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My Local News Medical Report


maximoo

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maximoo Enthusiast

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Here is what I feel is a half ass attempt in describing celiac as it is seriously lacking in important facts & even misrepresents celiac. They said symptoms are painful stomach. We all know it is so much more than that & not all ppl have gastro symptoms. The more I think about it I am actually pissed & will send an e-mail to that station for the misrepresentation. :angry: If a station is going to do a report they should get all the facts straight & deliver them to the viewer.


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maximoo Enthusiast

This is what I wrote to the station:

Dear Ms. Owen:I feel this report seriously misrepresented what celiac disease can do to the body. There are so many more symptoms than "tummy trouble" & in many cases there is no tummy trouble at all. The list of symptoms for celiac is mind boggling: fatigue, fibromyalgia, IBS, migraines, short stature, malnutrition, infertility, joint pain, brain fog, diarrhea, constipation, behavior problems, etc. There are also some studies that show a positive correlation between celiac disease & autism. My two kids have celiac, and neither of them have tummy trouble. This was not a thorough report by any stretch of the imagination & you should not air medical reports without all the facts. Go to celiac.com & get the real diversified stories of ppl with celiac & how they are not supported, and even ridiculed by so called professionals in the medical field. And please view this PSA about celiac:

I am very disappointed in this medical piece by Diana Diaz as it was poorly done and barely researched.

I expect better from your news organization.

I am curious to see what reply I get, if any.

rosetapper23 Explorer

Great letter (and video)! Please keep us informed of their reaction.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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