Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Loss Since I've Gone Gluten Free


looking for info

Recommended Posts

looking for info Rookie

I've been Gluten Free since Mid August and I find myself reacting worst then ever to what seems like everything. One of my issues that concerns me most is how much hair I've been losing. I'm not understanding why my hair is falling out since I've been been gluten free. I have switched to a gluten free shampoo recently. I hope this will stop soon but I was wondering if anyone else has been dealing with anything similar. Can someone please explain if this is a normal reaction to going gluten free or if anyone knows how long it will keep going for. Could there be something else wrong? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Collaborator

Have you had your VITAMIN & Mineral levels checked???

looking for info Rookie

Have you had your VITAMIN & Mineral levels checked???

The last time I had my levels checked was back in August when I was 1st diagnosed. I was told that my calcium and vitamin D levels were low..so they put me on a multi vit. and a D supplement. Dr asked me to keep on them and that they would retest in 6 months..the hair loss didn't kick in right away but for the last 2 months now its gotten out of control.

pondy Contributor

What about thyroid? Has yours been checked out? Also, how is your stress level? Mine shot thru the roof dealing with the diagnosis & basically changing my life and all...

Best of luck to you - hang in there :)

looking for info Rookie

What about thyroid? Has yours been checked out? Also, how is your stress level? Mine shot thru the roof dealing with the diagnosis & basically changing my life and all...

Best of luck to you - hang in there :)

thankfully all my levels including thyroid levels are all normal...stress level goes up and down depending on the day I guess....normally not too high...hopefully its just a passing thing that will get better with time....although i am a bit worried being how much hair i have already lost...thank you for the well wishes.

moose07 Apprentice

My hair continued to fall out until I switched to a gluten free shampoo and conditioner but even that took over a month for me to notice a difference in the amount falling out.

pricklypear1971 Community Regular

You may not be absorbing the vitamins.... If I calculate correctly you'll get tested again in Feb.?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



looking for info Rookie

You may not be absorbing the vitamins.... If I calculate correctly you'll get tested again in Feb.?

Yeah i won't be tested again until Feb. :( ....I've been on a pretty strict with the gluten-free diet but I had a reaction on Thanksgiving.

looking for info Rookie

My hair continued to fall out until I switched to a gluten free shampoo and conditioner but even that took over a month for me to notice a difference in the amount falling out.

I did just learn about 2 weeks back the shampoo I was using was not gluten-free...I wish they would make it easier to know which shampoo's are in fact gluten-free verses having to try and de code all the ingredients. Sorry to hear it took over a month for you hopefully it will only take that long for me I just hope it will start to show a difference for me soon... but it does give me hope that the shampoo might be the only thing wrong..

AVR1962 Collaborator

I've been Gluten Free since Mid August and I find myself reacting worst then ever to what seems like everything. One of my issues that concerns me most is how much hair I've been losing. I'm not understanding why my hair is falling out since I've been been gluten free. I have switched to a gluten free shampoo recently. I hope this will stop soon but I was wondering if anyone else has been dealing with anything similar. Can someone please explain if this is a normal reaction to going gluten free or if anyone knows how long it will keep going for. Could there be something else wrong? :unsure:

I had the same problem, thyroid was fine also. I started taking an extra zinc tab a day along with my multi and BioSil drops and my hair stopped falling out. I know someone who took Evening Primrose oil tabs and it helped her.

Celtic Queen Explorer

I do BioSil drops, Evening Primrose Oil (1,000 mg/day) and Biotin (5,000 mg/day) and it seems to be helping. But it takes time. I've also been gluten-free since August and the times I've been glutened, I have a bad reaction with my hair falling out. But once I'm gluten-free for a couple of weeks, it gets better.

Also, did you have your iron checked? Anemia can be an issue too.

Booghead Contributor

My hair falls out from my thyroid problems. Hope it stops after I start the meds.

looking for info Rookie

I do BioSil drops, Evening Primrose Oil (1,000 mg/day) and Biotin (5,000 mg/day) and it seems to be helping. But it takes time. I've also been gluten-free since August and the times I've been glutened, I have a bad reaction with my hair falling out. But once I'm gluten-free for a couple of weeks, it gets better.

Also, did you have your iron checked? Anemia can be an issue too.

Thank you for the info with the BioSil drops...I'm going to have to check them out. I'm sorry to hear you had the same reaction but thank you for letting me know. It's always nice to know I'm not alone. Sometimes since no one around me can understand what I'm going thru I never know if its a normal response or if it could be something more serious. I also have been trying very hard to stay gluten free but I sometimes find myself being blindly glutened.

I should know soon if its caused by my levels being off even though I should have my blood work checked in 2 months. My dietitian has decided to double check my levels...hopefully everything will turn out

looking for info Rookie

I had the same problem, thyroid was fine also. I started taking an extra zinc tab a day along with my multi and BioSil drops and my hair stopped falling out. I know someone who took Evening Primrose oil tabs and it helped her.

Thank you for the information...I'll be looking into both of these products...hopefully something will work soon

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,722
    • Most Online (within 30 mins)
      7,748

    Diane Pippin
    Newest Member
    Diane Pippin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...