Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering If My Toddler Needs To Go Gluten Free!

erinmom

Recommended Posts

erinmom Newbie
erinmom
Posted

my 20 month is a picky eater barely eats! She wakes up throug the night VERY THIRSTY!! her doctor put her on pedisure bc she wasnt eating and not gaining the propery weight! pediatric gasterologist put her on probotics bc she is VERY GASSY and would wake up in the middle of the night with gas! we are on lactose free milk! i need some help bc her doctor isnt doing the job i am one worried mama!!!!!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Have they tested her for Diabetes? I think in little ones being thirsty is a symptom. It could also be that she has some sinus blockage & is breathing with her mouth open? Have they tested her vitamin & iron levels? Did they blood test for Celiac?

Doctors can be so hard to deal with! :blink:

erinmom Newbie
erinmom
Posted
  • Author

Have they tested her for Diabetes? I think in little ones being thirsty is a symptom. It could also be that she has some sinus blockage & is breathing with her mouth open? Have they tested her vitamin & iron levels? Did they blood test for Celiac?

Doctors can be so hard to deal with! :blink:

we were tested for diabetes and they say she was fine!!!!!! they have done blood test but act as everything is fine, but something is going on for sure!!!!! i have no clue what to do bc doctors are NO HELP!!!!!!!!! i just want my silly funny toddler back!:)

kareng Grand Master
kareng
Posted

Get copies of all her blood work and any other tests they have done. You need to see if they have done the right tests. You may need to try another doctor.

erinmom Newbie
erinmom
Posted
  • Author

ok thanks what all testing needs to be done to see if this is the problem?

Booghead Contributor
Booghead
Posted

Well testing for celiacs in a toddler is pointless, it never comes back positive.

It doesn't really sound like that is her problem though. Children can just be thirsty or, if she is waking in the night telling you she is thirsty she might just be trying to delay going back to bed. I don't really know what goes on because I don't live with you :P I would try to get a better doctor if you can. Doctors need to listen and yours does not.

Best of Luck to you and your little one. B)

erinmom Newbie
erinmom
Posted
  • Author

Well testing for celiacs in a toddler is pointless, it never comes back positive.

It doesn't really sound like that is her problem though. Children can just be thirsty or, if she is waking in the night telling you she is thirsty she might just be trying to delay going back to bed. I don't really know what goes on because I don't live with you :P I would try to get a better doctor if you can. Doctors need to listen and yours does not.

Best of Luck to you and your little one. B)

thanks yeah she wakes up like she is starving but when i give her a drink it sucks it down with like 2 sips and back to sleep she goes! and with her not eating it didnt worry me at first but its going on for 8 months we are living off lactose free milk, pedisure, juice and water and tad bit of food here and there! and no her doctor doesnt listen and my husband probably thinks im crazy too but with my five year old i never had this problem so i am a concerned mama! and yes i heard that testing in toddlers never come back postive! guess its time to look into a new doctor!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

I think celiac testing in infants is not very reliable. That would be something to check out. Lactose is not the only possible problem with milk though. It could also be casein, the protein in milk causing a problem. You could try her on non-dairy milk (not soy though) and see if she improves. Rice or hemp or almond milk. Don't use the Dream milks though as they use barley in them.

Open Original Shared Link

erinmom Newbie
erinmom
Posted
  • Author

thanks i will try this! something has to work would it hurt fir me to try the gluten free diet?

StephanieL Enthusiast
StephanieL
Posted

Well testing for celiacs in a toddler is pointless, it never comes back positive.

That just isn't true. I know of many kids 3 and under who test +.

erinmom Newbie
erinmom
Posted
  • Author

so do i need to see about getting her tested?

alex11602 Collaborator
alex11602
Posted

so do i need to see about getting her tested?

I would definitely try to get her tested because down the road for school it will be easier to get accomidations and if it was positive there would be no doubts that gluten was the problem. But after all testing is completed, even if it's negative, you could always trial her gluten free for 3-6 months and see if it helps. Going gluten free is not harmful as long as she is eating nutritious foods and seeing her diet now I don't think it would hurt at all to try.

StephanieL Enthusiast
StephanieL
Posted

Yes, what Alex said :)

erinmom Newbie
erinmom
Posted
  • Author

thanks so much i will get with her doctor! i dont want to run into problems at school and such thanks!:)

M0Mto3 Rookie
M0Mto3
Posted

I think that you should talk to your ped about seeing someone for feeding issues. Has she always not eaten much or is this new? Is she acting ill? Is she having a lot of bowel movements or frequent urination? If she is not eating much during the day it wouldn't be surprising that she is waking up acting like she is starving. I would really work on her feeding before trying anything else. It sounds like she might just be too busy during the day to eat and then she is hungry at night. Also, with her being gassy...it is much more common for toddlers to have issues with the protein in milk than with lactose. I would do what PP said and try soy or almond milk. You can also try cutting out all dairy. Some kids have a lot of GI trouble from dairy.

An issue with dairy is far more common in toddlers than Celiac's. I would probably try cutting out all dairy (even trace amounts) first. If you aren't seeing changes within 2 weeks I would then pursue testing for Celiac's.

erinmom Newbie
erinmom
Posted
  • Author

I think that you should talk to your ped about seeing someone for feeding issues. Has she always not eaten much or is this new? Is she acting ill? Is she having a lot of bowel movements or frequent urination? If she is not eating much during the day it wouldn't be surprising that she is waking up acting like she is starving. I would really work on her feeding before trying anything else. It sounds like she might just be too busy during the day to eat and then she is hungry at night. Also, with her being gassy...it is much more common for toddlers to have issues with the protein in milk than with lactose. I would do what PP said and try soy or almond milk. You can also try cutting out all dairy. Some kids have a lot of GI trouble from dairy.

An issue with dairy is far more common in toddlers than Celiac's. I would probably try cutting out all dairy (even trace amounts) first. If you aren't seeing changes within 2 weeks I would then pursue testing for Celiac's.

thanks so much!!!!!! im going to try all this :)

GFinDC Veteran
GFinDC
Posted

I wouldn't try soy milk. There was a study not long ago published about people putting their kids on soy milk after they had milk reactions. The kids ended up having even more food allergies develop after being put on soy. Soy and guts are not a good combo.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    3. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    5. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748
    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.