Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed..how Long Of Eating gluten-free Until I Feel Better?


ScarlettsMommy

Recommended Posts

ScarlettsMommy Explorer

With my celiac and crohns, I went undiagnosed for 2 years and I was going to dr after dr. I finally went to Johns Hopkins and was diagnosed 2 days ago. I am starting my gluten-free lifestyle change tomorrow. I was always so sick to my stomach like i had a stomach flu or like something was rotting in my stomach. How long after eating gluten-free will I actually start to feel better? Does it happen instantly or dos it take days, weeks, months? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



amberskids Newbie

My son was dx recently at age 2 -- they told expect at least 90 days and to also eliminate dairy because the body does not have the proper digestive enzymes to handle the dairy --- that said, since we started going gluten-free and Dairy free last tuesday, his DH is nearly disappeared, his eczema has cleared and he has gone from 5-7 BM a day down to 3 and is mostly sleeping through the night. He still wakes and is sometimes fussy and when I feel his tummy I can feel lots of "talking" rumbling, grumbling - so I know he's not completely healed, but MAN! what a difference!

Skylark Collaborator

It's different for everyone. My stomach felt better in a couple weeks but my gluten-caused bipolar illness took another year and a lot of nutritional supplements to resolve.

AVR1962 Collaborator

You should notice a difference in a few weeks. Keep the diet real clean and you will recover faster. Since your symptoms have been on-going for quite some time there will probably be a length of time for repair to your system.

BabsV Enthusiast

When I was diagnosed the doctor told me a minimum of 3 months gluten-free to start to see some sort of improvement...and that it could be 6-12 months for real improvement. I am 3.5 months in and things are definitely better (less pain, less brain fog, insomnia improving, less aching joints) but I'm far from 100%. Also, it hasn't been a steady improvement -- at the beginning I'd have a good day and then go back to feeling awful, I felt like I was all over the place and wondering if I was glutening myself without realizing it. Keeping a food diary really helped in terms of pinpointing things that were just too tough on my system (some of which I've just started reintroducing to my diet.) Also probiotics have been a HUGE help. Good luck. And be patient. Which coming from me is funny because I am notorious for not being patient!

Ginger Sturm Newbie

Hello I'm new on here and dont really know my way around yet so I'm hoping I get a reply! (:

I just found out 3 months ago that I have a high allergy to wheat. I know Celiac Disease and wheat allergies are different but does anybody know how long it takes to feel better from a wheat allergy??

I have been gluten free/wheat free for about 3 months with barely any improvement =/ feelin a little discouraged so replies would be awesome!

Thanks for listening and I hope this works!

Duhlina Apprentice

I am 3.5 months in and things are definitely better (less pain, less brain fog, insomnia improving, less aching joints) but I'm far from 100%. Also, it hasn't been a steady improvement -- at the beginning I'd have a good day and then go back to feeling awful, I felt like I was all over the place and wondering if I was glutening myself without realizing it.

It's been 8 weeks for me as of yesterday and the only differences I have noticed so far are that my swelling/bloating has gone down a lot, I feel a bit more alert and not as exhausted and I'm not getting the migraines anymore. My eczema is flaring up again though as is my depression. I'm hoping it's just whatever's toxicity that is still in me working its way out. Trying to remain patient, it's only been two months for me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiac Maniac Newbie

I was symptomatic for 10 years, at least, before diagnosis.

I started feeling better within a few days. Much better in 2 weeks.

Gluten is like smacking yourself in the head with a ball peen hammer: it feels so good when you stop.

TK Kenyon

ScarlettsMommy Explorer

Thank you everyone for the input! Today was my first day eating gluten-free and i didnt feel sick today. Hopefully a sign of good things to come.

quincy Contributor

Thank you everyone for the input! Today was my first day eating gluten-free and i didnt feel sick today. Hopefully a sign of good things to come.

I hope you heal faster than I have. Its taken me more than a year to settle down and I am dealing with the residual affects such as loss of bone density, reflux and a sluggish gall bladder... I am at least tolerant of dairy again after 18 mos gluten free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...