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- Judy M posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0New (possible) celiac diagnosis
My husband has had lactose intolerance for his entire life (he's 68 yo). So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours. He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect. He is scheduled for an endoscopy and... -
- Janice Emmendorfer commented on Scott Adams's article in Autumn 2025 Issue46Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
I was diagnosed in my late 50s. I wasn’t absorbing iron. (For years I had stomach issues eating too much bread etc but didn’t think anything) They were giving me iron transfusions for weeks and my levels kept going down. So they ran more blood work and found it…I had never heard of it or “gluten free” So much easier though to find food now than ...- adult
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- Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Patiently Waiting to See Results
You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative... -
- Scott Adams replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications4
Gluten free beer ?
In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients. -
- trents replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Patiently Waiting to See Results
Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would...
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My husband has had lactose intolerance for his entire life (he's 68 yo). So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours. He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect. He is scheduled for an endoscopy and colonoscopy in 2 weeks. He was told to eat "gluten free" until the tests!!! I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning. So I guess I have 2 questions. First, I read on this website that prior to testing, eat gluten so as not to compromise the testing! Is that true? His primary care doctor told him to eat gluten free prior to testing! I'm so confused. Second, I read that celiac disease is genetic or caused by other ways such as surgery. No family history but Gall bladder removal 7 years ago, maybe? But how in God's name does something like this crop up and now is so awful he can't go a day without worrying. He still works in Manhattan and considers himself lucky if he gets there without incident! Advice from those who know would be appreciated!!!!!!!!!!!! -
By Scott Adams · Posted
You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis. -
By Scott Adams · Posted
In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients. -
Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis.
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You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months?
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