Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Week 4 Of Gluten Free


Metoo

Recommended Posts

Metoo Enthusiast

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciamarie Rookie

Yay you! :D It's been just over 4 weeks for me too, and the 2nd week for me of low iodine for DH. While trying to figure out what affected the DH using a food diary (and before I knew it meant celiac), I gave up most dairy a few months ago. I miss cheese the most. I actually was using 'smart balance' instead of butter for a few weeks, until I discovered that soy is not good. So now my only dairy is butter, and that I've been having at 50% with palm shortening the last couple of weeks. But as far as it affecting the DH, that's probably more to do with iodine than lactose digestion, perhaps.

After all of that, I have heard or read, that some of the damaged sections of intestine are responsible for producing the lactose enzyme, so that many of those with celiac disease can go back to consuming dairy after they've had a few months for healing. How many months that is, is variable I guess? I'm going to wait at least another month or 2 or 3 perhaps. At this point I'm used to it...

ravenwoodglass Mentor

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.

Glad to hear you are feeling so much better. Many of us can go back to dairy after we have fully healed. If you want to try just going lactose free first hard cheeses like Cheddar and yogurt may be tolerated. If you are going to go with a dairy replacement do avoid Rice Dream as it may say gluten free but it is processed using barley and many of us have reacted.

RiceGuy Collaborator

So glad you're feeling and doing so well gluten-free!

As for the dairy, there are many products out there to choose from, so you actually do not have to give up milk, cheese, yogurt or ice cream. Just the ones made from dairy. There's coconut milk, almond milk, rice milk, cashew milk, hemp milk, etc. Soy milk is also a common dairy-free milk alternative, though soy is controversial and is a top allergen.

Coconut yogurt and ice cream is fabulous stuff as well. Look for products from Open Original Shared Link and/or Open Original Shared Link.

There are non-dairy cheeses too, and even recipes so you can make your own in a blender.

love2travel Mentor

What happy news! Speaking of dairy intolerance, I grew intolerant and was strictly off dairy for about four months. Then I tasted some cheese one day without thinking and nothing happened. So, a few days later I tried some more. Then a few days later again, more. I am taking it easy but so far so good!

Thanks for posting. :)

GlutenFreeNewB Rookie

That's great news! It's been about 4 weeks for me too, and it has been well worth the effort. I've been using almond milk and I don't have any issues with that. I started using that back in February though, so I'm used to it. I get the unsweetened one. Keep up the good work!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.