Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Results


Booghead

Recommended Posts

Booghead Contributor

My T4 test was a free T4

My T4 came back at 12.5 and the range was 5.5-10.2 (last test you guys said their ranges were off so I guess the same could be true here.)

My T3 came back at 32 , they didn't give a range just said that it was normal.

My TSH was 5.19 range 1.0-4.5 (according to them)

This isn't "normal" from what I am reading. One of you said that 5.19 means my levels were very low and that is a HYPO thyroid. Is the same true for the T4 test, meaning is my T4 "high" or "low"? If it is "high" then that wouldn't be normal, considering what I am reading.

Would this be indictive of Hashimotos? Or something else? I can't find anything where TSH were low and T4 were high.

Depending on what I get diagnosed with, I might stay gluten free. Don't get all on me about eating gluten today. B)

By the way it was food poisoning from the shrimp. Several others ate shrimp at the same restraunt and got food poisoning. So not the gluten, had some toast for breakfast and a light little lunch and I'm feeling fine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

My T4 test was a free T4

My T4 came back at 12.5 and the range was 5.5-10.2 (last test you guys said their ranges were off so I guess the same could be true here.)

My T3 came back at 32 , they didn't give a range just said that it was normal.

My TSH was 5.19 range 1.0-4.5 (according to them)

This isn't "normal" from what I am reading. One of you said that 5.19 means my levels were very low and that is a HYPO thyroid. Is the same true for the T4 test, meaning is my T4 "high" or "low"? If it is "high" then that wouldn't be normal, considering what I am reading.

Would this be indictive of Hashimotos? Or something else? I can't find anything where TSH were low and T4 were high.

Depending on what I get diagnosed with, I might stay gluten free. Don't get all on me about eating gluten today. B)

By the way it was food poisoning from the shrimp. Several others ate shrimp at the same restraunt and got food poisoning. So not the gluten, had some toast for breakfast and a light little lunch and I'm feeling fine.

Your 'normal' ranges for the T3 and T4 results seem more like Total T3 and Total T4 ranges rather than free t3 and free t4. Usually normal range for free t3 is 2.3-4.2 Normal for total T3 is 80-220. So a total T3 result of 32 would be low. Normal range for total T4 is usually 4.5-12.5. Normal range for free T4 is usually 0.7-2.0. So your T4 result of 12.5 seems like a high normal result for total T4. Most thyroid experts suggest that normal TSH range is 0.3-3.0. So a 5.19 TSH would be higher than normal, which suggests hypothyroidism. Also the low total T3 test result suggests hypothyroidism. However, many endocrinologists consider free T3 and free T4 results more useful for diagnoes.

Although, your high TSH score suggests hypothyroidism, possibly caused by autoimmune Hashimoto's, you really need a test of your thyroid antibodies (TPOab) to verify that you have Hashimoto's, no matter what your other (TSH, T3 and T4) results were. Those can all be normal, even when you have Hashimoto's. Only the antibody test can effectively diagnose Hashimoto's.

Booghead Contributor

OK, These doctors are so stupid I swear! Why would they say one was high and one was normal when neither were true... Is it possible they tested it on a different scale of measurement?

I have read that a Total T4 isn't a very good test, and it has me worried because it can be changed by birth control pills. Which I do take (for stomach cramps and nothing else :P ). They said it was a free T4 so I suppose they could've been wrong again, these are the same doctors who told me my celiacs blood was positive when it wasn't. :blink:

So we will schedule with the primary care doctor the other blood test. And get a referal to a decent endo. Surely any endo would be better then the GI's I've seen.

The first time we were going in to the GI office I said to my mom, "Why would anyone want to deal with stomaches all day long? It's probably because they weren't good enough to deal with hearts." I never thought that would be true. lol

Skylark Collaborator

OK, These doctors are so stupid I swear! Why would they say one was high and one was normal when neither were true... Is it possible they tested it on a different scale of measurement?

The scale is the reference range on your lab slip. I'm not sure why Burdee thinks she can pull ranges that would apply to your labs off the Internet and then declare your test abnormal. I can play the same game and claim you had a normal 32% T3 uptake on a reference range of 25-35%, but in truth we don't know which T3 test you had or what units the results were reported in. TSH is a bit of a special case because it's always reported in the same units and the American Association of Clinical Endocrinologists has stated that the reference range should be 0.5-3.0 mIU/L.

The first thing that is supposed to happen with both high TSH and high T4 is the labs get repeated because it's most often a lab error.

I have read that a Total T4 isn't a very good test, and it has me worried because it can be changed by birth control pills. Which I do take (for stomach cramps and nothing else :P ). They said it was a free T4 so I suppose they could've been wrong again, these are the same doctors who told me my celiacs blood was positive when it wasn't. :blink:

So we will schedule with the primary care doctor the other blood test. And get a referal to a decent endo. Surely any endo would be better then the GI's I've seen.

The first time we were going in to the GI office I said to my mom, "Why would anyone want to deal with stomaches all day long? It's probably because they weren't good enough to deal with hearts." I never thought that would be true. lol

Yes, you need an endo referral.

AmandaD Community Regular

Have you talked with your actual doctor? Did your doctor say these results actually indicate a problem?

Mom of Boys Rookie

My vote for what it's worth: Your TSH is way too high. With medication I keep mine on the low side of normal because I feel awful when it's higher than say... 2. I take synthroid and cytomel because I need a little extra t3, the t4 alone just doesn't work well enough. It is hard to get a doc to prescribe t3 meds. I prefer armour but they changed their formula and I broke out in hives on it.

Hope that helped!

My T4 test was a free T4

My T4 came back at 12.5 and the range was 5.5-10.2 (last test you guys said their ranges were off so I guess the same could be true here.)

My T3 came back at 32 , they didn't give a range just said that it was normal.

My TSH was 5.19 range 1.0-4.5 (according to them)

This isn't "normal" from what I am reading. One of you said that 5.19 means my levels were very low and that is a HYPO thyroid. Is the same true for the T4 test, meaning is my T4 "high" or "low"? If it is "high" then that wouldn't be normal, considering what I am reading.

Would this be indictive of Hashimotos? Or something else? I can't find anything where TSH were low and T4 were high.

Depending on what I get diagnosed with, I might stay gluten free. Don't get all on me about eating gluten today. B)

By the way it was food poisoning from the shrimp. Several others ate shrimp at the same restraunt and got food poisoning. So not the gluten, had some toast for breakfast and a light little lunch and I'm feeling fine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.