Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is A Contact Dh Reaction Ever Extremely Short


domesticactivist

Recommended Posts

domesticactivist Collaborator

Last night I was playing cards with my son and he kept leaning his face on his hand. All of a sudden he said, "I have hives on my face." I looked and he had a rash where his hand had touched. It did not look like the hives he's had in the past. They were tiny pointed blisters, all right next to each other.

Then I realized the cards were old and dirty... They were a deck he's never played with, that my partner and I used to play with all the time while eating gluteny snacks! I felt so stupid!

I had him wash up. The rash disappeared and stopped itching in less than an hour.

His hands showed no sign of a rash, and he's never had a rash from gluten before that I know of, he used to get hives frequently and used to get eczema, too.

What does this sound like to you?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Mystery contact dermatitis rash. Allergy.

It happens.

I had one last night start up on my wrist, I went into the bathroom and washed it off. Half an hour later, it was gone. I thought I has scrubbed down enough and thrown my clothes into the washer yesterday after being outside, but I must have missed something. All it takes is my leaning my belly up to the desk, touching the exposed shirt to the desk edge, and then resting my wrists on the same edge when I type, just like I'm doing right now. The only difference was that I had worn my husband's jacket outside instead of mine. He must have some sort of stuff on the inside of the jacket, I should wash it.

I have to wipe down the desk edge periodically, especially when the dog comes over and I pet him. Very large, hairy dog. And like all dogs, likes to roll in stuff.

I can do this too, with some kinds of hay. I'm really not OCD, but I play one at home every time the frigging house dog sneaks into the barn !

pricklypear1971 Community Regular

DH can come on fast. Unfortunately, it doesn't leave that quickly in my experience.

Sounds like dermatitis or hives (thank goodness!).

domesticactivist Collaborator

Yeah, I started wondering if DH is ever something that celiac people who never showed it before could develop when I saw his rash. I was really glad it disappeared quickly. It sucks to be itchy :(

itchy Rookie

There appears to be little research about the range of responses that people have.

Therefore it is hard to distinguish between direct responses to gluten, and coincidences.

From my limited knowledge of the process, I am skeptical that a response would develop so quickly from a very limited contact like playing cards, and then disappear within minutes. But who knows?

We need research to tell us the range of responses we can expect, so that we are not led astray by incorrect associations. If we incorrectly misattribute a response then we miss the real cause of a flare.

(In September I worked a whole month in direct contact with wheat and wheat dust and my DH improved slowly the whole time. Recently I've had flares, and can't associate them with any wheat contact. Am I suffering from long delayed response to my work in September, or is something else at play?)

pricklypear1971 Community Regular

There appears to be little research about the range of responses that people have.

Therefore it is hard to distinguish between direct responses to gluten, and coincidences.

From my limited knowledge of the process, I am skeptical that a response would develop so quickly from a very limited contact like playing cards, and then disappear within minutes. But who knows?

We need research to tell us the range of responses we can expect, so that we are not led astray by incorrect associations. If we incorrectly misattribute a response then we miss the real cause of a flare.

(In September I worked a whole month in direct contact with wheat and wheat dust and my DH improved slowly the whole time. Recently I've had flares, and can't associate them with any wheat contact. Am I suffering from long delayed response to my work in September, or is something else at play?)

I would assume (and you know what they say about assumptions) that since iga stays in your skin a long time (you hear about people suffering from DH for years on a gluten-free diet) that the exposure to wheat COULD be showing up now as DH. Do you have other gluten symptoms that showed up then, or now?

DH is a weird thing. Can go into spontaneous remission while still on a gluten-free diet. It also is reported to flare with salicylate and bromine exposure.

domesticactivist Collaborator

Great point itchy!

My son has gotten hives from numbers of things. As a baby he'd get them mildly from time to time. When he was about 3 he got them while playing in the back yard so badly that they covered his entire body in seconds and were huge and bright red. He's gotten them since then but usually it seems to be correlated with high pollen counts and an all over body thing, an not as severe. He doesn't have asthma any more, either.

I'm thinking this was from something he touched since it was on his face only where his hand had been. His hand didn't get any hives, though. Maybe the skin on his face is more sensitive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchy Rookie

Don't get me wrong, I think one can get hives or other similar reactions in seemingly a split second, and have them go away almost as quickly. I've had it happen. Once I found myself covered in hives in the middle of the night and scratched (clawed) myself silly. They were gone in the morning without a trace.

My point was that I get the impression that DH doesn't come and go quite that quickly. I think it is different process.

domesticactivist Collaborator

Thanks for your input, it does sound like something other than DH.

lovegrov Collaborator

Yep, not DH.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.