Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction But To What?

spryng

By spryng
in Coping with Celiac Disease

Recommended Posts

spryng Rookie
spryng
Posted

Ok So I've been Gluten Free for 14 days as of today and I must say I haven't felt this good in two years! Yesterday though something made me sick, bloating and god awful belches that was like rotten eggs.. Here is what I ate yesterday so maybe someone can help me figure out what it might have been?? Everything was 100% gluten-free so it had to be something else..

B- 1 fried egg, 1 hashbrown, homemade gluten-free biscuit and glass of milk.

snack- chips with cream cheese/salsa dip

L- 1/2 3 muskateer bar

D- gluten-free spaghetti with meat sauce

snack - chips with cream cheese/salsa dip

ok so it was a big eating day for me, I go really light during the week so I can splurge on the weekends and I still lose weight each week eating like this but my concern is around 3-4 pm I started to feel bloated and the belching began and it lasted ALL night.. awful. I'm a belly sleeper and I could not put pressure on my stomach.. so I guess I'm trying to figure out if it could be the egg or was it the milk? maybe the cream cheese? anyone ever deal with this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I would vote for the milk/lactose, which most of us do not tolerate initially. Cut out all dairy for a week (in case it was the cream cheese too), then have another glass of milk for breakfast - that should tell you. Eat eggs. If that works, try cream cheese - that will tell you if you have to eliminate casein as well as lactose. If you still have problems cut out both. If necessary, then test eggs. When you do not make the lactase enzyme (at the tips of the villi in the small intestine) the milk just sits there and ferments and putrefies and produces gas and diarrhea.

ciamarie Rookie
ciamarie
Posted

Or maybe the 3 musketeer bar? Are they gluten-free? I know I bought some small milky way bars at the end of October, just before I started eating a gluten-free diet, and didn't have any kids come by and discovered I can't eat them because they have barley ingredients. Otherwise I'd be more suspicious of the milk over the egg because celiacs who are new to eating gluten-free tend to have a secondary dairy intolerance. Once their digestion heals, some can eat dairy again.

Edit: It appears mushroom gave you the dairy answer first, didn't mean to be repetitve!

sora Community Regular
sora
Posted

Ok So I've been Gluten Free for 14 days as of today and I must say I haven't felt this good in two years! Yesterday though something made me sick, bloating and god awful belches that was like rotten eggs.. Here is what I ate yesterday so maybe someone can help me figure out what it might have been?? Everything was 100% gluten-free so it had to be something else..

B- 1 fried egg, 1 hashbrown, homemade gluten-free biscuit and glass of milk.

snack- chips with cream cheese/salsa dip

L- 1/2 3 muskateer bar

D- gluten-free spaghetti with meat sauce

snack - chips with cream cheese/salsa dip

ok so it was a big eating day for me, I go really light during the week so I can splurge on the weekends and I still lose weight each week eating like this but my concern is around 3-4 pm I started to feel bloated and the belching began and it lasted ALL night.. awful. I'm a belly sleeper and I could not put pressure on my stomach.. so I guess I'm trying to figure out if it could be the egg or was it the milk? maybe the cream cheese? anyone ever deal with this?

May be the fried egg. I can eat scrambled or fully cooked any time and be ok but if I eat a fried one I get awful belching and upset stomach.

Could be tomato, that's a lot in one day so early in to gluten-free.

spryng Rookie
spryng
Posted
  • Author

I'm pretty sure the 3 muskateer is gluten-free.. it was on a halloween list on this site when I did a search and the ingredients didn't list anything that sounded like gluten.. I can check on that too..

the idea about eliminating lactose for a week sounds good.. I'm still not sure what casein is, gonna have to look into that, is that in all dairy products? I read somewhere too that some people can be lactose intolerant but cheese doesn't effect them? I do eat a lot of cheese and no reaction so far so I was curious about that as well..

Glutinator Girl Rookie
Glutinator Girl
Posted

Ok So I've been Gluten Free for 14 days as of today and I must say I haven't felt this good in two years! Yesterday though something made me sick, bloating and god awful belches that was like rotten eggs.. Here is what I ate yesterday so maybe someone can help me figure out what it might have been?? Everything was 100% gluten-free so it had to be something else..

B- 1 fried egg, 1 hashbrown, homemade gluten-free biscuit and glass of milk.

snack- chips with cream cheese/salsa dip

L- 1/2 3 muskateer bar

D- gluten-free spaghetti with meat sauce

snack - chips with cream cheese/salsa dip

ok so it was a big eating day for me, I go really light during the week so I can splurge on the weekends and I still lose weight each week eating like this but my concern is around 3-4 pm I started to feel bloated and the belching began and it lasted ALL night.. awful. I'm a belly sleeper and I could not put pressure on my stomach.. so I guess I'm trying to figure out if it could be the egg or was it the milk? maybe the cream cheese? anyone ever deal with this?

Have you checked all labels on what you ate?

