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Week 4 Of Gluten Free


Metoo

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Metoo Enthusiast

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.


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ciamarie Rookie

Yay you! :D It's been just over 4 weeks for me too, and the 2nd week for me of low iodine for DH. While trying to figure out what affected the DH using a food diary (and before I knew it meant celiac), I gave up most dairy a few months ago. I miss cheese the most. I actually was using 'smart balance' instead of butter for a few weeks, until I discovered that soy is not good. So now my only dairy is butter, and that I've been having at 50% with palm shortening the last couple of weeks. But as far as it affecting the DH, that's probably more to do with iodine than lactose digestion, perhaps.

After all of that, I have heard or read, that some of the damaged sections of intestine are responsible for producing the lactose enzyme, so that many of those with celiac disease can go back to consuming dairy after they've had a few months for healing. How many months that is, is variable I guess? I'm going to wait at least another month or 2 or 3 perhaps. At this point I'm used to it...

ravenwoodglass Mentor

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.

Glad to hear you are feeling so much better. Many of us can go back to dairy after we have fully healed. If you want to try just going lactose free first hard cheeses like Cheddar and yogurt may be tolerated. If you are going to go with a dairy replacement do avoid Rice Dream as it may say gluten free but it is processed using barley and many of us have reacted.

RiceGuy Collaborator

So glad you're feeling and doing so well gluten-free!

As for the dairy, there are many products out there to choose from, so you actually do not have to give up milk, cheese, yogurt or ice cream. Just the ones made from dairy. There's coconut milk, almond milk, rice milk, cashew milk, hemp milk, etc. Soy milk is also a common dairy-free milk alternative, though soy is controversial and is a top allergen.

Coconut yogurt and ice cream is fabulous stuff as well. Look for products from Open Original Shared Link and/or Open Original Shared Link.

There are non-dairy cheeses too, and even recipes so you can make your own in a blender.

love2travel Mentor

What happy news! Speaking of dairy intolerance, I grew intolerant and was strictly off dairy for about four months. Then I tasted some cheese one day without thinking and nothing happened. So, a few days later I tried some more. Then a few days later again, more. I am taking it easy but so far so good!

Thanks for posting. :)

GlutenFreeNewB Rookie

That's great news! It's been about 4 weeks for me too, and it has been well worth the effort. I've been using almond milk and I don't have any issues with that. I started using that back in February though, so I'm used to it. I get the unsweetened one. Keep up the good work!

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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