Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Upper Abdominal Pain - Under Ribcage

pondy

By pondy
in Coping with Celiac Disease

Recommended Posts

pondy Contributor
pondy
Posted

Hi Everyone,

A while back I posted about Upper GI/Ribcage Pain.

Just wanted to update that I had a follow-up Endoscopy (after 9 months gluten free) & the results are in.

It's the H. Pylori bacteria. :huh: Lo & behold, common to this infection is burning/gnawing upper abdominal pain - lots of times under/behind the left ribcage area. In other words, exactly what I've had.

G.I Doc said that my little villi are growing back, so the gluten free diet is working! There is hope! :D

Now I'm on Clarithromycin, Amoxcillin & Prilosec for treatment. Also, still taking the Culturelle probiotic & staying dairy free. I'm 3 days in & I do believe it's starting to work.

For those of you suffering from that crazy under-the-ribs pain, it might not be a bad idea to get tested for H. Pylori. I've read that it's very common.

All best to everyone. Happy New Year, by the way!

Pondy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TTNOGluten Explorer
TTNOGluten
Posted

Pondy

glad to hear everything is headed in the right direction, hopefully the tx for the H. Pylori gives you some relief, I am now 2 1/2 weeks out from gallbladder surgery, wish I could say the same, the ribcage pain continues as well as into my back, with no improvement, but what can you do. going for 2nd opinion next week with new gastro, hope he has some magic up his sleeve or is at least able to think outside the box, unlike the last one who basically told me that folks with celiac disease usually don't have much in the way of pain. I guess he has never had it to know, as that is by far and away my biggest symptom. I wish the best for you and the H.pylori quick eradication

IrishHeart Veteran
IrishHeart
Posted

Oh, Thank Goodness you found out!! :)

I am so sorry that in all the things I suggested, I never thought to suggest h. pylori to you (my Dad had that and I asked to be tested for it myself when I had this upper rib cage pain--but I was negative)

but I am so glad you took our advice to keep pressing for follow up testing!!

You kept saying you knew it had to be more than just CC issues--and you were right! I was so hoping the follow up care/consult would give you an answer.

(After all those ANTIbiotics you will definitely need the PRObiotics.)

I do hope you recover quickly.

Happy New Year, hon!!!

pondy Contributor
pondy
Posted
  • Author

TTNOGluten,

I forgot if you answered this already, but are you consuming dairy? My pain began to get better after I cut out all dairy products. I also noticed a correlation between major C and upper GI pain. Have you been checked for a kidney infection? Perhaps some other kind of gut infection/bacterial overgrowth?? I'm just grasping at staws here...

I'm very sorry that having your gallbladder removed didn't put an end to your ongoing pain. I know it's terrible not knowing what the hell is going on!

I don't know if having Celiac generally slows healing processes, but it took my body two full months to recover from an easy breezy knee arthrosopy! I felt like a 90 year old in a 41 year old body. I did eventually heal though - as you will. I know you're hurting, but try & think positively. Yeah, easier said than done - but as my new

GI said, where the mind goes the body tends to follow.

Hang in there! Thanks for your response!

Pondy

pondy Contributor
pondy
Posted
  • Author

Oh, Thank Goodness you found out!! :)

I am so sorry that in all the things I suggested, I never thought to suggest h. pylori to you (my Dad had that and I asked to be tested for it myself when I had this upper rib cage pain--but I was negative)

but I am so glad you took our advice to keep pressing for follow up testing!!

You kept saying you knew it had to be more than just CC issues--and you were right! I was so hoping the follow up care/consult would give you an answer.

(After all those ANTIbiotics you will definitely need the PRObiotics.)

I do hope you recover quickly.

Happy New Year, hon!!!

IR,

Oh yes, you are so right about the probiotics! The GI has me on a double dose while I'm taking all these antibiotics.

By the way, everything you suggested has been more than helpful! Especially during the time when I had my old GI who dismissed me completely! You've been a superb source of knowledge for me. So, thanks!

