Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice Needed For Almost 5 Year Old

thegirlsmom

Recommended Posts

thegirlsmom Apprentice
thegirlsmom
Posted

My daughter is almost 5 years old(Jan 4) and is still having big issues with staying dry through the day. In any given day she seems to change her undies due to leakage, and sometimes she doesn't make it in time. She is the youngest of 4 girls and very independent, so she has always taken care of things by herself.

We have gone through a lot of frustration thinking she was just being lazy, disobedient, and just didn't care. We have tried many strategies to motivate her and any time she has motivation(candy, swimming, etc.) she miraculously stays dry for weeks/months - and then once the motivation is gone we are back to square one.

Sometimes I even question if she can feel when she needs to go.

A few months ago I started exploring the idea of her having a dairy allergy and taking dairy away seemed to help - for a while. Now she doesn't want to be dairy free and she sneaks it when I am not looking. Since Halloween she has been eating chocolate because it is gluten free(but not dairy free) and she has been having more accidents

I - Mom - have celiacs so she has a very limited amount of gluten. However, she does get some when we are out from adults who accidentally feed her the group snack instead of the one I packed.

She seems to get D a lot. And her hair seems to fall out.

The Dr. said he saw no proof that urinary issues were due to food allergies.

Has anyone else had any problems with bladder control due to gluten/dairy? I would love to get her tested but we are limited by finances and Insurance won't cover so what tests should I request?

And how do I get her teachers to stop feeding her crackers?

I am at my wits end here and would really appreciate help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

Okay, I have to admit that I don't have experience with a child who has had bladder issues due to dairy or gluten sensitivity. However, my grown daughter (who I believe DOES have celiac, but she refuses to get tested) had issues at the same age. About that time, I read a book written by a female urologist who suggested that some immature bladders cannot tolerate bananas. I began to notice when the instances of incontinence occurred, and--lo and behold--it turned out to be bananas. The only time thereafter that she had bladder issues is whenever a school staff member forgot and gave her a banana. Otherwise, she never had the problem again. I only mention this as a possibility--hopefully, this may help shed some light on the problem, since bananas are commonly fed to young children.

organicmama Contributor
organicmama
Posted

This is discussed all the time at groups.yahoo.com/foodlab. Urinary issues related to food are apparently very common from what I've read on the forum. The group was created to exchange information about allergies and sensitivities.

I would suggest you ask the group there, as they are extremely knowledgeable. Many of them did potty training from infancy (elimination communication), where they saw food reactions in a child young enough that they couldn't willfully decide not to potty.

samie Contributor
samie
Posted

My daughter just five she has a problem with it to but she is diabetic to. Though i think i might take her to the doctor cause she does it even when sugars are normal but have you ever checked her blood glucose to make sure it is normal. My daughter used to be fully trained before she became diabetic. I dont know if it could be food related. Also would she be able to see a uroligst to see if shes having problems with her bladder. Just trying to give suggestions.

salexander421 Enthusiast
salexander421
Posted

Yes! My girls are a little younger, 2 and 3 1/2. Both are potty trained and both have accidents when glutened. We are dealing with that with our 2 year old right now. She has been using the potty 100% for about 3 months now, we have recently had some accidental gluten exposures and she has been having to wear pullups because she's having so many accidents. Same with our 3 1/2 year old, I can tell when she's had an accidental exposure because she'll get upset and say she just couldn't hold it. I know it's connected because they have all their usual gluten symptoms that go along with it.

I wet the bed until I was about 10 or 11. My parent's didn't know about my gluten and dairy problems back then but I now think it was connected and my mom agrees.

I wish I had a reference for you, maybe you can google it, but I read somewhere about how pee flushes out the toxins. When you have food issues these are toxins to our bodies and our bodies naturaly try to flush it out by producing more pee. I think the article also said something about it not signaling the brain like it normally does when you just have to pee normally. Hope this makes sense! If I can locate the article I'll post it!

frieze Community Regular
frieze
Posted

My daughter is almost 5 years old(Jan 4) and is still having big issues with staying dry through the day. In any given day she seems to change her undies due to leakage, and sometimes she doesn't make it in time. She is the youngest of 4 girls and very independent, so she has always taken care of things by herself.

We have gone through a lot of frustration thinking she was just being lazy, disobedient, and just didn't care. We have tried many strategies to motivate her and any time she has motivation(candy, swimming, etc.) she miraculously stays dry for weeks/months - and then once the motivation is gone we are back to square one.

Sometimes I even question if she can feel when she needs to go.

A few months ago I started exploring the idea of her having a dairy allergy and taking dairy away seemed to help - for a while. Now she doesn't want to be dairy free and she sneaks it when I am not looking. Since Halloween she has been eating chocolate because it is gluten free(but not dairy free) and she has been having more accidents

I - Mom - have celiacs so she has a very limited amount of gluten. However, she does get some when we are out from adults who accidentally feed her the group snack instead of the one I packed.

She seems to get D a lot. And her hair seems to fall out.

The Dr. said he saw no proof that urinary issues were due to food allergies.

Has anyone else had any problems with bladder control due to gluten/dairy? I would love to get her tested but we are limited by finances and Insurance won't cover so what tests should I request?

And how do I get her teachers to stop feeding her crackers?

I am at my wits end here and would really appreciate help.

