Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free For 10 Days, Good But Then Bad Day


researchmomma

Recommended Posts

researchmomma Contributor

My daughter went gluten-free 10 days ago. We did great but then she had a meal last night that wasn't whole foods which we have been trying to stick to. We went out to Pei Wei and she had the gluten free meal. My friend with a child that has Celiac goes there with no problems and he is super sensitive to gluten so we think that was not the culprit. I am not sure her rxn was gluten related but more just a "down' day in the ups and downs of going gluten-free?

Any thoughts? She ate 3 bites of PeiWeis gluten-free shrimp dish and said it made her stomach hurt and she was miserable all night.

Have your kids had slumps in the first few weeks?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

My daughter went gluten-free 10 days ago. We did great but then she had a meal last night that wasn't whole foods which we have been trying to stick to. We went out to Pei Wei and she had the gluten free meal. My friend with a child that has Celiac goes there with no problems and he is super sensitive to gluten so we think that was not the culprit. I am not sure her rxn was gluten related but more just a "down' day in the ups and downs of going gluten-free?

Any thoughts? She ate 3 bites of PeiWeis gluten-free shrimp dish and said it made her stomach hurt and she was miserable all night.

Have your kids had slumps in the first few weeks?

Thanks!

Ten days is so new to the gluten-free diet that anyone could have a reaction from eating something richer or just eating out that has absolutely nothing to do with a gluten hit. It may seem that a person is healing well after only 10 days but it takes a longish amount of time for the gut to heal. Be patient, but don't necessarily hold back and just give your daughter a whole foods diet unless she is OK with that. I ate certified gluten-free bread right away and did fine. As long as you choose certified stuff in the beginning, she should be alright, unless she has another food intolerance or allergy. She may have ingested some gluten but you just don't know as she is so new to the diet. This is normal for starters so keep track of things but don't get overly worried.

researchmomma Contributor

Ten days is so new to the gluten-free diet that anyone could have a reaction from eating something richer or just eating out that has absolutely nothing to do with a gluten hit. It may seem that a person is healing well after only 10 days but it takes a longish amount of time for the gut to heal. Be patient, but don't necessarily hold back and just give your daughter a whole foods diet unless she is OK with that. I ate certified gluten-free bread right away and did fine. As long as you choose certified stuff in the beginning, she should be alright, unless she has another food intolerance or allergy. She may have ingested some gluten but you just don't know as she is so new to the diet. This is normal for starters so keep track of things but don't get overly worried.

Thank you! Meal times are absolutely painful. I feel like we are on eggshells.

IrishHeart Veteran

Thank you! Meal times are absolutely painful. I feel like we are on eggshells.

C'mon now, Momma...what have we discussed so much the past 10 days?? :)

That's right. It's a steady, slow road.

Listen to my friend GEMINI here--she speaks the truth. She was/is my mentor from day 1--when I had symptoms galore and still felt wonky after MONTHS. She told me be patient.

Does J always eat shirmp, hon? Could have been spicy, could have been MSG, blah blah blah. Eating out can be tricky and one celiac's experience is not the same as another. I mean, I am uber-careful & I got whacked from CC last week. :rolleyes: It happens.

This is a glitch, nothing more.

You know, we all still get wonky tums--and it is not from gluten.

Don't get all scared on me now, kiddo--you're a trooper and you're an amazing MOM. PM me if you need me.

researchmomma Contributor

C'mon now, Momma...what have we discussed so much the past 10 days?? :)

That's right. It's a steady, slow road.

Listen to my friend GEMINI here--she speaks the truth. She was/is my mentor from day 1--when I had symptoms galore and still felt wonky after MONTHS. She told me be patient.

Does J always eat shirmp, hon? Could have been spicy, could have been MSG, blah blah blah. Eating out can be tricky and one celiac's experience is not the same as another. I mean, I am uber-careful & I got whacked from CC last week. :rolleyes: It happens.

This is a glitch, nothing more.

You know, we all still get wonky tums--and it is not from gluten.

Don't get all scared on me now, kiddo--you're a trooper and you're an amazing MOM. PM me if you need me.

lol! I know you are right.

My dog had surgery about 4 days before we went gluten free. He has been wearing that damn cone so he can't get through his doggy door and I am up every night at least twice to let him out. I haven't had a good nights sleep in 2 weeks. I am averaging about 4 hours per night and trying to work and get my kid healthy. Then to top it off my son got the stomach flu this week.

I am going to chalk up my emotions this week to lack of sleep. I am truly exhausted.

Oh! and J had been with my mom who gave her five candy canes and let her have two hot chocolates all in one day. Then we went to Pei Wei when I picked her up and that gluten-free meal turned out to be sweet. I think she was sugar loaded. Your post to me on the other thread said to avoid sugar. Well that didn't happen! We talked about it last night. You will laugh. I told her that a friend on the celiac forum said to avoid sugar while we making the transition. She said "what's your friend's name?". She thought I was making it up. Too funny.

She is on culturelle as well. Hopefully she starts seeing some improvement.

I am impressed by her friends and their willingness to help her. When she is over at their houses, they read ingredients and look online to see if items are gluten-free. If they can't find the info, they text me. Nice eh?

