Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Immediate Reaction?

samuella

By samuella
in Coping with Celiac Disease

Recommended Posts

samuella Apprentice
samuella
Posted

Is it possible to have an immediate reaction to gluten as a celiac, not an allergy? As in, you are eating something and feeling it right then?

Tonight I was at a friend's house and she had bought gluten-free cookies for me - very sweet of her. The package said gluten-free, the ingredients looked fine, but I didn't recognise the brand. It was an unopened box. But as I was eating it I started feeling really, really weird - a bit faint, my face felt heavy, my head felt foggy. It went away after a few minutes. I'm now (about four hours later) having some digestive disturbances, but that could be a coincidence. I've never been glutened so I don't know how I react.

Could I have been glutened? Or was it just a weird fluke?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

I have read that it is not possible for you to feel it immediately because it takes a little for the immune response, the paed GI also said the same thing the other day, but I also know from this site that there are lots that don't match up with what the medical community say and believe. So maybe they are wrong on this too? I personally have reactions start around 2-3 hours after eating.

T.H. Community Regular
T.H.
Posted

It's possible to have a fairly quick reaction, yeah. However, if this is a new reaction for you, I would write down what the ingredients you were eating and pay attention for the future, just in case it's a new allergy. A couple of my allergies (which I didn't know about until after going gluten-free) make me react similar to what you describe. These also tend to cause internal inflammation and gastro disturbances in many people.

For myself, I reacting to gluten within 20 minutes, and if it's bad, it happens in 1-2 minutes after eating. However, I believe that my own early reaction is gluten ataxia. I know of a little girl who reacts within minutes as well, although here reactions are gastro related. It just all comes back up or goes through her as soon as it hits her tummy.

kwylee Apprentice
kwylee
Posted

I react with the wierd lightheaded feeling within 5 to 10 minutes of ingesting gluten, dairy or soy. It subsides within 30 minutes to an hour. All neuro, I've not had much intestinal disturbance, perhaps because I always test new foods by eating a few bites and waiting. Or perhaps because gluten doesn't affect me that way.

bigbird16 Apprentice
bigbird16
Posted

I get a pretty quick reaction -- under 10 minutes, starting with a hazy feeling and ataxia and moving on to other fun stuff.

samuella Apprentice
samuella
Posted
  • Author

Thanks everyone. I feel fine today and I looked up the brand of the cookies and they seem to be well regarded, so I think it was probably just a fluke. It sounds like quick reactions can happen but not *so* quick I'd feel it while eating it, and the dodgy guts a few hours later was probably just a coincidence. It's so easy to see celiac/gluten in everything that happens! :)

lovesaceliac Newbie
lovesaceliac
Posted

My husband can usually tell within minutes of eating the offending food (always cross contamination only, he never intentionally eats gluten and we are very careful.) His first symptom is "brain fog" which goes away after a while. His worst symptoms appear the next day: severe joint pain, extreme fatigue (usally spends an entire day asleep in bed), followed by crushing depression/anger. Not real fun to live through or live with.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lemontree1 Rookie
lemontree1
Posted

Is it possible to have an immediate reaction to gluten as a celiac, not an allergy? As in, you are eating something and feeling it right then?

Tonight I was at a friend's house and she had bought gluten-free cookies for me - very sweet of her. The package said gluten-free, the ingredients looked fine, but I didn't recognise the brand. It was an unopened box. But as I was eating it I started feeling really, really weird - a bit faint, my face felt heavy, my head felt foggy. It went away after a few minutes. I'm now (about four hours later) having some digestive disturbances, but that could be a coincidence. I've never been glutened so I don't know how I react.

Could I have been glutened? Or was it just a weird fluke?

Thanks!

There has been a time or two that I felt exactly like this while eating something.

Korwyn Explorer
Korwyn
Posted

I have reactions while I'm in the middle of eating something. The first time this happened I was about 1/3 of the way through a bowl of chili, and I noticed both my ankles and knees were aching and hurting. I didn't make the connection at that time, so I finished the bowl. By the time we were done with lunch I felt like I had the flu in all my joints and I could barely think my brain was so fogged.

Leper Messiah Apprentice
Leper Messiah
Posted

Initial reaction with brain fog, feeling spacey etc. This lasts max 24 hours then brief respite for a day or so before the fatigue sets in and doesn't leave me for 2 weeks, almost exactly to the day.

aeraen Apprentice
aeraen
Posted

Within the hour for me, sometimes closer to 15 minutes. Mad dash to the bathroom. :o

My niece was diagnosed as an infant, and she throws up within 5 minutes. My SIL considered it an easy way to train babysitters who thought "One little cracker won't hurt."

TB4me2000 Newbie
TB4me2000
Posted

If it's gluten, I know in about 20 minutes. Something that just doesn't sit well in my sensitive, healing stomach/intestines usually takes a few hours for me to realize something's not quite right.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,143
    • Most Online (within 30 mins)
      7,748
    Tracy Williams
    Newest Member
    Tracy Williams
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.