vit D. I am taking 3 tabs a day like the bottle suggests and I am noticing a big difference already. My body was in need of vit A!!

CR5442 Contributor

Follow up- bought some cod liver oil tabs which contain 1250 IU vit A each (25% of daily allowance) and 130 IU vit D. I am taking 3 tabs a day like the bottle suggests and I am noticing a big difference already. My body was in need of vit A!!

I think I might try that!

sandsurfgirl Collaborator

Wow, so the docs had no answers for you? Isn't that just typical? Just like with celiac. They shrug their shoulders and we have to be our own physicians. Glad the supplement is helping.

AVR1962 Collaborator

Wow, so the docs had no answers for you? Isn't that just typical? Just like with celiac. They shrug their shoulders and we have to be our own physicians. Glad the supplement is helping.

My docs have not helped me with any of my symptoms. I have had to find answers for them all. Thank goodness we live in the Internet age!

CR5442 Contributor

I know what you mean! My dietician said 'well, itching isn't normal', and I said 'yes, I know' hoping that she would have some sort of idea... but no! My herbal lecturers are brilliant though, it's like they are completely tuned in to the whole person. I've been asked to be a patient as they think I'm unusual - a good learning patient... though probably not as unusual as all that by the sounds of it!

blueshabooMoon Apprentice

Follow up- bought some cod liver oil tabs which contain 1250 IU vit A each (25% of daily allowance) and 130 IU vit D. I am taking 3 tabs a day like the bottle suggests and I am noticing a big difference already. My body was in need of vit A!!

Wow..I am desperate also vision screwy issues eyes tests perfect, I am going to try cod liver oil also.Thanks for sharing, Terrilynne

domesticactivist Collaborator

I'm glad it helped! It might be good to tell your opthamologist and other doctors the good news. That way it will be in their mind as a possibility for other patients.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748

    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.