Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fasting?


Jaxonthehuman

Recommended Posts

Jaxonthehuman Rookie

Has anyone been so frustrated with all the food restrictions and possible sensitivities that they stopped eating?

Last summer I went 18 days without food, drinking only juice that I juiced at home in my own juicer. Nothing added, ever.

That was before I was DH diagnosed and I had a feeling it was some sort of food allergy and figured I'd eliminate the most common culprits all at once, leaving me with.... Just fresh juice.

The result? I lost 15 pounds but did not lose my rash. Now I know it's DH and I've been gluten-free since October and I'm still rashy, I am considering another juice fast as oppose to the thyca diet. Avoiding iodine has been challenging for me and I haven't made it beyond a few days. I always break at a desperate time, like at work or school with a hungry tummy.

Has anyone had a positive or negative experience with juice only? It was mostly positive for me, even though it didn't help my skin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Metoo Enthusiast

Has anyone been so frustrated with all the food restrictions and possible sensitivities that they stopped eating?

Last summer I went 18 days without food, drinking only juice that I juiced at home in my own juicer. Nothing added, ever.

That was before I was DH diagnosed and I had a feeling it was some sort of food allergy and figured I'd eliminate the most common culprits all at once, leaving me with.... Just fresh juice.

The result? I lost 15 pounds but did not lose my rash. Now I know it's DH and I've been gluten-free since October and I'm still rashy, I am considering another juice fast as oppose to the thyca diet. Avoiding iodine has been challenging for me and I haven't made it beyond a few days. I always break at a desperate time, like at work or school with a hungry tummy.

Has anyone had a positive or negative experience with juice only? It was mostly positive for me, even though it didn't help my skin.

Out of desperation thats what I did this morning. I haven't had problems with my rash, but because of my stomach and I am finding its dairy thats the problem. I dropped eggs due to my rash, and instead increased my dairy without really thinking about it and I have been having more stomach problems.

Do you have gluten in shampoos, soaps, moisturizers? I also have stopped touching gluten, I think it was affecting my hand. Then I stopped eating eggs, for the iodine connection.

Jaxonthehuman Rookie

Out of desperation thats what I did this morning. I haven't had problems with my rash, but because of my stomach and I am finding its dairy thats the problem. I dropped eggs due to my rash, and instead increased my dairy without really thinking about it and I have been having more stomach problems.

Do you have gluten in shampoos, soaps, moisturizers? I also have stopped touching gluten, I think it was affecting my hand. Then I stopped eating eggs, for the iodine connection.

All my toiletries and meds are gluten-free. My house and girlfriend are gluten-free.

One cool thing.... As far as I know, the egg iodine is in the yolk. I've been eating scrambled egg whites, it's nice to have them. As far as being around gluten, I work at Starbucks. I don't ever touch the pastries, as it is against health code. . . But I know i must come into contact with a few stray crumbs. I don't eat anything (except fresh bananas) from work and always bring my own lunch so I dont think I could be accidentally CCing myself.

Fasting makes me cold, and it's winter in Portland, Or, so I don't want to be any colder than I already am, but come spring time I think I'll fast again. It makes me feel clean, knowing a get everything out of my system. It's nice to reset your body, maybe this time, Ill food journal as I reintroduce foods.

eatmeat4good Enthusiast

During the height of my illness I became so depressed that I stopped eating altogether for 3 weeks. I only took vitamins, drank water and took collagen tablets. Miraculously and against all reason, I started to feel like I was getting well, I started to gain energy and to feel normal again and I lost all the excess swelling that was inflaming my whole body. Mentally I cleared up and my migraines went away. The depression lifted. I knew I was on to something but I didn't know what. Eventually I had to eat. Then I got sick again for many months, gained weight, got headaches, sunk into depression. Now I know it was Celiac but it took another year to figure that out.

Now I am Paleo and use Mark's Daily Apple.com as a resource. He describes using intermittent fasting to re-set your body metabolism and it makes perfect sense to me. Paleo is perfect for Celiacs. Nothing against juice fasting if it works for you. My DH is sensitive to salicylates so that will not work for me. But fasting in itself is good for the body and the mind I believe. Even though my initial "fast" was not really by choice, now I do fast occasionally for the benefit of it. My weight and moods have stabilized and I am gaining muscle rapidly...even without exercise. My sores are almost healed unless I get into trace gluten or preservatives or salicylates too much.Then I react.

weaselfish Rookie

Scheduled food - type consumption Vs. listening to the body . . .

I think the above covers it. Regular scheduled meals is just part of the matrix we've been indoctrinated into. See, you don't listen to your body then, you watch the synthetic clock . . . The machine world has you . . . Your body knows what it needs, and tells you . . . IF, you listen . . .

The clock tells you when to eat, NOT your body. Not happy, out of balance, out of sync . . .

Fasting is a natural way to purge impurities, BUT, like all good things, too much of one usually ends up in harm . . . Allow the body to dictate and see.

Each of us MUST experiment and determine for ourselves and utilize shared data but NEVER make it gospel. This affliction is too individualized and requires astute observation in my view for one to heal oneself.

I've fasted for over 30 years, randomly and off-and-on, . . . ya, I'm an old fart at 54, however, we don't need to have our colons packed solid yet DH nailed me tail at this late year in my journey. No pun intended . . .

My bread / wheat programmed fetish was my nemesis . . . Imagine that ???

My advice ?: Utilize everything available as a tool, but let your BODY tell you what works and what doesn't !!!!!\

Listen to the body and find peace,

WF

squirmingitch Veteran

Absolutely weaselfish!

  • 3 months later...
cavernio Enthusiast

I plan on fasting once I get my biopsy done. I fasted for 4 days a month or so before dx with celiac out of desperation. Didn't help, but I broke it out of habit of snacking at night while watching tv, not from hunger. I read a ton of stuff about fasting before doing it.

Now that I know I'm a celiac, I think fasting might be even more helpful than I thought. Proponents of fasting specifically say it helps to heal your intestines. Also said to help out other auto-immune problems like arthritis a lot. My mom often fasts once a week and it helps her joint pain.

I'll be doing water only though, no juice unless my heart feels funny.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



weaselfish Rookie

I plan on fasting once I get my biopsy done. I fasted for 4 days a month or so before dx with celiac out of desperation. Didn't help, but I broke it out of habit of snacking at night while watching tv, not from hunger. I read a ton of stuff about fasting before doing it.

Now that I know I'm a celiac, I think fasting might be even more helpful than I thought. Proponents of fasting specifically say it helps to heal your intestines. Also said to help out other auto-immune problems like arthritis a lot. My mom often fasts once a week and it helps her joint pain.

I'll be doing water only though, no juice unless my heart feels funny.

Hey cavernio ,

When you wrote " I'll be doing water only though, no juice unless my heart feels funny. ", my first thought was; " If you deprive your body to the point of heart strain, what possible good could that serve ?" To deprive your physical vehicle of essential nutrients for too long, it could well lead to unintended self-extinction.

Just please consider my observation . . .

Peace,

WF

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.