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My Daughter Had Her Endoscopy....dr Prescribed Nexium


carecare

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carecare Enthusiast

She is 19 but the celiac specialist pediatric gi dr my boys see said he would do her endoscopy as well. So it was done this afternoon. We have to wait a week for the results of the biopsies. However, he saw "extensive irritation to her esophagus" and she has a hiatal hernia. He said the esophagus irritation is often seen in someone with food allergies. Anyway, he put her on nexium.

I've often noticed here on the forum people talking about esophagus disorders...is this something common with celiac. I can tell you that my husband had severe acid indigestion and it was the first symptom to go away after giving up gluten 2 yrs ago. His diarrhea took 5 to 6 months to clear completely though.


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Takala Enthusiast

Heartburn and acid reflux are extremely common with celiac and gluten intolerance.

carecare Enthusiast

That's what it appears...by doing some reading throughout the last couple of years I have seen a lot of people talk about it on the forum. Must be.

Anxious for the tests to all come back.

Grrr...Nexium was not covered by our insurance. Have to wait for the pharmacy to call the dr tomorrow and see if there is an equivalent replacement.

Cathey Apprentice

I hope your DD is feeling well soon. If she has never been on re-flux medication before watch her stomach and BM's. New medication can reap havoc on your intestinal track.

I was on Zegrid for 2 years and it stopped working last year. Endoscopy showed inflammation to stomach and esophagus, no celiac blood work was taken @ that time. This year I have been on Dexilant, Previcad, Prilosec, Zantec, Zegrid none of which helped and most all gave me bad D. After blood and endoscopy confirmed celiac late October I have been on Nexium. It works for me, I have been off it for the past 3 weeks do to a fasting serum gastrin blood work I had done yesterday. Can't wait to get back on it.

Please watch her carefully and if has any side effects call the Dr. Hope all results turn out well.

Cathey

ravenwoodglass Mentor

This is only my opinion but you might want to just have her go gluten free. Many times the irritation is from the gluten and gluten free she may not need the meds. At least that was the case for myself and my DD. We also eliminated dairy at first.

carecare Enthusiast

Ravenwood, I considered that because with her dad the first thing to improve going gluten free was his severe indigestion.

The only challenge she faces is eating in her college cafeteria. If her biopsy does not confirm celiac the college won't have too provide to much in the way of helping her with her gluten free diet. It'll make me nervous sending her back to her dorm room!

mommida Enthusiast

I think there is a conection. Barret's esophagus and eosinophilic esophagitus seem to be active in for local people with Celiac in the area I live in.

My daughter was diagnosed with EE 3 years ago. We have managed Eosinophilic Esophagitus very well with avoiding food "triggers". It was not easy determining what these triggers were because allergy testing showed nothing. It was through an elimination diet that we were able to figure out eggs, fish, shellfish and peas cause problems for her. I found the most help here at the gluten free forum, as gluten can be a "trigger" for some suffering with EE. Through time we have noticed there is also an airborn reaction late summer through the first heavy freeze. Eosinophils can stay active for 12 days, so it takes almost 2 weeks for a reaction to stop damaging the area.

Wishing your daughter a speedy recovery! :)


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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