Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

H. Pylori


sarahw

Recommended Posts

sarahw Rookie

I was diagnosed with h. pylori a few weeks ago. My naturopathic dr. put me on a supplement called pylorocid with zinc, mastic gum extract, berberine sulfate hydrate, and bismuth citrate. I have been taking it for 2 weeks. From reading some other post it seems like I should be taking an antibiotic to get rid of it although I know she wants to take a natural approach. Has anyone used a supplement like this? I am also have a persisent pain (worse when seated) slightly to the left of my breast bone, along my lower left rib cage. It is painful to the touch. Could this be my stomach causing this pain? and could it be related to the h. pylori or ulcers? Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

I was diagnosed with h. pylori a few weeks ago. My naturopathic dr. put me on a supplement called pylorocid with zinc, mastic gum extract, berberine sulfate hydrate, and bismuth citrate. I have been taking it for 2 weeks. From reading some other post it seems like I should be taking an antibiotic to get rid of it although I know she wants to take a natural approach. Has anyone used a supplement like this? I am also have a persisent pain (worse when seated) slightly to the left of my breast bone, along my lower left rib cage. It is painful to the touch. Could this be my stomach causing this pain? and could it be related to the h. pylori or ulcers? Thanks so much!

Mastic gum is a natural antibiotic with no side effects. I took that after I was diagnosed (by stool test) with H. Pylori. I also took L. Glutamine to heal my stomach damage from HP. I had no side effects or lingering stomach pain after 6 weeks of treatment.

I don't know the other supplements which your NP prescribed to heal your HP, but I know Mastic gum kills the H. Pylori bacteria without significantly killing off your gut's good bacteria.

Your stomach pain sounds very similar to what I experienced before I was diagnosed and treated for HP. Hang in there. Mastic gum will kill your HP. Hopefully the other supplements will heal your stomach.

GFinDC Veteran

Open Original Shared Link

Dabos KJ, Sfika E, Vlatta LJ, Giannikopoulos G.

Source

Department of Gastroenterology, Chios General Hospital Skylitsion, Helenas Venizalou 2, 82100 Chios, Greece. kostasophia@yahoo.com

The abstract linked says they found some success with using mastic gum to treat H.Pylori. It was only a 2 week study so the results may have been even better if a longer trial was done. But 4 or 5 of 10 people had relief using mastic gum in two weeks.

@Sarah

By the way Sarah,

I haven't been to a doctor about mine,. But I think I have it too since a glutening a few weeks ago. I have pain in my left side. It is less when I lay down on my left side, but resumes after I have been up a while. Lying on my right side doesn't help at all. To me that means the stomach acid is doing something to help the situation when I lay on my left aide and it washes that area. i don't usually sleep on my left side but do sleep on my right side. Just my thinking on it.

sarahw Rookie

Thank you both for your responses. I just realized I posted this in the wrong category. The pain in my left side started about 2 weeks ago--about the time I began the h. pylori treatment. I am supposed to take the supplement for 4 weeks so I am wondering why I have the pain now and not before I began treatment. I also started take L. gluatamine around the same time. Are/were either of your pains painful to the touch?

GFinDC Veteran

Hi Sarah,

Mine is deep inside so I have to squeeze to feel the pain better? It is not at the surface/skin or respond to a light touch kind of thing. I can definitely localize it to the top left side of my stomach though. Without any touch, I can feel it is coming from there. Boy, I sure felt it yesterday when I hopped out of my Jeep at the store. Ouch! Big time pain. I went to a grocery store and a CVS pharmacy but they didn't have mastic gum. I did find it at Vitamin Shoppe though. So far so good. It seems like it is helping. I plan to keep taking it for a month. I am also drinking ginger beer and ginger tea. I put some rum in the ginger beer at night and it takes the pain away quickly.

I am still sleeping on my left side which helps also. I am a mastic gum believer now though, good stuff! I never tried it before this.

Burdee thanks so much for your advice on mastic gum! :D

Bubba's Mom Enthusiast

I was just reading an article about getting better sleep and it said sleeping on your left side was better for your digestive system. They didn't go into the reason behind it..but it seems to be the case?

I hadn't heard of the mastic gum before, so thanks for sharing info on that.

I hope you get relief soon!

