Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions On Coping In General


josh052980

Recommended Posts

Lisa Mentor

I think you & Lisa just misunderstood each other. That's all I was trying to clear up.

Yes, thank you Karen, apparently I misunderstood the statement. A lesson learned not to skim a post before commenting :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

I think you & Lisa just misunderstood each other. That's all I was trying to clear up.

I think we did too. Sorry Lisa. I am in a foul mood today too because I've been nauseous for weeks. I posted a thread about it.

Let's get back to the original subject. How do you cope in general? I could use some more ideas because this nausea is obviously making me a grouch. LOL

kareng Grand Master

I think we did too. Sorry Lisa. I am in a foul mood today too because I've been nauseous for weeks. I posted a thread about it.

Let's get back to the original subject. How do you cope in general? I could use some more ideas because this nausea is obviously making me a grouch. LOL

Well...good girls! I remember SSG to be a reasonable person, so I knew she didn't think the evil gluten had sharp teeth and was burrowing into her hands in order to attack her gut. ( might make a good horror movie?)

SSG - you have extra to handle. I suppose you can be grouchy if you want. I'm actually quite grouchy about my family & Thanksgiving. I'm wondering if it's to late to go to Disney.

I do try to find something funny when I'm grouchy or depressed. I have subscribed to a few things on Facebook just to get pics of silly animals or things like that. Some days I don't even look at them but they are there if I can't find anything else.

sandsurfgirl Collaborator

Well...good girls! I remember SSG to be a reasonable person, so I knew she didn't think the evil gluten had sharp teeth and was burrowing into her hands in order to attack her gut. ( might make a good horror movie?)

SSG - you have extra to handle. I suppose you can be grouchy if you want. I'm actually quite grouchy about my family & Thanksgiving. I'm wondering if it's to late to go to Disney.

I do try to find something funny when I'm grouchy or depressed. I have subscribed to a few things on Facebook just to get pics of silly animals or things like that. Some days I don't even look at them but they are there if I can't find anything else.

Yeah it's been a rough time that's for sure. Glad we cleared that up!

Are you talking So Cal Disney or Florida? We have passes and we go a lot.... when I'm well that is.

kareng Grand Master

Yeah it's been a rough time that's for sure. Glad we cleared that up!

Are you talking So Cal Disney or Florida? We have passes and we go a lot.... when I'm well that is.

Don't really care! Both are good! Just want to run away! Somewhere where someone else can make me food!

Lisa Mentor

Don't really care! Both are good! Just want to run away! Somewhere where someone else can make me food!

Be here by Friday for our T-day dinner. ;)

kareng Grand Master

Be here by Friday for our T-day dinner. ;)

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

Don't really care! Both are good! Just want to run away! Somewhere where someone else can make me food!

Disney is so good about gluten free too!

Marilyn R Community Regular

I'd have to have a xanax to deal with Disney World. :D (Remembering when some chick with a stroller knocked my mom's walker out from under when rushing to the fireworks.) I wanted to throttle her!

sandsurfgirl Collaborator

I'd have to have a xanax to deal with Disney World. :D (Remembering when some chick with a stroller knocked my mom's walker out from under when rushing to the fireworks.) I wanted to throttle her!

LOL! Disney is my happy place. We go a lot with our passes.

Marilyn R Community Regular

LOL! Disney is my happy place. We go a lot with our passes.

Hope you have a wonderful time! :D

sandsurfgirl Collaborator

Hope you have a wonderful time! :D

LOL! :P We never go near the place Thanksgiving weekend though. It's the busiest weekend of the year and black Friday is the very busiest day of the year there. I think they usually get to capacity. Craziness!

DerpTyler Newbie

While I don't agree with everything in the above post, YES gluten from shampoo can get into your mouth while in the shower. It's easy to remove that aspect, so it's no longer a possibility when you get ill from other sources. :)

lol have you ever tasted shampoo? haha that stuff is nasty :P last thing i would do is swallow it

notme Experienced

about 6-8 months i went a little nuts, thinking i was "all better" AND i overdid it with stuff that bothers me less and less as time goes by: nightshades, soy, dairy, etc. also thinking that just because they SAID it was safe doesn't mean it is: my blood pressure meds - called the manufacturer and they said the drug was safe so i took them. ran out for a week (i know, bad arlene) and my guts calmed down. turns out the capsule the drug is in is made of some kind of starch nobody could tell me what it was made of. so now i take the drug out of the capsule (called pharmacy and they said this was ok to do) and i'm fine with it. annnd the hand sanitizer/lysol wipes thing: went camping, was miserable - now i make sure i wash my hands with (gluten-free) soap and rinse with h2O if we camp. also separate my gluten free food in my own cooler :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.