Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Herpes Outbreaks Since Stopping Gluten


lulumonkey

Recommended Posts

lulumonkey Newbie

I stopped eating gluten about 2 months ago. Since then I have had the DH outbreaks at the base of my spine and on my buttocks that I seen mentioned in so many topics here but I have also had never ending outbreaks of herpes simplex I on the inside of my nose. I have had these outbreaks before but rarely. Since quitting gluten my skin has improved dramatically and so have my digestion issues but I can't get rid of my herpes or DH. I take massive amounts of Lysine daily which used to work but now just seems to help a little with the pain. Has anyone else had this problem? I wonder if my immune system is being taxed by some illness I picked up at work. Everyone there is sick right now. It is hard to know what is a detox symptom and what is being caused by this illness. The symptoms I am sharing with my coworkers are fatigue, runny nose, and earaches. Even when I have caught the flu before I still wouldn't get fever blisters unless I was also really stressed out. I am under some stress right now but it doesn't seem like enough to cause all of this. They are inside of both nostrils on the top and both sides. Every few days I get another outbreak. This is so frustrating!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



weaselfish Rookie

I stopped eating gluten about 2 months ago. Since then I have had the DH outbreaks at the base of my spine and on my buttocks that I seen mentioned in so many topics here but I have also had never ending outbreaks of herpes simplex I on the inside of my nose. I have had these outbreaks before but rarely. Since quitting gluten my skin has improved dramatically and so have my digestion issues but I can't get rid of my herpes or DH. I take massive amounts of Lysine daily which used to work but now just seems to help a little with the pain. Has anyone else had this problem? I wonder if my immune system is being taxed by some illness I picked up at work. Everyone there is sick right now. It is hard to know what is a detox symptom and what is being caused by this illness. The symptoms I am sharing with my coworkers are fatigue, runny nose, and earaches. Even when I have caught the flu before I still wouldn't get fever blisters unless I was also really stressed out. I am under some stress right now but it doesn't seem like enough to cause all of this. They are inside of both nostrils on the top and both sides. Every few days I get another outbreak. This is so frustrating!

Hello lulumonkey,

I'm now into my 3rd week as gluten-free as possible. I was diagnosed with HSV-1 27 years ago. I've seen no increase in HSV outbreak frequency and haven't had one since eliminating gluten in my diet. So, I don't think your unfortunate HSV issue is a result of the absence of gluten. In my case, stress is a huge trigger, and DH if anything IS stress. I had massive regular HSV outbreaks ( not happy ) from my 20's to my mid-late 30's. At 54, the older I get, the less frequent they manifest in me.

DH can take a long time to heal / stabilize, at least as far as my research tells me. And my own slow healing lends validity to that assertion as far as my personal experience goes. I've got a long way to go to get there . . .

Best of luck and healing to you lulumonkey,

WF

ciamarie Rookie

I also went gluten-free a little over 2 months ago. I've begun to figure out that if I have anything that has msg or some of it's aliases, the DH in my ears acts up. I haven't narrowed it all down yet, but something like that might be an issue for you also.

Or perhaps you have an issue with some other food item such as dairy? I'm not sure what your diet is like, but keeping a food diary might help.

Or look for areas of possible cross-contamination. I just cleaned out my silverware drawer yesterday, since I moved aside the stuff that was covering the bottom of the drawer and realized there were lots of crumbs in there -- most of them no doubt gluten-y. It's a big drawer, so I have my silverware holder (also just cleaned) and a bunch of 'gadgets' in there too. In the process I tossed a couple spatulas and other items that I haven't used in a while that weren't likely to be safely de-glutened.

squirmingitch Veteran

Think about make up, anything you use on your skin, lotions, shampoo, conditioners & how about those "treated kleenex?"

domesticactivist Collaborator

I got a herpes outbreak when first going gluten free. But then it cleared up. A year of gluten free/GAPS diet and I only had one outbreak. Now I am five weeks into a gluten challenge and I've had three outbreaks (one right after the other) since reintroducing it. They seem to have been triggered by nuts. Nuts had been a trigger before i changed my diet but on GAPS I could eat them with no problem.

Hopeful1950 Explorer

I think many people experience some crazy symptoms when going gluten-free. For me it seemed that my symptoms had to have a last big blow out.

If you think about it, if you are celiac, and you are consuming gluten, your body's immune system is always in high gear trying to attack the enemy gluten. Is it possible that, with the elimination of gluten, your immune system is not working as hard and therefore is allowing the herpes to break out? Just a theory.

lulumonkey Newbie

Thanks for the input guys. I'm going to hang in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

You're smart to take Lysine....and it's possible that it's not working well for you right now because you're eating a diet that is rich in Arginine. In order for the Lysine to stop the herpes virus from erupting, your body has to be low in Arginine. It is the balance of high Lysine and low Arginine that keeps herpes outbreaks at bay. You might do a word search on foods that are rich in Arginine to figure out if your diet might be too high in it right now. If that's the case, cut back on those foods and raise your Lysine level so that your Lysine is always higher than the Arginine. Whenever I eat eggs for several days, I begin to break out in Herpes on the corners of my mouth, but as soon as I take 1,000-2,000 mg. of Lysine, the outbreak disappears. I always try to take extra Lysine when I eat eggs.

  • 2 months later...
lulumonkey Newbie

I eat eggs all the time but I didn't worry about them because they have a little more lysine than arginine. I will start taking lysine with them. I am also suspicious of the lysine that I am taking. Lysine has always worked for me in the past but it doesn't seem to do anything now. My Doctor put me on Valtrex twice a day about 6 weeks ago and they still haven't gone away. I took a vitamin D supplement the other day and that seemed to make them worse(more painful at any rate). I have increased my vitamin C intake to see what that does.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.