Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Group In Charleston, Sc?


coolpawduke

Recommended Posts

coolpawduke Newbie

Does anyone know of a support group in the Charleston, SC area? I just moved to Mt. Pleasant at the end of December. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi, this is what I found in SC (right from this site :) ). I am not sure if it is close to you or not.... I hope it is helpful!!!

South Carolina

Columbia - Support Group

Contact 1: Peggy Smith

Palmetto Celiac Support Group

1508 Anthony Drive

West Columbia, SC 29172

Tel: (803) 775-9466 or (803) 755-7291

E-mail: PSmithCola@AOL.COM

Florence - Resource:

Contact: Lea E. Marshall

1214 Hillside Avenue

Florence, SC 29505

Tel: (803) 665-6290

coolpawduke Newbie

Thanks for the info! I'm still looking for something a little closer. Columbia is about 2 hours away. Thanks again though!

  • 10 months later...
Nat'sMOM Newbie

My daughter has celiac disease and we live in Goose Creek, SC.....Have you had any luck finding a support group in the area? I have not, but maybe we could get together.

Kristi

  • 1 month later...
Paiton's mom Newbie

Hi to those in the Charleston, SC area. I've been trying to find others with Celiac so that my daughter and I could start a support group. We live in N. Charleston, and would love to hear from anyone who would like to form a group.

Just drop me a line and we can set up a meeting.

Thanks,

Cathey

  • 4 months later...
Skijoe Newbie
Does anyone know of a support group in the Charleston, SC area?  I just moved to Mt. Pleasant at the end of December.  Thanks!

<{POST_SNAPBACK}>

Hi

There is a support group started by Sara Hinkle,RD of Roper St Francis hospital.She is a Dietician at the hospital

Her phone number is 402 1099.

There is a scheduled meeting at 6:00 PM Aug. 15 at the St Francis Mall Classroom

Joe

MySuicidalTurtle Enthusiast

Have you guys found any gluten-free restaurants in Charleston or Columbia, South Carolina?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
luckycharm Newbie

Hi,

I am new to this board. I had a blood test done last week and waiting for the results. My Neurologist is insisting that I have celiac disease, but my GI dr. is saying that he doesnt think so. I also have MS too. But I chose this board because I saw Chareltson SC. My husband is in the military and we are moving to Charleston in March 06. I was very happy to see that there is a support group for celiac disease in the local area. I would love to talk to ya'all about things. Thanks and I hope that ya'all have a wonderful day. Hope to hear from ya'all soon...

luckycharm

  • 1 month later...
Brambledoula Newbie

Hi! I'm new to this group, my 4 year old son has celiac and I'd love to meet some people! We live in Ladson. Will there be another of the support groups at roper?

  • 2 weeks later...
gluegluten Newbie

i am from charleston.

m/22

i am fairly new to this diet...my mom thinks i may have celiac disease, so i am trying the gluten-free / wheat free diet, to see if i gain weight.

gluegluten Newbie
Have you guys found any gluten-free restaurants in Charleston or Columbia, South Carolina?

<{POST_SNAPBACK}>

i'd suggest going to whole foods [it's a grocery store]...man i found a lot of good stuff there.

-s

  • 3 weeks later...
mcsteffi Rookie

I would love to meet anyone in the charleston area with celiac. My 23 month old son was just dignosed and I am overwhelmed! I am trying to make sure he gets the correct foods and it is stressing me out. A support group is just what I need! Has anyone been to a meeting in this area? Are they helpful?

Stef.

gluegluten Newbie
I would love to meet anyone in the charleston area with celiac.  My 23 month old son was just dignosed and I am overwhelmed!  I am trying to make sure he gets the correct foods and it is stressing me out.  A support group is just what I need!  Has anyone been to a meeting in this area?  Are they helpful?

Stef.

<{POST_SNAPBACK}>

i am new to celiac disease myself, and eating gluten-free...i am from the charleston are...

we need to get a group going.

i am 23 years old.

-s

mcsteffi Rookie
i am new to celiac disease myself, and eating gluten-free...i am from the charleston are...

we need to get a group going.

i am 23 years old.

-s

<{POST_SNAPBACK}>

I talked to a lady at Earth Fare the other day and she said she thought there is a group in Charleston but she didnt have the info right there. I told her I would come back and check to see if she found it. I havent heard of anything else in this area.

Stephanie

gluegluten Newbie

maybe we should start one @ Whole Foods in Mt. Pleasant since they have a lot of gluten-free items.

mcsteffi Rookie
maybe we should start one @ Whole Foods in Mt. Pleasant since they have a lot of gluten-free items.

<{POST_SNAPBACK}>

My sons dr just refered us to the dietician from St. Francis listed in this thread. I am going to try to make an appt w/ her next week or the first of the following week. The dr. did mention that she had a celiac support group. If I find out any more information about the groups after meeting w/ her I will post it.

gluegluten Newbie
I talked to a lady at Earth Fare the other day and she said she thought there is a group in Charleston but she didnt have the info right there.  I told her I would come back and check to see if she found it.  I havent heard of anything else in this area. 

Stephanie

<{POST_SNAPBACK}>

every even number month.... at roper hospital on the 3rd monday ... of every month...

so the third monday in december is when the next meeting is. just giving you a heads up.

mcsteffi Rookie
every even number month.... at roper hospital on the 3rd monday ...  of every month...

so the third monday in december is when the next meeting is. just giving you a heads up.

<{POST_SNAPBACK}>

So have you been to one of those meetings? Are they any good?

  • 3 weeks later...
gluegluten Newbie
So have you been to one of those meetings?  Are they any good?

<{POST_SNAPBACK}>

i haven't been to one of those meetings, but i plan on going to one to see how they are.

  • 2 weeks later...
mcsteffi Rookie
i haven't been to one of those meetings, but i plan on going to one to see how they are.

Hey!

I just got the flyer for the meeting in December. Its the 12th. I am going to try really hard to go but being so close to the holidays I might not be able to. Hope to see you there!

stef.

stephanie

  • 2 years later...
DSKchucktown Newbie

I am new to Charleston and looking for a good GI doctor. I have not been tested to confirm I have celiac disease, but my Mom and brother both have the disease and I have a strong suspicion I do as well. If anyone can recommend a doctor with experience dealing with celiacs in the Charleston area, I would appreciate it.

thanks!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,110
    • Most Online (within 30 mins)
      7,748

    JD Payton
    Newest Member
    JD Payton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.