Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Aren't Doctors Up To Speed?


SarahJimMarcy

Recommended Posts

pricklypear1971 Community Regular

Sadly I have talked to two people (not a big sample but telling). One of my friends who just started her residency when I asked her what she knew about celiac and she told me that it was a disease you only have to look for in children. The boyfriend of my friend who just finished his residency in GI said that anyone who hasn't had a biopsy and thinks they have celiac should go back on gluten to get the testing as way too many people think they have celiac who really don't have any problem with gluten. Being this is what people are learning in med school right now, I'm not too hopeful about the current generation of doctors knowing much about celiac.

Yes, one must remember the students are being instructed (and therefore their learning reflects that of their instructors).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Di2011 Enthusiast

There is no economic / financial incentive for the medical industry to diagnose gluten intolerance.

There aren't many in the business who would say at the end of your consultation:

"So go home and google 'gluten free diet'. Get onto this today. Call me once a week to tell me whether your symptoms are improving. If it works for stick to it for life. If it doesn't come and see me again so we can consider other diagnosis."

Patient: "What no prescription?"

DR: "No but we'll get you tested for deficiencies. You should eat lots and a variety of fruit and veg and not too much of the processed products .. just like any good diet"

saintmaybe Collaborator

There is no economic / financial incentive for the medical industry to diagnose gluten intolerance.

There aren't many in the business who would say at the end of your consultation:

"So go home and google 'gluten free diet'. Get onto this today. Call me once a week to tell me whether your symptoms are improving. If it works for stick to it for life. If it doesn't come and see me again so we can consider other diagnosis."

Patient: "What no prescription?"

DR: "No but we'll get you tested for deficiencies. You should eat lots and a variety of fruit and veg and not too much of the processed products .. just like any good diet"

I was just telling someone this today, and they were incredulous. DO I think there'san evil cabal out there actively impeding celiac research? No.

But there are other ways for celiac research and teaching not to progress.

That study you conducted? Even though it was well-controlled and exhaustively researched? Don't have to publish it, or if we do,we'll bury it somewhere completely uninteresting where only other experts *might* find it.

That research you want funded? Is this going to result in an awesome new drug that we can capitalize on? No? Well, good luck with that then, don't call us, we'll call you. Don't let the door hit you on the *** on your way out.

Not to mention the agribusiness, which has a STRONG financial incentive to keep their products as "heart healthy!" and wonderful as possible.

It's financial collusion happening on a massive, but not centrally controlled scale.

Di2011 Enthusiast

DO I think there'san evil cabal out there actively impeding celiac research? No.

I agree with you on this point. I'm not much into conspiracy theories B)

Di2011 Enthusiast

But I do think dollars drive decisions more than is healthy for us and the planet

srall Contributor

Sadly I have talked to two people (not a big sample but telling). One of my friends who just started her residency when I asked her what she knew about celiac and she told me that it was a disease you only have to look for in children. The boyfriend of my friend who just finished his residency in GI said that anyone who hasn't had a biopsy and thinks they have celiac should go back on gluten to get the testing as way too many people think they have celiac who really don't have any problem with gluten. Being this is what people are learning in med school right now, I'm not too hopeful about the current generation of doctors knowing much about celiac.

As someone who tested negative for celiac, I have a hard time with doctors who assume that a negative celiac test means that gluten isn't the problem. My poor younger brother has been suffering for years because of a negative blood test for celiac that his GI did. This poor man felt great on the Adkin's diet but he's convinced that it was the fact that he wasn't eating sugar. His health keeps declining (stomach issues, depression, diabetes) but because celiac is ruled out it must not be gluten. Unless a test confirms something, or unless there's a drug to treat a symptom, then it's all in the patient's head...and it's so frustrating that so many serious symptoms can be alleviated for people just by changing diet but this information just isn't getting out there.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,600
    • Most Online (within 30 mins)
      7,748

    rita jean
    Newest Member
    rita jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.