I'm not sure where you are but hash browns can have a coating,and chck the meat sauce too, but you did have a fair bit of dairy which can make you sick as well, Its hard sometimes to know what is making you feel yuk.

spryng Rookie
spryng
Posted
  • Author

so if it's the fried egg then maybe give my stomach a rest from all the above then try each item one at a time?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


spryng Rookie
spryng
Posted
  • Author

the hashbrowns were homemade, just shredded potato with salt and pepper and lightly fried... the sauce was 100% gluten-free per the label.. yeah it was a big day, I won't even tell you what I ate on saturday, LOL like I said I eat super light monday through friday then I eat what I like sat and sun which I'm losing 1.5-2 lbs a week this way for the past 5 months I'm down 28 lbs so I'm sticking to what works, LOL

eatmeat4good Enthusiast
eatmeat4good
Posted

I went back and forth on whether it was dairy or egg bothering me too...for several months in fact. In the end..it was both. Ugh... no egg, no dairy for me....and then soy started bothering me.

spryng Rookie
spryng
Posted
  • Author

yes soy bothers me too! makes me itch or upset stomach, but mostly itch... crazy

Cathey Apprentice
Cathey
Posted

When I was diagnosed late Oct, my Dr. said no milk or lactose for 3 weeks. Time to give the villi time to heal, the enzymes in the dairy are not good in healing time. Thanksgiving weekend I had cheese cake and then 2 days of grilled cheese sandwiches. OMG what a horrible time the pains were unbelievable. Even now I will only have cheese in moderation once a week and it still bothers me. I still use milk in my morning coffee, so far so good!

Try cutting out the cheese and dairy for a few weeks, then induce them little @ a time. Hope your feeling better soon.

Cathey

spryng Rookie
spryng
Posted
  • Author

Thanks Cathey! I think that is great advice, I'm definitely gonna cut it out and see how I fare once my little villi's heal some more.

melikamaui Explorer
melikamaui
Posted

.. I'm still not sure what casein is, gonna have to look into that, is that in all dairy products? I read somewhere too that some people can be lactose intolerant but cheese doesn't effect them? I do eat a lot of cheese and no reaction so far so I was curious about that as well..

Casein is the protein found in all dairy.

sa1937 Community Regular
sa1937
Posted

Spryng, Lactaid milk is 100% lactose-free. While I did buy that for over a year, I never was a milk drinker per se. I pretty much gave up dairy for about 9 months and then slowly added hard cheeses. Now I seem to be able to tolerate dairy products just fine but I am much older than you so figure it took me longer. Of course, if you are casein intolerant, that wouldn't work.

The one thing to watch for in candy bars besides obvious gluten grains is malt, which is derived from barley.

And when you're new to eating gluten-free, it seems we can react to most anything and everything. I never could quite pinpoint it but assume I was still healing.

pricklypear1971 Community Regular
pricklypear1971
Posted

Three Musketeers don't contain gluten ingredients, but I can't tolerate them frequently. Don't know why, just assume cc. same thing happens if I eat out more than 1-2x a week...I can tell I got into "something" (and gluten is the only food I eliminate).

Getting glutened can be a cumulative thing - which is why they advise Celiacs not to eat large volumes of processed food in one day. You can get 5 ppm here, 5 there...it adds up = a glutening.

Most likely culprit is dairy given the stage you're at. Or, could just be your body isn't ready for a larger volume of food, especially processed food. You did have quite a bit of processed stuff in one day.

Your body is going to do some really weird things over the next 6 months. Don't freak out unless you see a pattern. And even that may be temporary. Annoying while it lasts, though...

Sumomo Newbie
Sumomo
Posted

I have been diagnosed celiac since May 2011, so I've experienced a lot of trial and error over the months of following a strict gluten-free diet (got sick from a mini Snickers, not realizing they were processed on the same machinery as Milky Ways, now I know better!) I know I have a serious intolerance to eggs, as well as gluten, and every time I tried to introduce eggs back into my diet it just caused a lot of pain and suffering. It certainly could be egg white proteins that are causing the issue, but I know everyone is different. I seem to digest dairy just fine, but eggs are a huge no-no in my diet. I don't even bother trying to eat them anymore!

spryng Rookie
spryng
Posted
  • Author

Thank you all so much for all the insight on this! I'm gonna take it much easier on processed foods and test out milk and eggs along the way to see if it was one or the other (or both!) causing the problem.. I still have so much to learn about all this but I'm excited to have so many to share it with :)

Bubba's Mom Enthusiast
Bubba's Mom
Posted

When first going gluten-free you can't digest milk properly. It can cause bloating and gas.

If you are reacting to soy, be aware that chocolate usually has soy lethicin in it. Some people don't react to it, but I do. That has taken chocolate away from me. I'm going to try it again later, once I've healed more. Maybe have that on your "watch list"?

mushroom Proficient
mushroom
Posted

I have been diagnosed celiac since May 2011, so I've experienced a lot of trial and error over the months of following a strict gluten-free diet (got sick from a mini Snickers, not realizing they were processed on the same machinery as Milky Ways, now I know better!) I know I have a serious intolerance to eggs, as well as gluten, and every time I tried to introduce eggs back into my diet it just caused a lot of pain and suffering. It certainly could be egg white proteins that are causing the issue, but I know everyone is different. I seem to digest dairy just fine, but eggs are a huge no-no in my diet. I don't even bother trying to eat them anymore!

Whenever I find a food I am intolerant of, I find it helpful to leave it out of my diet for at least a year before I challenge it, especially a year after going gluten free. Healing of the gut takes different times in different people so it is best not to rush back into things too soon. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.