Back to whole foods and no eating out if it can be helped until I get the girl healthy.

I think my mind started playing the "maybe it isn't gluten trick". She hadn't had that reaction since we took her off and it was a bad one.

Thank you, thank you for all of the help.

IrishHeart Veteran

Then to top it off my son got the stomach flu this week.

Oh! and J had been with my mom who gave her five candy canes and let her have two hot chocolates all in one day. Then we went to Pei Wei when I picked her up and that gluten-free meal turned out to be sweet.

I am impressed by her friends and their willingness to help her. When she is over at their houses, they read ingredients and look online to see if items are gluten-free. If they can't find the info, they text me. Nice eh?

Well, see the more you tell us, the more we can speculate on what the heck happened!

J. could have some flu symptoms.

um, 5 candy canes and hot chocolate? and were they all gluten free?? (yes, those can have gluten in them)

Too much sugar can give ANY of us a stomach ache. Our guts are not equipped to digest that much at once. You should see me after a few chocolate chip cookies.... :blink: agitated and racy.

Friends are VERY nice to check labels for her :) and thank God they text you....watch for too much MSG and hidden gluten. It may be best to equip J. with a tote bag of safe snacks. (fruits, nuts, chips, cookies, candy--- if she wants)

You see, it's not about being "paranoid" about it ...but it is true that the more food you put in the mix, the less control factor you have to watch the effects on her and then, it is so easy for hubs or her to say, "see she feels crappy, so it's not gluten exclusion!!" because that may just not be true.

Sorry about the dog (hate those cones--we always said our Gracie looked like she was wearing a lampshade and I called her "the life of the party" :lol: )

and yes, all that stress is hard on you. This is why I said Take care of Momma, too! ;)

researchmomma Contributor

Well, see the more you tell us, the more we can speculate on what the heck happened!

J. could have some flu symptoms.

um, 5 candy canes and hot chocolate? and were they all gluten free?? (yes, those can have gluten in them)

Too much sugar can give ANY of us a stomach ache. Our guts are not equipped to digest that much at once. You should see me after a few chocolate chip cookies.... :blink: agitated and racy.

Friends are VERY nice to check labels for her :) and thank God they text you....watch for too much MSG and hidden gluten. It may be best to equip J. with a tote bag of safe snacks. (fruits, nuts, chips, cookies, candy--- if she wants)

You see, it's not about being "paranoid" about it ...but it is true that the more food you put in the mix, the less control factor you have to watch the effects on her and then, it is so easy for hubs or her to say, "see she feels crappy, so it's not gluten exclusion!!" because that may just not be true.

Sorry about the dog (hate those cones--we always said our Gracie looked like she was wearing a lampshade and I called her "the life of the party" :lol: )

and yes, all that stress is hard on you. This is why I said Take care of Momma, too! ;)

Life of the party! Exactly. He is bumping into walls with it and my legs....he is so tired of it! Me too! :P

Grandma did well with the gluten-free thing. My Mom is a super healthy eater and she had Jordan on a whole food diet for the two days she was there. She took bought gluten-free pasta and they had meats and veggies. However, I think she went a litte nuts on the candy! The candy canes were Bobs and the hot chocolate Nestle gluten free. So that was good. I don't think she was glutened. It think she was sugared up and beyond. Add to that the sprite with dinner. Holy Smokes!

I like the idea of a "snack bag" at her friends. The mom's of her to besties are on board and have been asking me what they can give her. So maybe I will make up a Jordan snack bag for each household.

After Christmas, I plan to chill out for a bit. I can't wait.

Wine and a bath will be calling my name!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Life of the party! Exactly. He is bumping into walls with it and my legs....he is so tired of it! Me too! :P

Grandma did well with the gluten-free thing. My Mom is a super healthy eater and she had Jordan on a whole food diet for the two days she was there. She took bought gluten-free pasta and they had meats and veggies. However, I think she went a litte nuts on the candy! The candy canes were Bobs and the hot chocolate Nestle gluten free. So that was good. I don't think she was glutened. It think she was sugared up and beyond. Add to that the sprite with dinner. Holy Smokes!

I like the idea of a "snack bag" at her friends. The mom's of her to besties are on board and have been asking me what they can give her. So maybe I will make up a Jordan snack bag for each household.

After Christmas, I plan to chill out for a bit. I can't wait.

Wine and a bath will be calling my name!

Sugar can do it, plus you said ....there's the flu in your house.

Anything can make for a wonky tum. I have one now and I haven't had gluten or sugar. :blink: I confess, I ate an outrageous mac and cheese at the gluten-free cafe near me and frankly, I was a pig about it:)

Glad you like the snack bag idea!!!. And you can provide enough for her besties, too--chips, goodies--no need to make them "only J's"--that way J will not feel isolated. :)

Glad you agree--time for Mommy. Bath, then wine,but not IN the tub---you could fall asleep and drown in there and I'd feel really bad... :lol:

((hugs)) you've had a rough 2 weeks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,923
    • Most Online (within 30 mins)
      7,748

    cmckurtz
    Newest Member
    cmckurtz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.