:)

IrishHeart Veteran
IrishHeart
Posted

IR,

Oh yes, you are so right about the probiotics! The GI has me on a double dose while I'm taking all these antibiotics.

By the way, everything you suggested has been more than helpful! Especially during the time when I had my old GI who dismissed me completely! You've been a superb source of knowledge for me. So, thanks!

:)

You're welcome. I am just sooooooo glad you found the culprit and that now you can heal up and get on with it. yaaay!!! Be well, hon!! ;)

jeanniek Newbie
jeanniek
Posted

I had stomach pain and gas for years after I went gluten free. I had been told to eat five small meals a day; but when you work full-time, that is not possible. Finally, I found that eating my breakfast slowly solved both of those problems. Every day I make Cream of Rice and pour about 1/4 of it in a bowl and 3/4 of it in a travel mug, adding vanilla almond milk to each. I eat the bowl of Cream of Rice, one vanilla Kinnikinnick donut, and a cup of warm vanilla almond milk for breakfast. I take the mug of Cream of Rice to work and sip it throughout the morning. Then I try stretching my lunch out throughout the afternoon. I am feeing much better - both physically and emotionally - no more gas, stomach pain, or bloating!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pondy Contributor
pondy
Posted
  • Author

I agree that eatiing frequent small meals throughout the day is easier on the g.i system. I've gotten into this habit recently & have found it helpful too. Now that I am taking massive quantities of antibiotics for the H Pylori, I have severe burning & indigestion... Eating a little snack always remedies the situation.

Thanks for the input!

IrishHeart Veteran
IrishHeart
Posted

Pondy, Thought of you when I saw this and wondered how you are doing???

Open Original Shared Link

GFinDC Veteran
GFinDC
Posted

Mastic gum is the way to go. It kills the h.pylori bacteria.

IrishHeart Veteran
IrishHeart
Posted

Mastic gum is the way to go. It kills the h.pylori bacteria.

One study from 1998 says it does:

Open Original Shared Link

One study from 2003 says it does NOT:

Open Original Shared Link

GFinDC Veteran
GFinDC
Posted

I think I'll go with the first study then. And with my stomach which says yes, it does kill it. My tummie's opinion has a lot of weight in the argument from my personal perspective. :) Thanks for the links

IH.

IrishHeart Veteran
IrishHeart
Posted

I think I'll go with the first study then. And with my stomach which says yes, it does kill it. My tummie's opinion has a lot of weight in the argument from my personal perspective. :) Thanks for the links

IH.

I'm with you. :)

The human body has an amazing capacity to heal--given the right circumstances. I am often told (about my symptoms and my recovery) " well, that's not possible!" and "I have never seen THAT before in my 30- something years!" blah blah blah ....and so, I just listen to my body and my brain now---they are (almost) always right! ;)

Whatever works...works! ;)

pondy Contributor
pondy
Posted
  • Author

Update here...

I am on day 12 of 2 different antibiotics for H Pylori. I've been extremely nauseous - only really able to eat plain bread & water. Thank goodness I only have 2 days of meds to go.

Came down with stomach flu - everyone at work had it. No D, just vomit, abdominal pain... the usual suspects. Today I had D twice - how, I don't know since there is virtually nothing in my stomach.

Enough of the gross stuff! There is good news too!

Burning pain in upper left abdominal quad has gone away! It feels too good to be true. Perhaps these crazy meds with all the crazy side effects are working!!

I follow up with my GI on the 19th.

Best,

Pondy :)

IrishHeart Veteran
IrishHeart
Posted

Antibiotics kill my stomach, too :blink: --sorry, kiddo

Keep the probiotics on board. Drink as much water as you can stand so you do not get dehydrated and hang in there.

That is good news that the awful pain has stopped.

I had a"bug" this week too...ugh! But I fought it off pretty good--could have been worse! ah well, as my Dad used to say "This Too Shall Pass." :)

Geesh, you have had quite a run. Hopefully, you will be right as rain soon.

My best, IH

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.