GFinDC Veteran

Just an update on the mastic gum. The pain is gone so I'd say it works. I am going to keep taking it every day for 3 more weeks though to be sure. I took 2 in the morning and 2 at night right before bed. And slept on my left side where the pain was. I figured the mastic gum in my stomach would coat the area and do it's thing. Anyhow it worked for whatever reason. The brand I got is Solaray 500 MG. I am cutting back to one in the morning and 1 at night now. I hope you get relief soon Sarah, just wanted you to know it helped me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
Nadia2009 Enthusiast

Just an update on the mastic gum. The pain is gone so I'd say it works. I am going to keep taking it every day for 3 more weeks though to be sure. I took 2 in the morning and 2 at night right before bed. And slept on my left side where the pain was. I figured the mastic gum in my stomach would coat the area and do it's thing. Anyhow it worked for whatever reason. The brand I got is Solaray 500 MG. I am cutting back to one in the morning and 1 at night now. I hope you get relief soon Sarah, just wanted you to know it helped me.

Sarah and GFinDC,

I was just diagnosed with H pylori and food allergies and I have been having many weird symptoms on the top of my gastro symptoms.

Sarah, you said your rib cage is sensitive to touch. I have that and more: my whole body and mostly my upper body is overly sensitive to the touch but it is getting better now. It has been a mystery to me and my doctor thought I was having adrenal fatigue because of my chronic fatigue and other symptoms.

GFinDC, is mastic acid good just for the pain or it will kill the bacteria?

bcsamm Newbie

I was diagnosed with h. pylori a few weeks ago. My naturopathic dr. put me on a supplement called pylorocid with zinc, mastic gum extract, berberine sulfate hydrate, and bismuth citrate. I have been taking it for 2 weeks. From reading some other post it seems like I should be taking an antibiotic to get rid of it although I know she wants to take a natural approach. Has anyone used a supplement like this? I am also have a persisent pain (worse when seated) slightly to the left of my breast bone, along my lower left rib cage. It is painful to the touch. Could this be my stomach causing this pain? and could it be related to the h. pylori or ulcers? Thanks so much!

My daughter was diagnosed with Hpylori 2 1/2 weeks ago & then shortly after that diagnosed with Gluten intolerance (celiac disease) as well. Is there somekind of link between the two? She has been taking 2 antibiotics for 2 weeks & then has to take prilosec for 2 months to heal the stomach. She is done with the antibiotics but still doesnt feel better, it is so frustrating to be diagnosed with a double whammy, dont know what is causing her continued stomach aches (Hpylori or gluten)! Any advice would be welcomed.........Frustrated Mom!!!

weluvgators Explorer

Welcome to the board, bcsamm! I think several, if not many, people here have h. pylori experience. My DD was treated for h.pylori, and she is also treated for celiac. The story is long and complicated. I think there is some relationship between the two, but I don't have any links handy. The untreated celiac gut is susceptible to all sorts of things, as it is constantly injured (assuming the standard cultural diet of daily gluten).

My DD's case was very different (and she never has bellyaches, nor did she have any typical symptoms associated with h.pylori), as she had been treated with a gluten free diet for years when we identified and treated her h.pylori infection. I hope that your DD is feeling well. My DD's h.pylori protocol was similar to the one that you describe, and we did see improvement in her condition upon completion of her treatment. We also needed to address our DDs B12 issues, as she hadn't been properly absorbing B12 for some time (top suspect is our DD's severely injured gut just didn't allow for absorption). We have also had to work on our DD's iron levels.

There is a lot of change in simply adopting a gluten free diet, so your DD has a lot going on right now. I hope that she is feeling better quickly. Our kids have had issues wax and wane, so it hasn't been a really clear cut path. We have found that a whole foods diet prepared at home is the most effective treatment for them (and we had to adopt a gluten free home early in this journey). And we have found it necessary to do everything possible to eliminate the risks of gluten exposure in school.

When all else fails for my other DD with frequent bellyaches (also celiac, but tested negative for h.pylori), I massage her belly. We have also used heating pads. Sometimes we just cannot understand what all is playing into it, so coping with it is all that we can figure out to do. Please let your DD know that there are other kids out here that understand the struggle! My kids always appreciate when I can tell them about other kids that I read about here that have shared in similar struggles with celiac . . . and all of the stuff that seems to come along with it!

Take care and ask all the questions you want. We are happy to help you, as many of us understand how overwhelming and complex this can be.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.