Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed..how Long Of Eating gluten-free Until I Feel Better?


ScarlettsMommy

Recommended Posts

ScarlettsMommy Explorer

With my celiac and crohns, I went undiagnosed for 2 years and I was going to dr after dr. I finally went to Johns Hopkins and was diagnosed 2 days ago. I am starting my gluten-free lifestyle change tomorrow. I was always so sick to my stomach like i had a stomach flu or like something was rotting in my stomach. How long after eating gluten-free will I actually start to feel better? Does it happen instantly or dos it take days, weeks, months? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



amberskids Newbie

My son was dx recently at age 2 -- they told expect at least 90 days and to also eliminate dairy because the body does not have the proper digestive enzymes to handle the dairy --- that said, since we started going gluten-free and Dairy free last tuesday, his DH is nearly disappeared, his eczema has cleared and he has gone from 5-7 BM a day down to 3 and is mostly sleeping through the night. He still wakes and is sometimes fussy and when I feel his tummy I can feel lots of "talking" rumbling, grumbling - so I know he's not completely healed, but MAN! what a difference!

Skylark Collaborator

It's different for everyone. My stomach felt better in a couple weeks but my gluten-caused bipolar illness took another year and a lot of nutritional supplements to resolve.

AVR1962 Collaborator

You should notice a difference in a few weeks. Keep the diet real clean and you will recover faster. Since your symptoms have been on-going for quite some time there will probably be a length of time for repair to your system.

BabsV Enthusiast

When I was diagnosed the doctor told me a minimum of 3 months gluten-free to start to see some sort of improvement...and that it could be 6-12 months for real improvement. I am 3.5 months in and things are definitely better (less pain, less brain fog, insomnia improving, less aching joints) but I'm far from 100%. Also, it hasn't been a steady improvement -- at the beginning I'd have a good day and then go back to feeling awful, I felt like I was all over the place and wondering if I was glutening myself without realizing it. Keeping a food diary really helped in terms of pinpointing things that were just too tough on my system (some of which I've just started reintroducing to my diet.) Also probiotics have been a HUGE help. Good luck. And be patient. Which coming from me is funny because I am notorious for not being patient!

Ginger Sturm Newbie

Hello I'm new on here and dont really know my way around yet so I'm hoping I get a reply! (:

I just found out 3 months ago that I have a high allergy to wheat. I know Celiac Disease and wheat allergies are different but does anybody know how long it takes to feel better from a wheat allergy??

I have been gluten free/wheat free for about 3 months with barely any improvement =/ feelin a little discouraged so replies would be awesome!

Thanks for listening and I hope this works!

Duhlina Apprentice

I am 3.5 months in and things are definitely better (less pain, less brain fog, insomnia improving, less aching joints) but I'm far from 100%. Also, it hasn't been a steady improvement -- at the beginning I'd have a good day and then go back to feeling awful, I felt like I was all over the place and wondering if I was glutening myself without realizing it.

It's been 8 weeks for me as of yesterday and the only differences I have noticed so far are that my swelling/bloating has gone down a lot, I feel a bit more alert and not as exhausted and I'm not getting the migraines anymore. My eczema is flaring up again though as is my depression. I'm hoping it's just whatever's toxicity that is still in me working its way out. Trying to remain patient, it's only been two months for me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiac Maniac Newbie

I was symptomatic for 10 years, at least, before diagnosis.

I started feeling better within a few days. Much better in 2 weeks.

Gluten is like smacking yourself in the head with a ball peen hammer: it feels so good when you stop.

TK Kenyon

ScarlettsMommy Explorer

Thank you everyone for the input! Today was my first day eating gluten-free and i didnt feel sick today. Hopefully a sign of good things to come.

quincy Contributor

Thank you everyone for the input! Today was my first day eating gluten-free and i didnt feel sick today. Hopefully a sign of good things to come.

I hope you heal faster than I have. Its taken me more than a year to settle down and I am dealing with the residual affects such as loss of bone density, reflux and a sluggish gall bladder... I am at least tolerant of dairy again after 18 mos gluten free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Greymo replied to Mary D63's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Violent reaction to gluten after going gluten-free?

    2. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

    3. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

    4. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,162
    • Most Online (within 30 mins)
      7,748

    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
    • trents
      Welcome to the celiac.com community, @mike101020! First, what was the reference range for the ttg-iga blood test? Can't tell much from the raw score you gave because different labs use different reference ranges. Second, there are some non celiac medical conditions, some medications and even some non-gluten food proteins that can cause elevated celiac blood antibodies in some individuals. The most likely explanation is celiac disease but it is not quite a slam dunk. The endoscopy/biopsy is considered the gold standard for celiac disease diagnosis and serves as confirmation of elevated blood antibody levels from the blood testing.
    • Wheatwacked
      Vitamin D status in the UK is even worse than the US.  vitamin D is essential for fighting bone loss and dental health and resistance to infection.  Mental health and depression can also be affected by vitamin D deficiency.  Perhaps low D is the reason that some suffer from multiple autoimmune diseases.  In studies, low D is a factor in almost all of the autoimmune diseases that it has been studied in. Even while searching for your diagnosis, testing your 25(OH)D status and improving it my help your general wellness. Vitamin D Deficiency Affects 60% in Britain: How to Fix It?    
    • mike101020
      Hi, I recently was informed by my doctor that I had scored 9.8 on my ttgl blood test and a follow up EMA test was positive.   I am no waiting for a biopsy but have read online that if your EMA is positive then that pretty much confirms celiac. However is this actually true because if it it is what is the point of the biopsy?   Thanks for any help 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.