Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Week 4 Of Gluten Free

Metoo

Recommended Posts

Metoo Enthusiast
Metoo
Posted

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciamarie Rookie
ciamarie
Posted

Yay you! :D It's been just over 4 weeks for me too, and the 2nd week for me of low iodine for DH. While trying to figure out what affected the DH using a food diary (and before I knew it meant celiac), I gave up most dairy a few months ago. I miss cheese the most. I actually was using 'smart balance' instead of butter for a few weeks, until I discovered that soy is not good. So now my only dairy is butter, and that I've been having at 50% with palm shortening the last couple of weeks. But as far as it affecting the DH, that's probably more to do with iodine than lactose digestion, perhaps.

After all of that, I have heard or read, that some of the damaged sections of intestine are responsible for producing the lactose enzyme, so that many of those with celiac disease can go back to consuming dairy after they've had a few months for healing. How many months that is, is variable I guess? I'm going to wait at least another month or 2 or 3 perhaps. At this point I'm used to it...

ravenwoodglass Mentor
ravenwoodglass
Posted

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.

Glad to hear you are feeling so much better. Many of us can go back to dairy after we have fully healed. If you want to try just going lactose free first hard cheeses like Cheddar and yogurt may be tolerated. If you are going to go with a dairy replacement do avoid Rice Dream as it may say gluten free but it is processed using barley and many of us have reacted.

RiceGuy Collaborator
RiceGuy
Posted

So glad you're feeling and doing so well gluten-free!

As for the dairy, there are many products out there to choose from, so you actually do not have to give up milk, cheese, yogurt or ice cream. Just the ones made from dairy. There's coconut milk, almond milk, rice milk, cashew milk, hemp milk, etc. Soy milk is also a common dairy-free milk alternative, though soy is controversial and is a top allergen.

Coconut yogurt and ice cream is fabulous stuff as well. Look for products from Open Original Shared Link and/or Open Original Shared Link.

There are non-dairy cheeses too, and even recipes so you can make your own in a blender.

love2travel Mentor
love2travel
Posted

What happy news! Speaking of dairy intolerance, I grew intolerant and was strictly off dairy for about four months. Then I tasted some cheese one day without thinking and nothing happened. So, a few days later I tried some more. Then a few days later again, more. I am taking it easy but so far so good!

Thanks for posting. :)

GlutenFreeNewB Rookie
GlutenFreeNewB
Posted

That's great news! It's been about 4 weeks for me too, and it has been well worth the effort. I've been using almond milk and I don't have any issues with that. I started using that back in February though, so I'm used to it. I get the unsweetened one. Keep up the good work!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    2. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
    4. Scott Adams
      - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

      This idea comes up often, but it’s important to separate theory from what’s actually supported by evidence. In celiac disease, the immune system does not “forget” gluten in a permanent or reliable way, even after long periods of avoidance, and the celiac genes do not turn off. While antibody levels (like tTG IgA) can normalize on a strict gluten-free diet an...
    5. Scott Adams
      - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      need help understanding testing result for Naked Nutrition Creatine please

      By Scott Adams · Posted

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medications

      By Scott Adams · Posted

      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.