In reference to bold....not everything is food related....

domesticactivist Collaborator
domesticactivist
Posted

The fact that she is sometimes able to stay dry probably rules this out but I recently met someone whose son had what I think she called a tethered spine. The connection to his bladder just wasn't there so he didn't feel when he needed to go. At 7 he had a simple surgery that corrected the problem overnight.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


thegirlsmom Apprentice
thegirlsmom
Posted
  • Author

In reference to bold....not everything is food related....

I know this....but what do you think it could be related to? If there was some physical problem, then how could she stay dry for so long with "motivation"? Which is why I have thought it was just willfulness or laziness. It's just been recently that I have explored the idea of it being food related. Our last incident happened on a day she woke up with horrible D and had just (accidentally) been given a snack of saltines and then got up and peed all over herself. The next morning she woke up and had d in her pull up(she has been number 2 trained for years).

I will check out that other group. Thanks everyone for your suggestions.

rosetapper23 Explorer
rosetapper23
Posted

I recently read somewhere on this forum how the nerves to the bladder can be affected by gluten in a form of neuropathy so that a person with celiac is unable to "feel" the urge to urinate and is unable to control the urge. You might do a keyword search on this.

thegirlsmom Apprentice
thegirlsmom
Posted
  • Author

I recently read somewhere on this forum how the nerves to the bladder can be affected by gluten in a form of neuropathy so that a person with celiac is unable to "feel" the urge to urinate and is unable to control the urge. You might do a keyword search on this.

Thanks everyone for your help. I have wondered if she can feel it or not. This week she has had really bad d so I think one way or another we are going to crack down on the gluten.

After that we may try a sort of elimination diet to see if there is a difference. The one time I was obsessive with gluten and dairy after 2 weeks she came to me and said "I just don't understand. I am staying dry and I am not even trying!" Since then I am afraid I was hit with Halloween and been a bit lazy with the candy.

domesticactivist Collaborator
domesticactivist
Posted

I think it's possible that when she's staying dry with motivation it's because she might take a lot of trips to the bathroom that she doesn't feel the need for. That way she would empty her bladder before it emptied itself unexpectedly.

thegirlsmom Apprentice
thegirlsmom
Posted
  • Author

I think it's possible that when she's staying dry with motivation it's because she might take a lot of trips to the bathroom that she doesn't feel the need for. That way she would empty her bladder before it emptied itself unexpectedly.

'

That's kind of what I am thinking. Also, I realized the time she was most successful she had a timer that she just went when it beeped. Again....no need to feel there.

  • 10 months later...
cassP Contributor
cassP
Posted

found this on a google search... gotta go to bed.. anyone still there???

ive been having a lot of bladder issues past year since my last UTI... off and on feeling like i have another UTI and often it happens after i eat yogurt or bananas... which is extemely weird!! didnt happen before... i DID notice in the past 4 years as i went gluten free- the bladder fullness & inflammation would happen when i had gluten or when i had too much Frucotse... then i also adapted a modified Low Fodmap diet - and i would only eat a 1/2 very ripe banana to avoid the high fructose- was always fine... but now bananas mess my bladder up BIG TIME

also when i was a child- i was a VERY FREQUENT Bed Wetter - even having a few episodes as an adult-> also as a kid & teen (& 20s)- i could NEVER hold my bladder EVER when i laughed...

at least i know im not alone :/

MitziG Enthusiast
MitziG
Posted

This is an old post. Start a new topic with your question.

MitziG Enthusiast
MitziG
Posted

This is an old post. Start a new topic with your question.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,198
    • Most Online (within 30 mins)
      7,748
    David Pearch
    Newest Member
    David Pearch
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      TTG IgA and IGA elevated mildy

      By knitty kitty · Posted

      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      New to gluten free living, in5ro and small question

      By trents · Posted

      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
    • AllyJR
      Gluten free parakeet food

      By AllyJR · Posted

      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      New to gluten free living, in5ro and small question

      By boy-wonder · Posted

      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten intolerant,  I looked it up and had every one of 8 or so symptoms listed. Bloating,  weight gain,  headaches, brain fog,  constipation, etc etc. I took the decision to give going gluten free a try. Within 1 week I had lost 4 lb, now 7 weeks in I've lost 13 lb. I feel much better in general,  the bloating has severely subsided, it used to keep me awake at night as I felt so uncomfortable.  So pretty much a success story, as everyone here knows,  going gluten free isn't always easy, and eating out can be awkward,  but I consider myself lucky that I appear to have an intolerance rather than an allergy or being celiac.  I can deal with most of the gluten free options at the supermarket but, the big one for me is bread, I love bread, and the gluten free options I've tried are pretty poor. I was at a posh black tie event last night and chose all the food options I thought would be gluten free,  however,  there was bread on the table and I couldn't resist it, I had I small piece of bread,  god it was good, I wanted more but I resisted. Today I feel a bit dodgy, my stomach is churning, and I generally feel a bit urgh.  So here's the question, is that really down to 1 small piece of bread or is it coincidence?  I'd be interested in hearing how other people have reacted to a similar situation,  as I was considering having a day off every now and then and enjoying some lovely fresh bread.
    • ValerieC
      Guide to colleges for celiac disease

      By ValerieC · Posted

      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
×
×
  • Create New...