Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To Go Or Not To Go To New York City


MJ-S

Recommended Posts

MJ-S Contributor

I would love your thoughts about what I should do with this situation.

My 20-something cousin from Spain is coming to visit for Thanksgiving. We have planned to go to New York City for a few days (Sun - Tue beforeThanksgiving).

She has visited several times before and we've been to New York each time, so she's already seen it,but she is super excited about being there during autumn (something about a movie with Richard Gere lol).

This is the first time she's visited since I went gluten/dairy/and now soy free, and I'm super concerned about getting sick while she's here. It's going to be enough of a challenge hanging out where we live in Boston. I've stopped going to all restaurants for months now, so I'm going to be taking some risks just going out around here, nevermind travelling where I have to do all three meals out.

I haven't yet managed to take a trip without getting horribly sick. No matter what I order, I'm just very sensitive to cross-contamination. When I do get sick, trust me, nobody should be around me. I don't want to make the rest of her trip miserable seeing as how we will be in tight quarters - shared hotel room, car ride, etc. Plus, I will have to do all the driving there and back, no matter what condition I'm in.

To complicate matters, she had a serious allergic reaction of her own this week to possibly anisakis (in fish) and the doctors have said no fish for now, so my only "safe" option - sushi - which I was relying on, is now out.

I'm considering cancelling the New York portion of the trip. She will be disappointed, of course. I don't want this disease to rule my life, but at the same time I'm just not sure if the risk is too high for this particular week. Not only so we can enjoy the week together, but also because I can't afford to be sick for my favorite holiday and first gluten-free Thanksgiving, which I am hosting, AND my birthday, which falls this week as well.

Should I risk it and go? Or wuss out and stay home?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

You're anything but a wuss, but honestly at this point if I were you I'd stay home. You and she can still have fun and a nice visit without you risking getting sick.

In time, you will be able to navigate a trip like that but right now, considering everything, I think you'd be better off sticking closer to home.

Since she's seen NYC already, hopefully she will understand.

Skylark Collaborator

It's only three days. If I were you, I'd pack an ice chest full of safe food for the trip. Hotels usually have ice so you can keep your food cold pretty easily. If you can find a hotel room with a microwave it will make things easier, but you could even get a cheap, small microwave at WalMart or Sears to bring with you. I've seen them on sale as low as $30. Alternatively plan on food that's good cold like salad, fruit, and sandwiches. Eat your breakfasts and dinner at the hotel, and pack a non-perishable lunch that you can eat on the go for Monday.

Gluten-Free Fun Rookie

It makes me so sad to read this post. New York City is a wonderful place for people with Celiac. We have many restaurants that go above and beyond the average restaurant to make a safe meal for those people who require a gluten-free meal. Restaurants like Heartland Brewery (Midtown West), Bar Breton, Nizza NYC, Rosa Mexicano, and so many more are certified in the Gluten-Free Restaurant Awareness Program. They prepare meals safely, fully understand cross-contamination issues, and have well-trained staff members all willing to accommodate you.

We have a 100% gluten-free bakery (Tu-Lu's), a 100% gluten-free store (gluten-free NYC), 5 Whole Foods, 2 Trader Joe's, 2 Fairways, and at least 100 health food stores that sell gluten-free food.

Please reconsider staying home and come to NYC next week. Do not let Celiac take over your life.

modiddly16 Enthusiast

I second that. NYC is an AWESOME place for celiacs. There are so many more options than I think you even realize! Do a google search, or search this site. Definitely bring snacks in case you need something quick but definitely don't let celiac deter you from coming to NYC!

MaryJones2 Enthusiast

There is also Pure Food & Wine (vegan), Risotteria (gluten-free restaurant), Bloom's Deli and a dozen other places that I can't think of that have gluten free menus that can probably handle gluten-free/df/sf to some degree. You can also hit up the NYC Celiac Meetup group and see if they have suggestions.

AndrewNYC Explorer

I am gluten dairy and soy free and I live in Manhattan so I can provide some advice. While I don't eat out much, two places come to mind that I could survive on for a week in NYC if I had to. They would be Whole Foods prepared foods section and Peters Diner on the upper east side. Blooms deli near grand central is also okay for this diet. The other places people listed in this thread are good gluten free places, but beyond that I am not sure how far you will get with both dairy free and soy free. So if I were you I would stay near Whole Foods Columbus Circle if possible. It has the widest prepared foods area maybe of all the WFs in manhttan and you can get three meals a day there if needed. Ingredients are posted and I have never had a cross contamination issue. The owner of Peters is easily accessible, he just kind of hangs out in the diner all day, and is willing to help with negotiating the menu and checking ingredients. Its like a Dennys menu geared towards gluten free, so a lot of the stuff may have dairy or soy, but I bet he can help you figure that out and still get plenty of variety to eat. Blooms works too but I am not sure there is anyone like an owner there who can help negotiate the menu and the kitchen for you, though the waitresses are fairly knowledgeable.

Often times when I travel I find a chef type service to make food for me that I can store in a fridge at the hotel. I dont have any to recommend in NYC but you might find. I think eating at whole foods will be less expensive for you though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



maximoo Enthusiast

so did you go to NY or not?

MJ-S Contributor

I did not go. Thank you everyone for the advice and suggestions. The next time I visit NY I will try these places. This time around it was just too much for me to deal with, since I need to avoid dairy and soy as well as gluten. We had a wonderful time in Boston and took some day trips instead. I only risked a couple dinners out, and stayed healthy for the week. Thanksgiving dinner was fantastic, too!

ElseB Contributor

I went to New York for the first time this past September and was overwhelmed by the number of safe places to eat. Now, it took some planning and research. I researched ahead of time so that I knew what restaurants were located where. But some days we ate lunch or dinner twice just to fit in another restaurant! It was the first time travelling when I didn't have to dip into my supplies of snack bars and cereal that I brought with. I agree with all the suggestions other posters have made. Another great restaurant that I don't think anyone mentioned is Candle Cafe.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.