Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overreacting To All Illness?


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

I feel like after the ordeal with celiac and taking 6 months to heal I overreact to any illness. If I get a cold I get so upset and depressed about it. I get upset and lose perspective on the severity of things. Like latey having nausea from iron supplements messing up my gut I was so down about it.

Anybody else feel this way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

You may be being to hard on yourself expecting more from your body than it can give... Six months to heal from celiac is pretty darn good for most..

Acceptance of anything is sometimes hard to digest, you maybe telling yourself your okay with things but your sub-mind may be thinking different...causing an internal war within...

I truly believe the mind, body, spirit all have to be in sync...

Feel better soon....

Skylark Collaborator

Being ill with a virus changes my brain chemistry and I get upset and depressed. Are you that way too?

I'd definitely be upset about having my gut messed up again by a supplement after finally figuring out the celiac! That's just normal.

CR5442 Contributor

Totally with you all on this. It's taken so long to just relax and realize its just a cold or a strained limb, rather than something to do with celiac. I used to over-analyse everything! Some deep breathing is really helping. And some gardening. My little daughter and I planted over 200 bulbs today!

sandsurfgirl Collaborator

You may be being to hard on yourself expecting more from your body than it can give... Six months to heal from celiac is pretty darn good for most..

Acceptance of anything is sometimes hard to digest, you maybe telling yourself your okay with things but your sub-mind may be thinking different...causing an internal war within...

I truly believe the mind, body, spirit all have to be in sync...

Feel better soon....

I've been diagnosed for nearly 2 years now. It just took me 6 months gluten free to have one symptom free day. It's been a long process.

But you are right, even 2 years is not that much considering I was diagnosed at 40 and had celiac my whole life.

I was hospitalized the beginning of October for an adrenal problem and was in there 10 days. I have been exploring the mind body spirit connectedness thing a lot since then. How much illness I have claimed through fear and thinking sick all the time. I've realized how much negativity I took on because of being sick with celiac and I'm working hard to release that.

That all ties in with this thread too, because I'm realizing how much my perspective has been skewed by my battle with celiac. All those years of being sick and not knowing why has give me this fear of sickness so that I overreact to simple things. It's the first day of my period today (sorry to men who are reading this) and I got so down about being tired when I woke up and not feeling good.

I'm starting therapy again on Tuesday and I really want to work through this and get the right perspective.

mamaw Community Regular

Sounds like you understand the issues you face , now just to overcome them.. I know that can be difficult to say the least.. We all have different coping skills so what might be easy for some is very difficult for another....here's hoping at the end of this you will have smooth sailing....After I had my thyroid ablated I became very sad , tired& depressed..(doctors didnt give correct meds).if it doesn't stay in check with meds I have issues...

blessings

sandsurfgirl Collaborator

Mamaw, I always like to read your posts. I didn't know you had that thyroid treatment done.

I was coping really well until I was hospitalized for the adrenal stuff. Then they told me I probably had Cushings, then they said maybe not. Now I'm retesting for Cushings, but it's looking good that I don't have it.

This new health experience pushed me over the edge and coming back hasn't been easy. My dad is battling lung and brain cancer- so much worse than what I've faced and I feel guilty for having my own emotional struggles with illness.

I realized that there were still unresolved issues over celiac that were hiding under the surface.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sahm-i-am Apprentice

It sounds very much like Post Traumatic Stress Disorder. For years, decades even, you have been battling an unknown enemy. Journaling, reading, researching, testing, probing, all while you are suffering debilitating side effects; it is enough to cause PTSD-like symptoms. You have been your own health warrior, advocating and even questioning your doctors and your self. It is no wonder that you are startled at every bump in the road. Totally understandable.

I have finally relaxed a bit but it is a challenge at times. We have developed a special relationship with doctors, all doctors no matter how good they are - they have to prove themselves to us. For so long doctors have told us what they think and many times they are wrong. We have had to rely on ourselves. So, even when we find a doctor that understands or even diagnoses us, we don't trust that they know everything. We are skeptical. When someone is diagnosed with a broken leg or even the flu, you don't question the doctor. You are given a remedy/prescription and off you go. Complete trust. But celiac disease is tricky and we are finding that doctors, even the knowledgeable ones, don't know the nuances of how it affects everyone. The fact that it is an autoimmune disease makes it even harder. There is so much gray and not much black and white. All this makes us question everything about our health and our bodies. We are waiting for the next shoe to drop. Our bodies have abused us and we are waiting for the next blow. Man, I am just Little Miss Sunshine this morning, huh? :huh: Just trying to say that 'I hear ya!'

Chin up, sandsurfgirl - you are not in this alone! We totally get where you are in your journey.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.