Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Week 4 Of Gluten Free

Metoo

Recommended Posts

Metoo Enthusiast
Metoo
Posted

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciamarie Rookie
ciamarie
Posted

Yay you! :D It's been just over 4 weeks for me too, and the 2nd week for me of low iodine for DH. While trying to figure out what affected the DH using a food diary (and before I knew it meant celiac), I gave up most dairy a few months ago. I miss cheese the most. I actually was using 'smart balance' instead of butter for a few weeks, until I discovered that soy is not good. So now my only dairy is butter, and that I've been having at 50% with palm shortening the last couple of weeks. But as far as it affecting the DH, that's probably more to do with iodine than lactose digestion, perhaps.

After all of that, I have heard or read, that some of the damaged sections of intestine are responsible for producing the lactose enzyme, so that many of those with celiac disease can go back to consuming dairy after they've had a few months for healing. How many months that is, is variable I guess? I'm going to wait at least another month or 2 or 3 perhaps. At this point I'm used to it...

ravenwoodglass Mentor
ravenwoodglass
Posted

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.

Glad to hear you are feeling so much better. Many of us can go back to dairy after we have fully healed. If you want to try just going lactose free first hard cheeses like Cheddar and yogurt may be tolerated. If you are going to go with a dairy replacement do avoid Rice Dream as it may say gluten free but it is processed using barley and many of us have reacted.

RiceGuy Collaborator
RiceGuy
Posted

So glad you're feeling and doing so well gluten-free!

As for the dairy, there are many products out there to choose from, so you actually do not have to give up milk, cheese, yogurt or ice cream. Just the ones made from dairy. There's coconut milk, almond milk, rice milk, cashew milk, hemp milk, etc. Soy milk is also a common dairy-free milk alternative, though soy is controversial and is a top allergen.

Coconut yogurt and ice cream is fabulous stuff as well. Look for products from Open Original Shared Link and/or Open Original Shared Link.

There are non-dairy cheeses too, and even recipes so you can make your own in a blender.

love2travel Mentor
love2travel
Posted

What happy news! Speaking of dairy intolerance, I grew intolerant and was strictly off dairy for about four months. Then I tasted some cheese one day without thinking and nothing happened. So, a few days later I tried some more. Then a few days later again, more. I am taking it easy but so far so good!

Thanks for posting. :)

GlutenFreeNewB Rookie
GlutenFreeNewB
Posted

That's great news! It's been about 4 weeks for me too, and it has been well worth the effort. I've been using almond milk and I don't have any issues with that. I started using that back in February though, so I'm used to it. I get the unsweetened one. Keep up the good work!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Lkg5
      - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      44

      Severe severe mouth pain

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    2. Lkg5
      - Lkg5 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      1

      Rapid Diagnosis of Celiac Disease Using Blood-Based Infrared Spectroscopy and Deep Learning

      Wow!!! 😂
    3. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      44

      Severe severe mouth pain

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor. I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods re...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Gluten-Free Recipes & Cooking Tips
      1

      heaps of hope!

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to bui...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,096
    • Most Online (within 30 mins)
      7,748
    Kathy28
    Newest Member
    Kathy28
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Lkg5
      Severe severe mouth pain

      By Lkg5 · Posted

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Aretaeus Cappadocia · Posted

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      heaps of hope!

      By Scott Adams · Posted

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
    • Scott Adams
      Fruits & Veggies

      By Scott Adams · Posted

      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate or histamine intolerance. The instant burning, heart palpitations, and anxiety you describe are classic systemic reactions to food chemicals, not typical celiac reactions. It makes perfect sense that your body rejected these foods from birth; the gagging was likely a neurological reflex to a perceived toxin. Now that your gut has healed, you're feeling the inflammatory response internally instead. The path forward involves targeted elimination: try cooking fruits and vegetables (which often breaks down the problematic proteins/chemicals), focus on low-histamine and low-salicylate options (e.g., peeled pears, zucchini), and consider working with an allergist or dietitian specializing in food chemical intolerances. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.